Autoimmune urticaria anyone?

[jbaum27]

Looking to make friends with others who have autoimmune urticaria and share stories, symptoms, food for thought, etc. Anyone game?

[Faith615]

I would also like add I feel amazing in the sun but suicidle when there is humidity.  The cold is soothing but if I step into heat it's horrible. Everything from clothing to my glasses on my face causes a breakout. The face is a brand new issue that I never had. I am coverec in tattoo an ironicly never had a hive in s the area of one during getting then or after. Needles from ftom the dr are not a problem either nor is getting a massage. But brush my skin the wrong way and it's game on!

[Faith615]

Finding this post is bitter sweet. It drives me mad that there are do many of out there suffering with hives and doctors still cannot get it right! Reading all of your stories (or most) makes me feel less like the only one. My friends think im nuts when I won't go out because I itch and my mother tonight it was all im my head until i finally stood practically naked in front of her during an outbreak. Needless to say she now believes me.

I am a 40 year old woman and My first outbreak was in 2005 and I saw a dermatologist who told me I was allergic to myself and gave me meds to take before bed. No help but then shortly went away. They came very rare and randomly after that. Then a little more often but never stayed around that long. This went on for a handful of years.

About 2 years ago I finally decided to see a GI about bloating issues that I got tired of trying to fight it on my own. He diagnosed me with hashimotos. He checked my blood a few more times and when my levels were the same back to back he then said I had Graves' disease.

I then saw an Endo for months who was treating me for hyperthyroidism as a symptom of the graves. My hives started to come more frequently. I cannot recall if it was before or after starting methimazole but either way they were in full force and the endo said it was not related to my thyroid or graves. I went on to see an allergist who only found an allergy to grass. He then diagnosed me with another auto immune disease called dermatographism uticaria. Gave me a shot which did nothing and told me to take 1 xantac and 1 zyrtek together every morning. The itching was not as bad and my skin would not raise but I still continue up get the red spots from just about anything. Even taking off a pair of pants. If they rub against my legs on the way off it looks like scratches.

Since the end of the summer of 2013 I i have still been taking .05 methimazole, Zantac and zyrtek each morning. (I also tske 20mg adderal XR)

After years of substance abuse when I decided to get healthy I quit smoking Amongst everything else and all of this stuff pops up. The offers of pill after pill was a huge turn off which is why I have been just "dealing". About 6-8 weeks ago after a year and a half of daily itchness and breakouts 3-4 times a week they are now daily. All day long! I cut mens hair so obviously at work im at my worst. I am 2 weeks into gluten free diet which has seemed to help my bloating (which not 1 GI helped with) but the hives seem to be worse since removing gluten. Also last blood results about 3 weeks ago show my levels were no longer hyper but now hypo. Could this mean im back to hashimotos where I originally started and that's causing the severe flare up?

Im going to see a Holistic/alternative Dr. tomorrow in hopes of treating the root of the problem since clearly there is no relief for the symptoms. Im convinced it's all a result of sn y healthy gut ftom pain pill abuse (on a list of other things) so I refuse to continue taking pills.

Has anyone had success with cleaning and or diet change?

(Sorry for any typos im currently on a bumpy bus)

[Robertta]

Hi,

for me Zyrtec/Xyzal & Singulair doesn't do any help any more, no side effects either.
I just don't take those meds anymore, because i don't like to poison my body with chemicals.

Now if i have this itchy skin syndrome, i just try to ignore it. Nights might be bad, but if its gets really really bad burning & itching, then i take Atarax, it makes me so tired that i'm able to sleep. I dont know if it helps with this condition at all, but i just need to get sleep also then when i have this Chronic Autoimmune Urticaria.

Spring/Summer and Sun helps always.

All the best!

[cslinkard]

Did your heart race or opposite feel super tired taking zyrtec and singulair? I am nervous taking alot of meds but nothing is helping

[catlover0329]

I am on my second horrible hive attack in two years and this one is the worst ever. I think I triggered it when I started eating fermented vegetables and taking probiotics to get rid of candida overgrowth. I ate no sugar or carbs for over a month. I have Hashiomots and autoimmune urticaria. I've been to numerous specialists and allergists and the Mayo Clinic and they all tell me I may never know the cause and I just have to treat the symptoms. I got a steroid shot a week ago and when that didn't help I began on oral prednisone as well as zyrtec, hydroxyzine, and singulair. The H2 blocker that starts with an R did not work for me and I got hives from it. I have had hives all over my body for several weeks and they finally seem gone until an unknown trigger happens. I avoid all soy, gluten, dairy, and MSG and lately can't have fruit or nightshades Been eating nothing but organic homemade chicken soup for the past 2 months. Seeing  a naturopath tomorrow hoping to find out if a balance of my immune system, adrenals, and thyroid can help ease the symptoms.  I'm worried that once I get off the steroids I will have outbreak of hives again. Im very worried about weight gain from steroids and had RNY gastric bypass on 1/24/12 and have successfully lost 100 lb. But I won't be able to keep the weight off on steriods and hiving out at the gym. This site is a god send because it's good to know I'm not alone. There are a lot of people on here!

[LauraLSB]

It is working!  The testosterone is working great! My hives have gone down! My does may need to get larger but its working!