Aa
Aa
A
A
A
Close
Avatar universal

cranial cervical instability

Could anybody please tell me what the symptoms are for CCI? I have chiari and had surgery 10 months ago and now was just diagnosed with POTS. I have neck pain when I bend my neck forward to look down at a phone computer etc. I was wondering if this could be the problem? Please any insight would be great! What do they do to test for it?
2 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Hi there,

My surgery was back in July of 2014 and i am now suffering from neck pain daily.  I work full time about 35 minutes from home. But 2 days a week i drive over an hour.  By the end of the day and end of the drive I just want to put my head down.  I noticed that wheni look down too much it hurts my neck as well.  I have appt with neurologist to see if i can get the xrays as mentioned by Selma.  Starting to wonder what i have going on in the region too.  I do have headaches during the day but not every day.  
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi...flexion and extension xrays along with some other testing....I was told a halo test...I didn't have it done but was still given the DX....it was too long ago I can''t recall the name of the test just know it involved the use of the halo.

CCI symptoms....sensation of having a bobble head...the head feels too heavy to hold up...so neck pain....headaches worsened by a drive in the car from all the jarring of the head....you need to stabilize the head and limit the motion in order to help with the pain.

With Chiari you should have  placed your computer up higher so you are not looking down....you want the monitor at eye level......

Did you have the tilt table testing?

Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease