I gotta reason

[triggertime]

I gotta reason to be "on the down side". I used to post in the Hep C forum here but I am SVR now. Its great to be healthy and workin and takin care of business. Livin life to the best I can.
However, I am watchin my son die. He was born with cystic fibrosis 22 years ago. Its been a long HARD road for him and his parents too. He is being treated for lung transplant but it looks like he wont see it happen. Today at his routine CF clinnic appointment his PFT's were at 12. The lowest he has ever been. His weight is up to 90lbs. He's only got 29 more lbs to go to be the weight necessary before a lung transplant would even remotely be successful.  
I have been watchin my son die for 22 years. I dont thik he will see this fall.

Yeah! I gotta reason

[triggertime]

Thanx so much. Its so very hard watchin him deteriorate. He's goin down pretty fast now. I listened to him fightin for every breath last night. He is so used to coughing that he does it in his sleep without even waking.
He has been a fighter his entire life. He does not quit. He has battled CF contiuously since his first breath. A couple of years ago when I was treating for hep C and was very depressed he asked me what was wrong. I told him I was just sick of dealing with my disease. He told me, "Dad, I deal with disease every day.Get over it"!  His words that day gave me strengh to carry on and complete my treatment. Now I have no words for him to strenghten his spirit. I feel so helpless watchin my son die. My heart is slowly and agonizingly breaking.

[mammo]

Yes, you do have a reason and my heat aches for you.  I watch my son slowly die, and there is no greater loss. My thoughts and prayers go out to your son, you and your family.  I am so sorry........