I have had pdf which helped with alot of symptoms had fusion which helped with more symptoms but still had neuropathy like pain and headache the one thing that had given me a ton of energy and decreased my pain is acupuncture.
Hi...it is nice to hear from u again, sorry that things r not better yet....or that the meds did not help....nothing med wise worked b4 I had surgery, but TOPAMAX is helping me post op, and I agree the first few weeks r full of weird side effects, but ur body does adjust and they go away....not sure how long u were on it....
Also, I wanted to mention since u have so many disk issues to make sure u r tested for Ehlers-Danlos as it is a connective tissue disorder and will affect joints....I have EDS and disk issues too...
Not sure what type ins u have, but as Dana mentioned TCI does work with ins now and something to at least check out....getting there, well we do have a few non profits listed that offer to fly people to Dr appointments and for surgery....plus many places like TCI have a place for u and family to stay while u r there at really reasonable rates.....
I hear that tci in new york now works with people and their ins. I did not go there myself but some on here have. I'm sure they will post to you shortly. I know this journey is not easy. I myself have had 2 surgeries amd still have more bad days than good. Hang in there, Dana