Hi so far I am the only one in my family DX'd with this, but I do feel my dad has it as his brother has a son with spina bifida and his other son had a DD that died shortly after birth with SB too.....SB is closely related to Chiari and tethered cord,...so I am leaning toward both my dad and his brother passing this along....sorry.JMHO
Chiari type. 1 - me, my daughter
Related Clipel File syndrome. - granddaughter
Related Pituitary lactaid tumor - other daughter
Related? Brothers with Multiple aneurysms
You tell me
I 100% believe chiari is passed down through genes ., though there is no confirmation on this from researchers.
None in my family seems to have chiari or any other related neurological problems
or should I say they have not been dxed since there was no need for them till now to consult neurologists on the chiari or related subject .
However I feel confirmed that it is passed genetically ., If not my immediate family i feel that there is a confirmed possibility that some one in the earlier generations should have had it
I feel that since there were no proper dx facilties it might not have been dxed exactly and they might not have known that they had chiari .
Keep in mind MRI's were not used for general DX until the late 1980's and the cost so high they were not in common use until the late '80's early 90's.....
So even for myself a MRI was not offered until the mid 90's....so...with that in mind u can see y it is difficult to know if older family members may have had it or if they have it now...my dad just turned 80 and refuses to find out....
I too strongly believe it is passed in families and I know it is a subject of research...no conclusions yet.