Aa
Aa
A
A
A
Close
4487186 tn?1362144662

does anyone else have this problem?

i sm cold all the time. but then at night, i sweat so much i have to change my pjs in the middle of the night and take a shower in the morning. its like my body temp cant regulate. anyone else have this problem?
16 Responses
Sort by: Helpful Oldest Newest
620923 tn?1452915648
COMMUNITY LEADER

  They say the squeaky wheel gets the grease....wow that is great u were able to find a different PT with it seems more experience to be able to help.....

It shows how we do have to get over asking or telling the medical professionals about how we r really feeling in order to get the help.....and if they can't ...like u did  get rid of , change or fire them, they work for us.

I pray u continue to experience relief with this ....
Helpful - 0
Avatar universal
Well, I got rid of the first PT as with him I was ready to quit. One day though another PT did a fill in. Had a horrible HA along with a migraine that day. PT went through the norm then asked how I felt. Told him about the CM and the two types of HA going on. He asked me to lay back down. I did. Long story short within half an hour and numerous needles in my neck low back off skull and countless in face and forehead the HA was gone. Still had pressure but the HA was gone. So I switched PTs. Thus far I have no plans of stopping

CW
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  So a failed lining to ur prosthetic? Wow....I am sure when it was happening u had no idea what was going on....

Nooooooo well at least u found a Dr that knows how to help u this time....

I think Drs like to bawl us out if we don't come sooner....but many times it is just knowing the outcome , what they can offer as help....that keeps us from spending the co-pay...

That sounds great....so I guess I have to read the other thread to see how the dry needling went....rod stopped it as it was not showing improvements....hope it is going better for u.

I know Bro....good to hear as u ALL are always on my mind <3
Helpful - 0
Avatar universal
Unfortunately no, for one, most importantly it didn't make me smarter... rats!

No, blurred vision is back, getting lots of pressure again and wife says a pouch on the back of my neck like when I had the pseudo before. Hardest one for me is the speech thing keep loosing my words again or saying the wrong ones and forgetting mid sentence what I was saying. grrrrrr thought we were past all that....

Wasn't even being bad this time. Was just walking out the door and my leg liner ripped in two, leg came off mid step and I went over backwards. It all happened so fast there was no time to catch myself so well at least the concrete didn't break!

PCP did a CT day before yesterday, that won't do any good I'm sure but I plan to ask for the film.  He told me, without even seeing a film or anything, 'well you have a concussion' bawled me out for not coming in sooner. Under my breath I said "of course not I knew you wouldn't do anything because obviously all Chiarians like to wine'.... He is a good Dr so I didn't say it to him but despite what he says his actions have shown he doesn't truly understand CM at all. Even to my wife she recognizes some of this stuff as Chiari's ugly head again. If it doesn't clear up in a few days I plan to call Luciano's PA and see what she or he can suggest.

Good news is I'm seeing a Pain Dr who seems to really understand CM as well as why I refuse the pain meds. He acknowledged from my chart he said we've already tried the ones that normally may help and I've either shown adverse reactions or allergy to them. So he started the Dry Needling to give it a try.

Life goes on sis... We're fine.
CW
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  CW- u fell?...goodness I hope u r ok....that is a strange temp setting u have there.....is that the only issue since ur fall?
Helpful - 0
Avatar universal
Wow..... Interesting thread.....

I tend to bounce around a bit. I'm either so cold I can't get warm
or I'm hot. Lately it's been a mixture of both. Think I messed myself up
though. Since I fell a few days ago things have changed drastically. The other
day was going to my leg guy, it was 20 degrees outside, wearing a short sleeved shirt and shorts. I was hot actually sweating hot. But my fingers and lower legs hurt they were so cold.

Ahhh.... Our wonderful but most weird friend CM.  

