No one seems to know what I have.
It first started at night when I was tired. Began with auditory hallucinations, then visual, then olfactory, then gustatory, then tactile, then dizziness, then motor symptoms.
When gustatory started up, olfactory began again too, as though they were linked somehow...
My "hallucinations" that don't seem real at all are of repeating my senses. It depends on the frequency and intensity. If I smell something strong, it will repeat later as an olfactory one. If I hear something for a long time over and over, it will repeat over and over, but doesn't sound real. Just indescribable. And the visual images repeat the same things I've seen. Everything is worse when I'm tired.
During the day I see colored lights such as green, blue, and purple. I lately have seen what look like black dots moving through my vision similar to flies.
The motor symptoms again happen when I'm tired and my eyes move up and body around the chest area shakes. This all lasts for 1 or 2 seconds at most. One time I had an image and eye movement at the exact same time.
I have seen to find a pattern with it all. It seems to go from one thing and at first be intense, then go somewhere else and leaves it common. For ex: began with auditory, loud inside my head such as dog bark, setting a cup on table, garbled voice, then when visual began, auditory just stayed common and visual was really worse at first, and so on.
I've had 4 EEGs including a 5 day one, an MRI, a sleep test (all normal).
Drug interactions: Antipsychotics that make you sedated make my symptoms worse. However, non-sedating drugs like risperdal don't make it worse, but don't make it better either.
Strange thing: SSRIs Celexa and Lexapro made it far worse.
Thing that made it better: combination of Depakote and Ativan.
5 psychiatrists say no schizophrenia, 3 neurologists say either sleep disorder, depression, or somatoform disorder.
I am in deep **** because it keeps getting worse and interferes with my life greatly. When it first began it only happened when I was tired and when there was no stimulus present (eyes closed and silence). Now as it got worse it gradually became constant. No wonder why an EEG couldn't detect it.
Anyway, now my last neuro said goodbye and now I have to hunt down another psychiatrist or neuro? and another sleep test is on the way but wont be for a few months.
I'm very desparate and have lots of goals. I don't want to end up in a mental institution. I am a 20 year old male and it has been going on and getting worse for 5 years now. PLEASE HELP ME. If it is truly neurological, how or who can I go to to get seizure medicine help. Them seem to rely on an EEG only!