That is CRAZY! I just saw your post after I was reading all of the rest and responded to one person with the SAME THING! That is what I was finally diagnosed as having after years of suffering! Please guys...this is a serious disease especially if left untreated! Demand that they test for the gene and do the necessary MRI's to confirm along with testing your CRP levels as well as elevated protein, uveitis or iritis, high ocular pressure, inflammation in the sacroiliac joints, etc. I can provide some other clues as well if interested. Most of your symptoms listed on this blog fits the criteria. It can be accompanied with a gastro disease like Crohns or psoriasis.
I just read your post and I strongly urge that you be tested for HLA B27 which is a gene that is linked to AS or Ankylosing Spondylitis. This is an autoimmune disease that effects your spine and organs. It is essential that you are tested immediately by a rheumy! It usually starts with inflammation in your sacroiliac joints but in women it can start in your neck and work it's way down which will throw most doctors off! It is treated with prednisone short term for flare ups and most importantly TNF inhibitors like Embrel, Remicaid and Humira. This is given in injections one or twice a month. It will help with the inflammation. I have a lot of questions for you and will help you and your doctor nail down your illness! Let me know and I will give you my personal contact info.
I've been having very similar issues and decided to take agressive action. Started a blog to track my healing, in case anyone might find something helpful from my journey.
Cheers & Good Luck to All!
https://liscencetoheal.wordpress.com/2015/08/11/candida-parasite-cleanse/
8 years on and this thread is still going.
I'm in the same boat as many people who have posted here. My conditions have been persisting for 12 months and gradully worsening. Twitches (all over), joint cracking (all over), fatigue, tinnitus.
After 12 months of putting my faith in GPs, blood tests, scans and various alternative treatments, I've had I've lost my patience.
If anyone on this forum has had success with their treatments it would be very helpful to share your experiences.
I KNOW THIS POST WAS FROM A WHILE AGO BUT LYME DISEASE HAS SYMPTOMS SUCH AS THE ORIGINAL POSTER DESCRIBED. A LOT OF TIMES IT IS MISDIAGNOSED.
My daughter had all of your systems after 20 years going to several Docter.
They found Ankylosing Spondylitis. Look it up and if you feel those systems have a HLA-B27 gene test.
Good luck