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4515626 tn?1369854914

seizures?

so i havent been on the site in a while hope all is well had my surgery back in june  did pretty well with recovery no real issues but still having what i would call seizures yet my surgeon says that seizures are not caused by the chiari and it may be another issue    really come on ive seen numerous posts about chiari and siezures whats all your thoughts related or not had an eeg last week and an appointment this coming tuesday to get results read
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620923 tn?1452915648
COMMUNITY LEADER

  Hi...welcome back...sorry u r still having issues post op.

And u r right....many with seizures pre op have experienced a change.....some have had an increase in seizures and some a decrease.

And we have had a few that did not have seizure activity b4 surgery, but developed it post op.

I feel there is some connection....many yrs ago long b4 I got my Chiari DX I was tested for seizures with an EEG....nothing was found on it....

With that said I know it doesn't explain much...but I feel there is a connection...many have had issues with the pituitary gland and could be the reason for the seizures...and we have had a few that were DX'd with epilepsy post op.

I am interested to hear the results of ur EEG....

Good luck Tuesday
Helpful - 0
4515626 tn?1369854914
thanks selma i think i was having them b4 the surgery but they were going hand in hand with my blackout drop outs now no pain but shaking etc ill keep ya posted on my eeg results just find it hard to believe there is no connection between the two
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620923 tn?1452915648
COMMUNITY LEADER

  The thing is, the Dr u r seeing for the seizures is not well informed on Chiari...so they will not know that it is possible.

Just as many Chiari specialists have a very limited symptoms list, but here on MedHelp we have a Unofficial list that is more like a manifesto..
Helpful - 0
4515626 tn?1369854914
well the doc that told me that was my chiari surgeon who is def a specialist he says its a different part of the brain and has nothing to do with it he said i may have been "struck by lightning twice" lol
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  It is very possible and it seems to be the luck we have as Chiarians...to get hit with more then just Chiari.
Helpful - 0
7201263 tn?1391585994
hi derek I have been told I have a low lying tonsil and I had to sypmtomatic strokes but I have been wondering if it could of been seirures but I dont know how long they would last hope all is well keep in touch because the support of this forum is helping me for sure good luck
Helpful - 0
4515626 tn?1369854914
good luck with your quest for answers my eeg came back clear so idk going for a few more neuro visits b4 i can get back to work not a safe atmosphere for seizures so we shall see this site and everyone on it selma and many others helped me a lot pulling through my surgery and recovery glad i found it and that it is here with helpful real people that care about a complete stranger
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