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3177763 tn?1344537046

What type of vision issues are CM related?

My Eye Doctor diagnosed me with early retinal detachment in both of my eyes! she gave me glasses for reading so I am not straining my eyes, put me on a special vitamin, eye drops and told me that I was awfully young for this to be starting already and wondering if anyone else has this issue? I was also told that I have birth defects in the rods and cones in my eyes that looks like someone used a circular cookie cutter and cut out circles in them! I was born on Camp LeJeune so I was being poisoned before and after I was born and have had a lot of health problems stemming from the water! (yes! I drank the "water") We believe this is where the Chiari came from along with all the other health problems I have had over the years. I have been blessed in that God has seen fit that he made sure the md's found my tumors right before they were considered cancerous! I am still researching to see if any of my other health issues can cause this eyesight issue but I have floaters, I see halos on/ or around things. I can see a car for example and the car looks like there are two more ghost cars kind of around it. There are days when my vision becomes very blurry to the point I can't distinguish anything (after or around HA) and times when it its blurry and just hard to make out and distinguish words and shapes. And it makes me feel even worse when my vertigo hits because I can't focus on anything to try and "help" stop my head from spinning off my body! Just wondering if anyone else with CM had been told that they had early retinal detachment or were experiencing some of the eye symptoms I have been experiencing! These aren't all of them mind you, its just the ones I am having issues with today and I got to thinking I would ask. I had to blow my screen up just to type this even with my glasses on and a lighted keyboard! I do have a HA today probably still from the injections in my head yesterday to rule out Basilar Migraines. OMG those things hurt!
God Bless! And thank you friends, I started to say you have no idea how much it means to me to be able to talk to you and ask all of you these questions but you do! Thank you for your willingness to open your hearts and your lives up to so that people like me, who have felt alone in a sense, for years (because although others try they can never truly relate) no longer feel that sense of loneliness but a peace that we are now among family!
Best Answer
620923 tn?1452915648
COMMUNITY LEADER

  Hi...many have blurry vision, double vision, floaters, depth perception and night vision issues....

I would deff look into Chiari related issues like EDS, POTS,  ICP to see if ne of them could be playing a role in some of ur vision issues.
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Avatar universal
June, I was very worried about my vision, having already had a retinal detachment.  It was my ophthalmologist who sent me to the neuro-ophthalmologist, and he understood the implications of Chiari on vision.  Between the two docs, I had every test available.  I was comforted that my eyes were basically normal, that it was the Chiari causing the problems.  I personally wanted that proof that surgery was necessary & effective.

Not sure you want to be bothered with more docs post op; I had to see both a dentist & orthopod sooner than I wanted to get out.
Helpful - 0
Avatar universal
I was evaluated by a rheumatologist for ErhlosDanos (sp?) and it was negative.  The last time I saw my eye doctor he told me it was not unusual to have some minor retinal attachment as we experience it throughout our lives, I could be misquoting him exactly.  Anyway, because I am in my 60's he said just let's keep an eye on it(no pun intended lol).  Right after that I got the Chiari DX and have been so consumed with all of that - that I have not been back to the eye doctor.  The pain in my eye is very infrequent, the floaters are more frequent, not daily by maybe 2-3 times a week.  The doctor I went to for my eyes is not an opthomologist, and I'm wondering if I need to make an appointment with an Opth right away before surgery.  I thought I read somewhere that someone was told not to see the Opht before surgery?  Anyway,  thanks so much and I will look up Stickler's Syndrome...    June
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Avatar universal
Just a thought.....Have you been evaluated for a connective tissue disorder?  One, in particular, involves eyes and early retinal detachment -- Stickler's Syndrome.  Connective tissue disorders can be co-morbid conditions with Chiari.  
Helpful - 0
Avatar universal
I also have floaters and every once in a while I feel a sharp pain in my eye-hard to explain it feels like my eye is forcefully being moved.  Is the general consensus that I should have an optholmologst check it out b4 surgery? Or wait to see if surgery clears it up and if not, then go to optholmologst??
Helpful - 0
2054597 tn?1344044650
Myself also gets the floaters,blurred and other vision issues usually daily i get the floaters on n off my NS told me it was my CSFflow that was causing all of that i would adivse you to find a good n true neurosergent that specializes in chiari.
Helpful - 0
Avatar universal
I had surgery for a detached retina a few yr ago; the surgeon said my eyeball did not look normal.  Never did find out what was up w/that.  I'm legally blind in my right eye but am glad that I'm not totally blind!
When I woke up from surgery 2 mo ago, I was immediately yelling in pain about my right eye.
I have had oscillopsia, nystagmus & conversion disorder, which all seem to have been resolved post op.  it was my neuro-ophthalmologist who scared me that compression could cause me to lose my visison.
Helpful - 0
2120085 tn?1344765910
I personally have vertical double vision. Visual snow. Floaters and over all annoyance of not being able to see clear sooooo annoying...
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  A good Chiari specialist would know and do most of these tests.....
Helpful - 0
3177763 tn?1344537046
I will! Thank you!I have all of the eye issues above! who would I see about getting tested for the issues you brought up?
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