pressure in head and trouble walking

[01458]

It's been 7 months since I starded having Chiari symptoms. One thing which worries me is the skull-crushing like feeling on top of my head and on my neck while walking and sitting in a position where I can't lean my head on something. While walking my legs tremble and I have a feeling that I'm going to faint. Also I noticed that my eye sight is getting blurry while experiencing this. Is this normal?

[selmaS]

  That is good they will be looking at all of it again....sometimes 4 weeks can show some changes....this is why it is good to report all NEW symptoms as they happen so the Drs can decide to do a MRI sooner  then later....

So if you have any new issues crop up do call your Dr asap/

[01458]

Yeah, maybe it'll be the best that way :/
Oh really? I feel like this when I'm tired too I can pretty much fight it when I'm not tired.
He said because of the pineal gland cysts which I have they want me to do a MRI in july because I did my first in december they just want to see if they have grown

[selmaS]

You will still want a Chiari specialist to review your MRI's....a reg NS may not have the experience to be able to give you advice on what and when you may need treatment.

I too had issues walking and am doing much better, I actually began using a cane 9 yrs b4 I got my Chiari DX.

I still carry it with me, as I do lean on it more so at the end of a long day or on a bad day....but for the most part I do not need it like I use to.

How often do they plan to check you via a MRI?

[01458]

Last time I went to a neurosurgeon he told me that I don't have any life threatening symptoms and if they ever occur I should call him (like unbearable headaches or breathing probs) and the usual you can live quite good with it, but I can't walk more than 10 mins without getting theese problems I mentioned. One of them told me that they might ask other dr's in my neighbourhood countries but again they are like waiting for my condition to get worse and then to ask for advice or so.  

[selmaS]

  I am  not familiar with those so I could not speculate....

Have you tried to get your local NS's to consult with a Chiari specialist? I know several of them have done so for others...give that a try....

[01458]

No, unfortunately in my region there is no specialist. I had this since the beginning of my problems but it's kinda getting worse and all 5 neurosurgeons I went to did the usual tests they do but didn't consider it a problem. It's true that I'm anxious and I have derealization/deperonalization disorder but could it be related to that?

[selmaS]

  Many others have experienced this as well....not that it is "normal" but it is not uncommon

It could be Chiari alone or a related condition....do you have a Chiari specialist?