Im a 27 year old male from Sweden who have been sick for perhaps all my life, or since i was very young.
I have been going to the doctors for almost 10 years and im still undiagnosed, pretty much all of my tests have been normal.
I recently found this forum and decided to share my situation.
I divide my symptoms into 3 sections:
Appearance - I look ill, pale and sick. My skin color changes very easily depending on what type of lighting there is. If i for example go outside an autumn/winter day my face is extremely grayish/white.
My eyes are very tired/staring looking with eyelids hanging and dark rings.
I have never seen anyone else that looks like this, perhaps only a few people that look similar.
Brain - It feels like my brain and thinking is blocked. I have hard time learning new things because information doesn't stay, in conversations i often forget what im going to say, concentration problems, nervousness, easily irritated
Body/The Rest - I have a bad body odor and my hair is dry and lifeless.
Fatigue, no matter how much i sleep i feel tired. Its not that i have to sleep but always tired and no energy.
I don't however have any pain whatsoever and i can move perfectly.
Now to the part of my story that is very remarkable:
In 2004 i took accutane against my accne. I took a regular cure for 7 months and then stopped.
A few months after i stopped i noticed that i looked much MUCH better then i have ever done before, skin color, eyes, hair, body odor, everything changed to normal for me.
Then i noticed that i could read articles, watch movies and understand pretty much everything. When i talked to people it was like i saw the words in front of me so i knew what i was going to say all the time. My brain started to work normally!
And i also felt healthy in my body for perhaps the first & only time in my life, the feeling was unreal, the fatigue and tiredness went away.
I now realized that accutane cured something in my body i didn't realize i had. Sure i had my suspicion that something could be wrong but i was so young and i didn't take my health seriously.
This healthy condition lasted for about 6 months and then when i noticed that i again looked pale i realized that i was going to be sick again.
For every week i felt worse & worse, the symptoms slowly came back again.
I have no idea what accutane cured in my body, i just know that i have a disease that is treatable.
I haven't heard about anyone that has had an similar experience, its always about the side effects or how accutane destroyed their life.
I probably have a rare disease because otherwise more people would report the same thing as me, if it for example was lyme disease or thyroid problems.
The only thing i have had low levels of since my first blood test is cortisol, but i have had an endocrine investigation and they didn't find anything.
If anyone have any ideas what accutane cured in my body or recognize the symptoms i would really appreciate your comments & thoughts!