There is not even an appropriate section under the "topic" section for me to put this under. Perhaps "mystery condition" could be added to the topic section?
I will try to give the Cliff Notes version of this, as my health problems have been going on for a long time. I am a 43 year old female. I have several autoimmune conditions, most of which doctors and/or naturopaths cannot nail down. Over the years, I have been to at least 30 doctors and so called specialists, and when they failed me, I turned to natural medicine. I have had more luck getting answer from those in the holistic field then anywhere else. Past diagnosies, via bloodwork, labs, biopsies, and various and sundry other tests have been Epstein Barr, Systemic Candida, parasites, Cytomegalovirus, heavy metal toxicity (proven via lab work), possible Lupus (long time ago), Lyme, which was questionable, Fibromyalgia, just to name a few things. I have also had a rare eye condition two times in the past - Papilledema with Pseudo Tumore Cerebre, hormonal issues (PCOS and most likely hypothyroidism).
My health problems started around 14 years ago. My main symptoms are Fibromyalgia pain all over, neck, back and muscles on ribs either go out or spasm all the time, eye sight getting worse, non-stop high pitch tone in ears for over two years (had this in the past, went away by itself, and a cause was never found for it), infertility, inability to lose weight, tired all the time with brain fog, pain in riight heel which doctor thinks is plantar fascitis, hair falls out in cycles, GERD, to name a few things. Please be patient as I had to give this bit of background and I shortened it quite a bit. The part that brings me to the dermatology section is thus. For about 8 or so years, I have started having spontaneous indentations appear on my face. They do no hurt, there does not seem to be anything that proceeds them, i.e. sores, rash, etc. The largest one is about two inches long and over my eyebrow. Many are thumbprint sized. If you look at my skin in the right light, you can see many smaller ones covering my face. You can see some pictures of them here, but even the pictures don't show the true detail of them:
I have been to several dermatologists, have had lab work done (elevated ANA's but normal sed rates), biopsies done, etc., an NO ONE can tell me for sure what is goiing on. Some guesses have been Scleraderma, but that came back negative on the bloodwork, and Lupus, which also came back negative on the bloodwork and biopsy. Lupus-like Syndrome was guessed at, but basicallly that is a term like Fibromyalgia, meaning they throw into a brood range of symptoms, but no real answers. I was even sent to supposed "specialists" out at UCLA. What a waste of time and emtions that was. They didn't even run further tests on me, looked at me and said, "golly gee, don't know what is wrong with you, but good luck!". No one can bother to pick up a phone and call around to ask opinions around the country, etc. So in the meantime, my face get more and more dents on them and no one has answers or cares enough to want to find answers. One doctor I was seeing even told me that I may be the first patient exhibiting signs of a new skin condition, and if that were true, you'd think he's want to be on the forefront of discovery. Hope, he washed his hands of me, just like everyone else. The overall guess with this has been, some kind of mixed connective tissue disorder, but they cannot loop me into any of the typical diagnosies that go along with such conditions, because I don't meet all the criteria for each.
At some point I am going to have to probably get some kind of filler injected into my face, which is the last thing I want to do. I just want answers and no one seems to care or is smart enough to find out what it is. I would love any insight on this. Unfortunately, I am bound by military insurance, and they are not the best doctors. I would not trust my face to them, but I cannot go anywhere else, money wise. Sigh. Just once I would love to find a doctor who truly cares about people, who will fight to find answers and not give up until they learned what was wrong with their patients. Out of the 30 or so doctors I have gone to over the years, for my various health problems, I haven't met one yet.
I apologize for any typos, but I am typing without my glasses.