hey guys and girls

[cherokeeluck]

does anyone out there with chiari have joint pain or just severe arm pain like i did yesterday? took anti inflamatory it didnt even touch the pain. only had urodinamics and tilt table done failed both will take any advice from people who are experience and been threw the same thing please let me know if any other tests that still need to bedone

[selmaS]

Hi...I am ok...how r u doing?

[cherokeeluck]

hey everyone how are you selma a special hello to you my friend write back

[sandy629]

thank you selma

[selmaS]

  EDS = Ehlers- Danlos Syndrome it is a connective tissue disorder that affects joints and the collagen that holds them together.

    "selma"

[sandy629]

eds ?

[sandy629]

what is ed ?

[cherokeeluck]

thanks stormy we have so much in common

[*Stormy*]

Definitely...in fact that is what I suffer with most since post op. I am also in the process of possibly being dx'd with EDS or a connective tissue disease...these seem to go hand in hand with Chiari. My pain is everywhere bur it started in my neck and down my left arm, it was sobad I knew there was something wrong. I now have a lot of trouble with pain in my legs too. One thing I have noticed is that the muscle/joints/tendons have been weakened and that could be the cause of the pain too. If I was u I would start looking into getting tested for hyperflexibility. Have u noticed that ur joints r quite flexible? Mine crack, pop and definitely extend too far, I have to be careful not to put too much strain on them. I hope u get some answers soon!
Stormy

[actressmouse]

Joint pain?  YES.  My docs are trying to rule out EDS.   My hips and mid back have always bothered me, ever since I can remember.  

[selmaS]

  Well u can have swelling with EDS as well as pain....not sure about the itch...could be an allergy????

My joint pain started in my right elbow, and my dr thought I may have a hairline fracture from a drop attack...an x-ray said no...and more testing resulted in the EDS dx.

"selma"

[sandy629]

  i have arm and shoulder pain. i was told it is a nerve beeing pinched.  i have pain swelling and itch. mostly on my upper arms.

[selmaS]

  Hi...yes, I also get joint pain...but was dx'd with EDS/Ehlers-Danlos Syndrome and that is the reason for my joint pain.If u have not been tested for this, u may want to ask about getting it ruled out.

Many with chiari do have EDS as well.

    "selma"

[epsion22]

yes, initially i had joint pains in my hands along with weakness... that has since went away but was quite strange.. not sure why it happens though.

[candy0722]

I would like to say hello and also to let you know you are not alone. I suffer daily with pain in my arms and legs. The medication the neurosurgeon gives me does even touch the pain.