CW
Helpful - 0
7489440 tn?1442008376
I know the feeling. I'm always cold. The house could be 78 degrees, which is fine for everyone else but Ihave to use three crochet blankets and a snuggie to just keep to the shivers away. Some nights iI face sweats but that's not a every night thing thank goodness. I most take steamy hot showers or I don't feel it at all but I have been doing that ever since I didn't have share a bathroom with 7 brothers and sisters! It ***** but as everything else we learned to coupe with this is something else we all have all learned to deal with in on way or another. Its not fun and some may even not like it but its apart of our life and I don't think its going anywhere.
Helpful - 0
3177763 tn?1344537046
I have the same issue! My dad has always teased me saying I'm the only person he knows that will be wearing a jacket in the 98 degree heat we have in LA (Lower Alabama)! My bed is layered with quilts! freezing when I go to bed wit a heated mattress or not and wake in a puddle! Drives DH crazy sometimes! Told him he oughtta be on my end off it! Lol!
Helpful - 0
4513033 tn?1362369362
This happens quite a bit to me as well. I will start off with shorts on and am cold so I get under a blanket but I wake up in the middle of the night in a puddle of sweat!! I must say it is rather annoying. My wife and I do not even share a blanket anymore due to the sweat issues... not fun at all..
Helpful - 0
Avatar universal
Hello! Have you had surgery recently or on any meds? I have this issue as well... night sweats only not the problem with being cold. My doc said it can be a side effect of my medications (I am currently taking Vicodin for pain and Valium for a muscle relaxer) I had surgery just 3 weeks ago and it has gotten better. It is a common side effect of many meds but if you are on no meds and have not had anesthesia recently, I am not sure what to tell you unfortunately. Hope things start going well for you!
Helpful - 0
1823499 tn?1370090289
For the hot shower I need it cool because the steam causes my autonomic dysfunction to flare and then I can't breathe, get a racy heart and feel like passing out. Been this way my whole life so when I got my dxs it all started makin sense. I have chiari, 2 surgeries, basilar invagination, cervical instability, autonomic dysfunction, ehlers daanlos, raynauds, occipital neuralgia, tachycardia. The raynauds causes my fingers and toes to turn white and purple when I get cold or stressed. They go completly numb. Its due to no blood flow. As my veins branch out they get tiny and disappear. We can actually see where my veins end.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

Many of us with Chiari do have a thyroid condition called Hashimoto's....do u also have a Chiari dx?

  Since this is the Chiari forum, I still do not like to assume.....but since u r looking for common threads that is the best place to start,
Helpful - 0
Avatar universal
WOW!  I actually laughed out loud (at myself) when I read your post!  I thought it was only me!  It's such a pain in the ***!!!!!  I've spent thousands of dollars in the last several years on expensive thermal baselayers,etc. and STILL have to wear 10 layers, yes, literally 10 layers, I'm not exaggerating, just to keep warm.  (10 layers to keep warm outside, 4-5 inside)  Plus, outside, overtop all the layers I wear Patagonia's R4 windproof jacket under a full length down coat that comes to the tops of my boots, which are rated to -50 degrees, yet my feet still get cold.  It only get around 30 degrees at the coldest here most of the time.  Every once in a while we'll get a few that are below that , but mostly 40's - 30's,.  It's NOT Alaska, it's Annapolis, Maryland!

Indoors, sitting at my desk, I FREEZE and have to go to 4-5 layers once more.  The only way I can afford the good stuff is through eBay, mostly buying used.  I even wear some super-heavyweight wool long underwear from Minus 33 that are wonderful, but not enough on their own, even inside.

  It's another story at night when I sleep. I'm grateful for the winter!!! I sleep every night with the window open, and only a very light blanket and jersey knit cotton pj's but still wake up sweating, often the collar and chest of the top soaked in sweat!  It's ridiculous!  I tell myself I'm never happy!

  Well,, it's nice to know I'm not alone and maybe through this discussion we can figure out some common threads and find out what's causing it.  It's probably not just one thing.  I know my low thyroid contributes to my cold intolerance and I though it was the soul reason, but the autonomic dysfunction makes sense, too.  It takes time to optimize the thyroid levels, so when it's finally right, I'll let you know if my symptoms have improved at all....
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi...oh indeed....and it is not fun I can attest to.

I get so cold I have to sit on my hands as they  hurt they r so cold....but more over I get cold and can not get warm....I bought boots (like Ugg but a diff brand) to help keep my feet warm,....

I asked my Dr about the sweating as I never had this b4, but I have a urogenic bladder...which can cause me to have waves of heat and sweat...instead of feeling the need to release my bladder....he said it was a neuro issue I will have till I have more surgery and could be something that remains....

But I do get very warm with the need to change the bedding....

For yrs I also would get pain all along my spinal cord instead of the feeling of needing to release or evacuate my bladder.....

This pain had me doubled over in pain....and my Drs always thought it was a UTI ...which I did have often but was not the cause of the pain....

Helpful - 0
4487186 tn?1362144662
it does stink! i have the opposite problem in the shower. the water has to be BLAZING for me to even feel it be luke warm. only reason i know its that hot because of how red my skin gets afterwards and because its up almost all the ways lol
Helpful - 0
1823499 tn?1370090289
I can relate, have same issue. Only I can't even take a nice hot shower,only cool one, nl says its related to my autonomic dysfunction. It ***** but not much to do about it.
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease