Hi and welcome to the Chiari forum.
I would first suggest u find a NL that understands chiari and see if ur PCP is ready to learn with u as u go....and get testing to se just how ur chiari is affecting ur overall health.
U want to know if u have a syrinx, a CSF obstruction, overcrowding, sleep apnea...and there is more, but that is a good start.We do have a list of chiari drs here on MH....u do have to research the drs to find the right one for u.
http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1293483
Hang in there : )
"selma"