I too, have a syrinx, if you look in my profile I have several pictures, I was told because mine is so wide and expanding my spinal cord it is severe. Its c6-t2 but Very wide. I dont suffer alot of pain, I occasionally get tingling, and have lost some sensation in my hands and feet (not alot) and I have very hyper reflexes..and no matter where you hit me on my leg/thigh I have a reflex. Because of my syrinx being so large, I need surgery to prevent further nerve damage.. Many say because I dont suffer, I already have bad nerve damage and thats why I dont feel things I should :(
It is frightning when you research sometimes!
Mazie :)
Check out mine i have a huge one to. I suffer alot of issues. Do u have chiari malformation? If ur unsure i would get an MRI and find out! Good luck to u!
I do have a chiari malformation. I am getting decompression surgery on Oct. 9th
Those are pretty much my symptoms as well.
For me it is like having some kind of barrier or covering in the affected area, like wearing surgical gloves and trying to feel things through them if that makes sense. I also have problems telling the difference between hot and cold.
Burning like pain, pins & needles & fasciculations (involuntary muscle twitching) cause a lot of discomfort.
It will depend on the length, the spinal segments that are involved as much as the with of the Syrinx. Each segment has spinal nerve root's that supply different areas of the body,
http://en.wikipedia.org/wiki/Dermatome_(anatomy)