Aa
Aa
A
A
A
Close
Avatar universal

Help Crohns symptoms no diagnosis

On Apr 2, 2015 i started having severe abdominal pain and nausea pewking went to er blood work done nothing wrong sent for ultrasound on the 3rd gallbladder working 68% normal liver 19cm enlarged fatty liver! Sent me to family physician! Family physician sent me for Hida scan showed nothing ! Family Physician sent me to gastrointestinal!  Did endoscope normal just mild stomach irritation put me on an indigestion pill! Family doctor said nothings wrong go back to work youll feel better moving around this is 14 day not being able to even drink water without getting sick! At endoscope dehydrated! Got into see a surgeon he sent me for a ct scan ! Ct scan showed possible Crohns disease or colitis ! He sent me to a different gastrointestinal doctor ! Had a colonoscopy gastrointestinal yelled into waiting room to my parents said it was all in my head colonoscopy was normal! But sent me for a small bowel follow through anyways! And of course normal but missing a rib! Lol went to urgent care couldnt stand up from the pain ! At this point i developed new symptoms tongue ulcers,yeast in mouth, body aches, lost 50lbs, skin rash! Stomach pains and nauseafor several weeks then nausea and extremely tired and achy several weeks off and on since April ! Also knots on scalp with blisters! Doctor at Urgent care puy me on a yeast medicine that cleared up and she sent me to a rheumatologist she didnt know why i was sent there! Then referred to a allergy specialist also didnt know why i was sent there! So i endurrd the pain and nausea as best i could from August to September then i was in so much pain i went to the er doctor said sounds like you have Crohns along with leaky gut syndrome. Put me on a strict diet gluten free, dairy free, drinking greens, digestive enzyme probiotics,kefer, he said to heal my gut ! Also put on prednisone for inflammation!  Sharp pains started to go away ! A week after i was done with the prednisone all symptoms retuned ! Stayed dairy gluten free till november no change! Saw a new gastrointestinal said dont think its crohns maybe just gastritis put me on IB Guard! Been on it since november about 6 a day no relief! Went back to surgeon for a repeat Ultra sound no change ! All blood work normal! Except high levals of inflammation!  Blood in stool as well cracks in skin near rectum never heals! Tongue ulcers always there perfect mouth hygene not sexually active! Please Help ! I feel like my body is killing me from the inside! :,(
5 Responses
Sort by: Helpful Oldest Newest
Avatar universal
when i said many eras of 100% vegan i missed typing RAW before vegan as ive been completely vegan 22 years but not a raw foodist except in spurts
Helpful - 0
Avatar universal
one thing ive overlooked for years was salt . i changed diets many times , many era's of 100% vegan for 6 to 12 months at a time . many fasts up to 30 days . been vegan 22 years on whole food diet with zero proccessed junk . ive ate so well compared to others for so long i always said i dont have to worry about salt . but after reading deeper into it im finding opinions that are seriously against salt , and even governmental studies saying its a cause of stomach cancer . and for anybody eating processed theyre getting all kinds of sodium in blood without knowing it . it made me completely quit salt to start the year , and ever since ive developed a light rash on most of body as if the built up salts being washed out
Helpful - 0
Avatar universal
Do your homework! Research like never before and keep a journal of food, reactions, meds you take and when and how they effect you. Even track day to day like went to work, church or school or that you missed. Get your medical records and go over them so that you know what they say and get smart about everything that's going on and what the doctor say so that you can look that information up for yourself and not just be waiting for the doctor's cuz sometimes they do get it wrong it's best for you to be well read when it comes to your body. I went thru so many docs as a kid b4 git diagnosed. Keeping a journal can help Dr's kjow also what's really going on and you don't have to remember all on the spot.
Helpful - 0
Avatar universal
ive had gi tract issues several years and found L GLUTIMINE to help . heres a link to folk discussin it at amazon . the NOW brands one i use too : http://www.amazon.com/review/R4DE9QPYZQW1T/ref=cm_cr_dp_cmt?ie=UTF8&ASIN=B0013OXEKK&channel=detail-glance&nodeID=3760901&store=hpc#wasThisHelpful
Helpful - 0
Avatar universal
I forgot to mention i burp constantly,gave up red meat 4 years ago and gave up soda 2 years ago!
Helpful - 0
Have an Answer?

You are reading content posted in the Crohn's Disease / Ulcerative Colitis Community

Top Digestive Answerers
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Learn which OTC medications can help relieve your digestive troubles.
Is a gluten-free diet right for you?
Discover common causes of and remedies for heartburn.
This common yet mysterious bowel condition plagues millions of Americans
Don't get burned again. Banish nighttime heartburn with these quick tips
Get answers to your top questions about this pervasive digestive problem