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Avatar universal

Do I have CFS? Constant fatigue, brain fog and excessive thirst

Age: 26
Weight: 173 lbs
Height: 5'10"
Lives in Connecticut

Symptoms:
Brain fog, fatigue, lightheaded, extreme thirst, reaction to foods (inconsistent) and agitation

Timeline/Description:
I have had these issues for over 4 years... When I first started my job out of college, I would have random bouts with fatigue where I would have to go to my car and nap because I was so tired. As the years have gone on, this has grown more and more constant, to the point where I always have fatigue, brain fog, light-headedness and sometimes feel so "out of it" that I am afraid to drive.

Over the past two years, I have begun experiencing excessive thirst (on top of the fatigue/fog) daily, which leads me to drink well over the recommended daily water intake.

There are many times where the brain fog increases drastically following a meal but this is not always consistent. I find that when I am having a really bad day with brain fog, I am very agitated, fidgety and moody as well (not because I am not feeling well, seems more like another symptom).

More and more I have been having reactions to foods/alcohol, to the point where I turn bright red, get itchy, face gets hot and I start to have a little trouble breathing which tends to go away within an hour or so. I spent over two years getting immunotherapy for external allergens, with no relief. I was also tested for food allergies but nothing came back positive.

Other random issues that I have had over the past 4 years include increased sinus infections, ear aches and back drip, which never used to be issues for me.

I take a multivitamin daily, vitamin b-complex and a probiotic.

Doctors and Tests:
I have had appointments with my primary care physician, ENT, Allergist, Naturopath, Endocrinologist and Pulmonologist. I have been tested for mono, Lyme disease, anemia, diabetes, thyroid and what seems like all of the "go to" tests when a doctor hears fatigue. I tested negative for diabetes and negative for all other initial endocrine system tests, with the doctor feeling confident that it was not an issue within her realm.

The ENT did not see any issues with the sinuses but recommended immunotherapy. The allergist could not figure out why my two years of immunotherapy for external (dust, pollen, trees, grass) allergies did not help at all and did not believe food allergies was my issue.

My Naturopath tested my B12 and other vitamin levels with no problems popping up. After her recommendation, I went on a two month anti-candida diet (cut out all yeast, sugar, alcohol, etc) as she thought it was a yeast build up in my intestines. I stayed on the strict diet for two full months and stopped once the stool tests came back negative for yeast. While I ate extremely healthy, cut out alcohol and lost 15 pounds, I felt no better than before.
I am scheduled for a sleep test within the next two months but I feel that my lack of sleep quality is due to all of the issues I am having, not the other way around. Not to mention, a sleep issue doesn’t seem to answer the excessive thirst problem.

I am also seeing a Neurologist within the next month.

I do not believe that I have depression, though I am starting to get slightly depressed seeing as these issues have gone on for so long and have been very debilitating.

Who I Am:
I have always been a hardworking, focused and career oriented individual who loves being around people and making others laugh. Over the past four years, I have slowly turned into someone who can barely focus on simple tasks (brain fog), has put his entire career on hold hoping to find a cure (too afraid to start a new job as I can barely focus) and someone who has not been his normal self. These issues have become more and more debilitating; to the point where my entire life has revolved around how I can just get back to feeling like my old self (I can't even remember what that is like anymore). I go to bed every night praying I will just wake up and feel better, only to wake up and immediately be hit with fogginess and fatigue. I am not a depressed or suicidal person, but I honestly don't know what I'd do if I looked back in 6 months and still felt this way and/or had no clear direction on how to find a cure.

6 Responses
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Avatar universal
My conditions and situation sounds very similar. I also came back from a trip in January this year. Since then, I've been dealing with the mental fog and fatigue. I've been looking into a number of doctors, but at this point, I'm growing increasingly desperate.

Please let me know if you find anything out.

It's definitely best to try to rule out everything as soon as possible instead of waiting.
Helpful - 0
535822 tn?1443976780
last few days I have also had a spasmodic rash appearing
Helpful - 0
Avatar universal
I happened upon this post while I was looking for some kind of answers.

I wish that I had an answer for you, but unfortunately I am just a 30 year old female - another suffering human being.

I too have been experiencing the above symptoms. I recently went on vacation (and while it may be depressing coming home after that, it began while I was there.) I started off with the extreme drowsiness after having several days of go go go. I got so tired after sitting in the hot tub for a few minutes that I needed to leave my group and go lay down to rest. I brushed it off as just being overheated, and needed a rest. Every day since then, I have not recovered from this feeling. And in addition to the drowsiness, I have the feeling as though I have been drinking and have a slight buzz almost all the time while I am awake. (Note, I am not drinking or on any street drugs.) The only prescription drug I take is propranalol for high BP, and my blood pressure has been within the normal ranges when I have checked it. I also have some slight muscle pain, although I am not sure if this is related or not.

No matter how much sleep I get, caffeine I drink, or exercise I do, the feelings do not change. I think that if I had the opportunity, I would sleep all day. This is not an option for me, of course, and I cannot imagine continuing on with daily life like this. It has been about 9 days so far.

I look forward to hearing any success that you may have in finding an answer or cure.
Helpful - 0
535822 tn?1443976780
No I don't have the thirst, that maybe due to a sugar inbalance have you been tested for dabetes?I do have arms and legs ache and back, also some fatigue which in fact comes and goes,
Helpful - 0
Avatar universal
I am sorry to hear you are having many of the same issues... So you are dealing with both brain fog, fatigue and excessive thirst? I have not met anyone yet who is dealing with all three of these together so I am curious if we are having the same issue.

Thanks!

Mike
Helpful - 0
535822 tn?1443976780
I am battling similar but mine comes and goes, and it may have been a virus that was going round here .I have started to take b12 and that's given me more energy,I know I am low on D which I do not understand as I am outside a lot , but they tested it and said it was lower than it should be .I know what you mean about mornings ...I hate them and do feel better by miday ,The other thing I have to do is ask for a heavy metal toxicity test as in CA we are bombarded by Chem trails ..and aerial spraying of toxins
Helpful - 0
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