Aa
Aa
A
A
A
Close
Avatar universal

chiari1

hi yes iam chiari type1 patient but id dont have much pain i dont have any complications now my age is 21 ...ryt nw iam using one tablet which was given by dcotor it reduces pressure so can i continue like this for ever with out surgery...infact i dont have much trouble other than little bit headace and i can perform my all activites well...so can any suggest is it positive affirmation?can i continue vth out surgery?
4 Responses
Sort by: Helpful Oldest Newest
1435895 tn?1304291241
I am happy that you are not having any other symptoms... please do take Selma's advice and get the rest of the answers to see if not having surgery will do any long term damage.  If there is a syrinx or compression or CSF obstruction it could cause irreversible harm.  If you have all the answers about how this is affecting you... I think you can make an informed decision about surgery.  

Best of luck to you!
Pam
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

I would first suggest u find a NL that understands chiari and see if ur PCP is ready to learn with u as u go....and get testing to se just how ur chiari is affecting ur overall health.

U want to know if u have a syrinx, a CSF obstruction, overcrowding, sleep apnea...and there is more, but that is a good start.We do have a list of chiari drs here on MH....u do have to research the drs to find the right one for u.http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1293483

Hang in there : )

  "selma"
Helpful - 0
1630419 tn?1299714661
Chiari Malformation is misunderstood by a lot of people as well as family doctors. I suggest like myself just keep educating yourself on your condition. My 11 year old son has CM1 and his symptoms are minor as well. I've been doing tons of research on this rare condition and CM can be different for many cases. I suggest going to a very informative website like the one listed below and a lot of your questions can be answered as well as setting yourself at ease. Good luck

http://www.chiariinstitute.com/chiari_malformation.html
Helpful - 0
Avatar universal
hi selma  as i said above its my condition now can u suggest me something.does chiari patient ultimately goes to paralysis?in mmy case i dnt have any complications what does it has 2 say and what shuld i do
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease