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620923 tn?1452915648

You know you have Chiari when.....

This is something we have done in the past and I felt since we have all new members that are active it might be fun to see what answers you have for this...complete the sentence.
Have fun with this.
6 Responses
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Avatar universal
Love this one!
You know you have chiari when the Drs pronounce it chee-are-ee

Or pull their phones out to google what it is!
Helpful - 0
3 Comments
lol...yes or says can you say that again...are you talking about the kidney issue?...LOL...uh no that is BUDD-Chari....ugh.
... when you can forecast a hurricane from nearly 800 miles away.
LOL...yup we are all walking barometers.....crazy.
620923 tn?1452915648
COMMUNITY LEADER
you are so tired you can barely keep your eyes open all day and as soon as you get into bed, your eyes pop open and there is no sleep in your immediate future......insomnia I loathe you.
Helpful - 0
4 Comments
I ABSOLUTELY HATE that! And then your PCP always seems to ask 'so are you sleeping better...' lol
LOL...yup...and then ask, have you been to the sleep clinic....ummm yeah and all they wanted me to do was go to a behaviorist to learn how to get to sleep...
I pretty much own stock in Advil pm....
I do sleep better since starting antihistamines....many with Chiari and  EDS  have histamine issues and it does help, but I still have my nights I am wide awake....ugh
Avatar universal
Hello all! I am new to this forum. So glad to know that I am not alone in not being able to sleep!
Helpful - 0
1 Comments
Sleep disturbances are a big issue for Chiarians, but we also have to be aware and get tested for sleep apnea..
620923 tn?1452915648
COMMUNITY LEADER
You know you have Chiari when......

All the reports show it and all the Drs dismiss it.....and ALL the treatments for what they say you have do not relieve any of the symptoms you went in with.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
You know you have Chiari when ....

   Brain surgery sounds like a good idea.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
You know you have Chiari when,

your friends tell you, " but you don't look sick"
Helpful - 0
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620923 tn?1452915648
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