twitching anyone?

[kricklekrin]

Can anyone tell me if they experience head or face twitching with their Chiari?  I'm having a lot of twitching near my temples, very annoying.  

[kricklekrin]

I'm curious as to why Dr. Heffez said your not a candidate for surgery and may need treatment in the future.

When I began having scary symptoms last Sep. I had a MRI.  My GP didn't even tell me I had Chiari.  I was called and told my MRI was "essentially" normal.  I became suspicious and asked for the report to read myself.  I was so frustrated when I read what was on the report.  If I would not have read this report myself and looked up the medical language, I would still think I'm losing my mind.  For years, doctors did not know what was wrong.  Antidepressants was always the answer.  I was not depressed.  

I immediately scheduled an appointment with Dr. Heffez.  

I have a cousin with Chiari and since I've been diagnosed, two more cousins have been diagnosed as well.

I have an appointment with Dr. Heffez again next month.  He did not push surgery for me at the time of the first appointment, but because I e-mailed him with some symptoms he said I may be a candidate for surgery.  His MRI showed crowding on the R and my vertebral artery denting into my medulla.  My Chiari is mild and only 3mm below my foramen magnum, but there is crowding within my brain.    

I too was frustrated with not having a Cine MRI to see if there was fluid being blocked.
Especially because during that time I was having several seizure like episodes.  

He didn't push surgery, but he did say my symptoms may be from cervical myelopathy and I wore a neck brace for 5-6 weeks.  He wanted to rule this out as the cause of many of my symptoms.  When I continued to have symptoms and contacted him, he then said I may be a candidate for surgery.  I think at this time he will do a Cine MRI to see if surgery would help me.  And I really don't know if I'm ready for surgery.  

What I'm trying to say is, your Chiari may be mild and if you continue to have symptoms and decide to call him back to let him know of these symptoms, he may do a Cine MRI at that time.  Only then will you know if your Chiari mild or not is causing your symptoms.  

Good Luck,  Kristel    

[gmaldonado]

I didn't read over all the posts but YES!!!! I twtich and OMG IT ANNOYING!!! Especially in my head!People look at me weird when i put my hand over my head and i say "ugh!!! my head is twitching!" my eyes, my lips my jaw area...arms legs fingers..among other areas..down there you know where. The haze and the static that too. ..the spots and the halos that too.  Its crazy!

[selmaS]

Hi...I get what I call a spasm in my neck...feels like the muscles r cramping..especially after I yawn...very odd, but stretching helps that too...wonder if it is the same and we just call it a doff name?

"selma"

[jpurple]

I get the head tremors and also the eye twitching.  The head tremors are embarassing because i'm talking to people and keep stretching my neck to get it to stop somewhat.  I don't know what else to do.  My pcp said to do the stretching but it doesn't stop it, I wonder what would help?

[selmaS]

I always thought the twitching was that I was over tired...lol....oh well....I also thought it was low levels of diff vitamins and minerals too....


If only it could be that easy....eat a banana and u r cured : )

[dkdean]

Well shoot....Add that to my list of Chiari-related symptoms...didn't ever think that was related....mine is mainly with each eye and sometimes my lip...I always thought it was stress or I needed more potassium and would eat a banana!!!  Too bad a banana cannot cure herniated tonsils!! ;)  Mine will happen for a week or so and then go away for a bit.