Aa
answers for chiari
Hi my name is silvia I am new to this I have chiari malformation and I would like to know how many appointments befor surgery I had 2 more MRI done Monday the report said some thing about reversed cervical lordosis in the upper cervical region and diminished csf flow posterior to the cervicomedullary region I have no idea what that is I need more answers
Thanks I will go ahead and try contacting Dr oro and try sleeping on an incline maybe it will help it does make sense ThAnk you for your answers.
He is a Neuro surgeon I was referred from cheyenne wy to him I have only had 1 app with him I keep contact with him through email he is located inside the hospital.
I am also taking pills to sleep I have a lot of trouble they worked for first days but not any more does that have to do with chiari also some nights I will not sleep at all do to very painfully head aches my head feels like it's pumping and about to explode is it normal to have those painfully head aches that bad or it's just how chiari goes
COMMUNITY LEADER
I am not familiar with that Dr, is he a Chiari specialist or is that ur PCP?
I thought that's what it stranded for but was not sure.and the answer is no I have not.and I go to Dr Steven ojemann he is in aurora co I believe
COMMUNITY LEADER
MVA = motor vehicle accident
Oh I am not familiar with a Dr in Denver, I know of one in Aurora ....
Not sure what mva is but the surgeon in Denver co said he need those results in befor scheduling surgery. He sent me to 2 more specialist for balance problems and memory lose also don't know what to expect from that but the csf flow is diminished and the lordosis is reversed that is what the report says
COMMUNITY LEADER
Hi and welcome to the Chiari forum.
It is not how many appointments but what all u r tested for and do u need surgery now?
The reversed cervical lordosis is the curiture of ur neck...some have a loss of lordosis....those with a reversal can indicate whip lash.
Were u in a MVA ?
Diminished or an obstruction to CSF flow is what we look for to see if surgery is warranted.Then u look to see if u have a syrinx, disk issues, ICP, POTS, Sleep apnea, Ehlers-Danlos....vitamin and mineral levels....
The most important thing aside of ruling out ALL related conditions is to make sure u have a true Chiari specialist.
Healing from this surgery can take long, and even longer if the Dr is not well informed or experienced.
So do research Drs ...use the list we have, and take ur time to see how surgery may benefit u, cuz once u have surgery it will be some time b4 u can lift ur kids...
Have an Answer?
You are reading content posted in the Chiari Malformation Community
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
If u r going to go to Aurora u might as well try to see Dr Oro as he is one of the country's top Chiari NS's....and trust me there is a big difference btwn a NS and a Chiari specialist.
Yes, chiari does affect sleep and I take antihistamines that are helping me sleep I tries sleep meds and they did not help....I am also post op so I am sure surgery also changed some of it, but I was still having sleep issues after my surgery too.
U may want to see if u sleep on an incline if that helps with the way ur head feels...for some it is ICP and laying flat adds to the pressure.