Chiari comorbid w/EDS

[Viva001]

Selma, what % have you observed?  It definitely seems like the majority, doesnt it?
I'm going to ask my NS.

[Viva001]

NS said he didn't know percentage of comorbidity.

He also said that he didn't know % of "success" of PFD, because so much of it is based upon the patient's perceptions, and their willingness to do their part to recover.

Observing my DH's helplessness with just a broken leg, I could see how those with Chiari are unable to accept & transcend the condition.

[selmaS]

  Have they tested this child for EDS as there is a vascular type that can affect the heart....???

  Aww I am so sorry for ur friend....I had issues in that area too, it took 5 yrs till I was blessed with my DD and I was never on BC ...I know there r quite a few with multiple children but some of us have had issues.....this is also y I only have 1, then I went into early menopause...b4 I was 40.

[Viva001]

Different dx's, unrelated to the original heart defect.
(Poor little guy is barely a yr old-- New Year's baby).

Meanwhile, I was talking to my original Chiari friend-- I always thought that she didn't want to have children, but she admitted that she never conceived, ever.

[selmaS]

  Not sue I am following....accumulating Dx's or Sx's?

[Viva001]

Thanks.

I'm observing that a friend's infant, who was born with a heart defect, is accumulating Dx's.  Seems like a developmental problem is never "simple".

[selmaS]

  I have not put it into %'s  but I have noticed far too many that find out post op after they have had issues that they do have EDS, and my feeling is had they known b4 precautions could have help prevent the set backs .

  But I truly believe this as I have seen so many that do have it...and we all want to either ignore it or avoid finding out as we feel we have too much going on already, but this one dx can help how we feel and heal post op. JMHO