You state, I can't seem to get a straight answer as to what I can expect in terms of living?
The first thing you must do is to find a way to get detailed, accurate information about the cardiomyopathy and the alleged lung cancer. The nodules may not be cancer. In fact they could be an infection with an infectious organism that might also be capable of damaging your heart; for example, a fungus called Histoplasmosis. If a biopsy was performed by the pulmonologist, at the time he concluded that you had lung cancer, ask exactly what it showed and request that it be sent to Sloane Kettering. You may not need to have another bronchoscopy and biopsy. If a biopsy was done and deemed unsatisfactory for diagnosis, have it sent anyway.
If the biopsy was done and truly was non-diagnostic, you should not have another bronchoscopy with biopsy performed, at least not by the same pulmonary specialist. If another biopsy needs to be done, if Sloane Kettering declares the first to be non-diagnostic, you should probably have what is called an open biopsy. Both for this and for interpretation of the current x-ray and other evidence, you may want to ask for a second opinion from a pulmonary specialist, not professionally related to the first pulmonary specialist.
Then, if you still have confidence in the cardiologist, you must request an appointment for discussion of your prognosis and your options and if cardiac transplantation is an option. Most major university medical centers have a transplant group. You should make contact with that group, with or without your cardiologist's assistance, and find out if they would evaluate you to determine if you might be a candidate for a transplanted heart.
We believe what you say, that you are not afraid of dying but you should do whatever is necessary to stay alive. That means working with doctors who will give you straight answers and who will be your advocate in working your way through a medical system that could possibly save your life. This is no time to be concerned with hurting your current doctors' feelings.
Wow.........you are one of the only people that I have talked to that feel as I have felt.......I am having another biopsy done in early July and having it sent to sloankettering for their second opinion. I was already told that i would not be a candidate for a heart transplant because my lungs were so badly damaged. i would need both heart/lung and the survival rate was very grim.........I THANK YOU FROM THE BOTTOM OF MY HEART FOR ALL YOU HELP AND WISDOM.......I AM THE ONE WHO IS ASKING ALL THE QUESTIONS AND SOME OF THE DRS SEEM TO BE UPSET THAT I WONT JUST EXCEPT IT AND DIE....I DONT UNDERSTAND THEIR BEHAVIOR........GOD BLESS AND I WILL DO WHAT YOU SAID