Harvoni

[linda803]

I haven't been in here for awhile, my husband has esld and has for awhile, He has had a bleed out they put a tips into his liver, He has had HCV they burned it out with a probe , And we got good news today he will be starting Havoni next week,, It is a new pill that cures Hep C he will take it once a day for 12 weeks with no side effects. The liver doctor said he may not need a liver transplant after the treatment,, He has been on the transplant list for almost 4 years now, We are so grateful for this medication,,

[Magnum]

I've had a transplant and a TIPS procedure but still had to do 24 weeks. 12 weeks is for those who are basic Hep C with most likely no previous treatment. 24 weeks for those advanced and especially with Cirrhosis...

Magnum

[johnnyboy22]

Hi. Has your husband reached SVR?

[Shovel72]

Hi Linda, how is your husband doing so far? I am starting Harvoni w/in the next 2 weeks. Hope all is going well.

[Livelife777]

Good luck to your husband with Tx.
Keep us posted on how hes doing.
......Kim

[linda803]

he is on it for 12 weeks we received 28 pills today,, The  support team called me just to tell me if I have any questions to call them, that was nice, Will post how hes doing thanks everyone

[linda803]

wow your meld dropped by 10 points that's great,, my husbands is at 17 now, will see what happens thank agian

[flyinlynn]

Hi Linda

How many weeks is he going to be on treatment?

Glad you have the meds good luck

[crossroadsec]

Good  luck! The new treatments have so few side effects even for ESLD. My MELD dropped 10 points after treatment!
Karen

[linda803]

Hi we received the Harvoni today and the pain med is ok,, He has to take his lansoprazole with the Harvoni,, and take his calcium 4 hours before or after so everything else is ok,, but no antacids

[Livelife777]

Hi Linda.   Just an afterthought, but be sure to mention if your husband is on any pain therapy.  It is my understanding that some of these are contraindicated for treatment with Harvoni.
Best to you
.....Kim

[linda803]

Hi again thank you for the information,, I'm  going to call the liver doctor tomorrow. We live in Ontario Canada, we had went to the doctor last Thursday. She said she would put in a request to the drug company to see if we could get it free, My husbands meld is only 17 but because he is so sick, he has had everything bad that happens with this awful disease , Then on Friday she called and told us he was excepted, and would start next week, We were shocked because we never thought it would happen,, But now I am concerned about the 12 weeks, Because at this point he is esld, and not doing to well. I will let you know what the doctor says thanks again for the information

[flyinlynn]

On the prescribing information sheet from the link I sent there is a list of contraindicated medications. Also you could call my support path a service of Gilead the maker of Harvoni. They provide copayment support so your copay would only be 5 dollars per refill as well as having a pharmacist available for those types of questions.

http://www.mysupportpath.com

Providers and patients can call 1-855-7-MYPATH (1-855-769-7284) for assistance.

From the prescribing info sheet:

----------------DOSAGE AND ADMINISTRATION---------------
Recommended dosage: One tablet (90 mg of ledipasvir and 400 mg of sofosbuvir) taken orally once daily with or without food

Recommended treatment duration:
***Treatment-naïve with or without cirrhosis: 12 weeks
***Treatment-experienced without cirrhosis: 12 weeks
***Treatment-experienced with cirrhosis: 24 weeks

[linda803]

Hi I was thinking the same thing,, why 12 weeks,, My husband has had everything bad that comes with End stage liver,, He starts next week and we go see the liver doctor in a month, Maybe they take test to know if he should go for 24 weeks, I will find out for sure, I also give him hydromorphone  shots for pain, I will ask if that will interfere with the harvoni,, I will be back with answers thanks again

[flyinlynn]

Dang it

People with cirrhosis is 24 weeks per the prescribing information sheet so make sure they give him 24. I have Genotype 1a with cirrhosis diagnosed in 2008. I am a 3 time null responder to interferon based treatments. Currently I have just finished  day 19 of my 24 week treatment.

Here is a link to the Harvoni prescribing information
http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/harvoni/harvoni_pi.pdf

Good Luck
Lynn

[flyinlynn]

Hi Linda

The recommended treatment for peo

[Dee1956]

Hello! Nice to see you.  I am really happy for you and your husband.  So glad that he has been approved for Harvoni.  It really looks like it is helping many people.  I pray that it will help your husband.

Take Care
Dee