Chronic Fatigue Syndrome Community
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Avatar universal

Advice for CFS


Im writing on this board as I am desperately looking for help or advice on how to deal with my current illness. I have been dealing with tiredness for as long as I can remember. My memory is awful short and long term so I have told my GP it has been about 3-4 years that I have noticed this exhaustion but it has been going on for a decade.

Every day I have to force myself out of bed after wresting with the idea for hours. My body hurts and my mind is always so cloudy - my mood in morning is always a grump one. some days im so tired Ill sleep through my alarms. I never wake up rested abd it always feels like I have had about 1 hour of sleep each night. It is important to note that my sleep is not disturbed and ill sleep constantly till my alarm goes off. if i have no alarm i wont take for well over 12 hours.

For the rest of the day my brain is usually cloudy and fighting to stay focused. I struggle to read or concentrate on what people are saying and I always forget things. around 1-2 oclock ill begin to get uncontrollably tired, eyes are extremely heavy and my chest / breathing becomes very notcible and heavy. This is after going to bed at 9-10pm the night before and getting a good rest. This always happens.

when I get home from work ill crash and sleep or sometimes fight the unrelenting fatigue till around 8 or 9 then go to bed. When i go out to socialise with family or even just go out for dinner i am always in battle with the tiredness. I can barely live and im only 26 years old. it feels like im trapped in the body of a 80 year old.

Ive been seeing my GP for many years about this, we have trated my depression I had a few years ago and am now definitely not depressed. the tiredness continues. They checked my thairoid and treated me for an underactive one, with my current medication my levels are now normal but my tiredness continues. They have checked my heart with xray and my bloods for mutiple problems abd they say I should be really healthy. I was told to exersise more and eat more healthy meals. I have been doing these things for 3 years now and nothing has changed.

My GP told.me to seek help online answers / possible medicatons or find a doctor who may have answers. Im at a complete loss and need help.

Any advice would be appreciated.

2 Responses
15695260 tn?1549596713
Hello Michael, welcome to MedHelp's forums.  Thank you for your question.  Working with your doctor is important and are glad you have been followed.  Remember, you can always get second opinions from another doctor. Some give up and some continue to search for answers for their patients as they solve a medical mystery. Have you ever considered visiting a nutritionist?  They may help with a diet plan to correct any deficiencies.  Vitamin deficiencies are also associated with fatigue.  

Chronic fatigue syndrome is a true disorder but often doesn't get the attention from health care providers which is unfortunate. It's complex though and hard to narrow down to this diagnosis. https://www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/symptoms-causes/syc-20360490.  One thing that literature shows is those diagnosed with chronic fatigue syndrome often do better when they stay on depression medication rather than taking for a while and discontinuing it.  Food for thought. Exercise is great but for CFS, it's graded exercise that matters. Online support is important too and we are glad you found us.  We'll reach out to members and hope that you connect with others here also coping as best they can.  

Please know that there is always research and studies going on to improve things for those diagnosed with CFS. Here's something that just came out https://www.deccanchronicle.com/lifestyle/health-and-wellbeing/060319/chronic-fatigue-syndrome-can-be-improved-with-cocoa.html

So, please stay in touch.
Avatar universal
You may have fibromyalgia. Your symptoms are almost like me. My condition is almost same like you. Only I and my doctor knew about my health status. I always try to stay happy happy and active but tiredness always remain with me. I am always scolded at home for being lazy but I can't help it. At college, teachers wonder that why I don't participate in any physical activities such as dancing or any sports. But I can't.
wow, thanks for the post.  Have you had any luck being treated for fibro with regards to your energy?  
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