Aa
Aa
A
A
A
Close
1909799 tn?1322009880

nystagmus

Does anyone have a nystagmus caused by chiari? I had mine before surgery and now 1 year and 4 months after my surgery I still have it.  It causes extreme dizziness, nausea and vision problems.  How do others deal with this condition?
3 Responses
Sort by: Helpful Oldest Newest
Avatar universal
I had a nystagmus for a long time.  I couldn't read because moving my eyes back and forth caused strain, headache, dizziness, and nausea.  I went to occupational therapy for a few months and they had me doing vision exercises to strengthen the muscles.  It made a HUGE difference.  I still have to do the exercises every now and then when I start feeling eye strain, but otherwise I'm almost normal vision-wise.
Helpful - 0
Avatar universal
i have it with certain movements. some mornings getting out of bed or just rolling over will cause me to have nystagmus for a few minutes. you should probably see an eye doctor and explain your situation. i went to the eye doctor today and talked about it and he was very interested and is helping me as best he can.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

  Many with chiari do indeed have this and I know a few members do have it....

If u had surgery and still have this symptom, what did ur Dr say is the reason?....did they rule out syringomyelia? in the cervical , thoracic and lumbar spine?...how about tethered cord, or a disk issue?

   DO u have ne other symptoms?Did u have ne symptoms that went away post op?

     "selma"
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease