I was diagnosed with a syrinx earlier in the year in the t8-t9-t10 vertebrae, it was discovered via MRI which was ordered due to me having sudden bouts of debilitating pain (starts in the middle of my back then a few minutes later moves to my stomach just below my sternum, episodes vary in severity from bad to unable to breathe/pouring with sweat and then vomiting).
I also had numbness and problems with my legs and feet for which I was prescribed Gabapentin by my neurologist which worked very well.
However the episodes of pain have continued and the doctors have at various points decided it was Kidney Stones, Gallstones, a problem with my gall bladder and pancreatitis however I've had CT scans, ultrasounds, numerous blood tests and urine tests and none of them show up anything characteristic of the above.
Has anyone else with a thoracic syrinx experienced the sudden onset pain I describe above, I've been to A&E (ER if you are american) about 8 times (and had more than a dozen episodes, sometimes they are a month apart, sometime two in the same day) since the beginning of the year and the only thing that has helped with the sudden onset pain is IV morphine administered by a paramedic recently.
Symptoms vary based on severity but always start with sudden pain in the back then the front which either levels of or continues to get worse until I struggle to breathe/pour with sweat and sometimes vomit (so much that I've vomited blood from tearing something inside).
Has anyone else with syringomyelia experienced this sudden pain?