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Scalp is covered in white waxy substance that my hair is stuck under

So I broke out with a fungal infection all over my body well my scalp was then infected and the whole ordeal was so weird and nothing I ever seen or heard of before it left me so confused . I can’t find anything online about it which is so frustrating cause I have no idea how to treat this . Anyway it started out with somewhat of an itchy scalp with these tiny little dots all over that felt gritty like sand and were mostly around the crown of my head . The 2 days later the dots were gone and I had these dark little hairs shooting straight up all over my scalp which looked so odd well later on that day I noticed my hair line looked like it was shaved off and within an hour it was even further back with more of my hair all from the front of my head missing and looking like it was shaved my hair appeared thin all over like my hair was falling out . I then for some reason decided to take tweezers and pull at the little hairs shooting out of my scalp and what I never was expecting or thought even possible was to pull a full stand of my bright red dyed hair from my scalp !! I started pulling more and more and thick long tuffs of hair were gliding out from my scalp with hardly any effort and I started pulling the hair from my hairline that vanished earlier and when I pulled on them the hair was back again and I had my hairline back and my thin hair was back to being thick but it wouldn’t stay and my hairline was back to missing and looking like it was shaved . So I pulled at the little stubs again to get my hair back this time filming it so I could show anyone because it was so insane I couldn’t believe what was happening. All night I sat in front of the mirror playing tug of war with my hair scared that I wouldn’t be able to keep my hair permanently. The next day after passing out from doing that all night I instantly ran to the mirror and saw all the missing hair from my crown and went to pull it back out but this time there was some resistance and wasn’t gliding out with ease as the night before . Later on that day I could no longer pull any of my hair out and it was like a normal scalp if I pulled there was pain and pulling any harder would rip the hair from the root . I was devastated I was now stuck with bald patches along my entire hairline in the front of my head one patch going back pretty far with no way to cover it up and my right ear completely exposed with no hair to cover my ear . Within a couple of days I noticed my scalp looked really white and felt almost waxy . I decided to wash my hair and use my husbands tar shampoo. When I got out of the shower and dried my hair I could really see how white my scalp was and the weird film it had over it . It literally felt like candle wax I then pulled on the little stubs of hair coming from the missing patched and with some pulling my hair came out I was freaking out again I started pulling more and more hair came out it was now like it was trapped under this sticky feeling substance. So now I realized my scalp was encased In this thick white waxy sticky film and that a lot of my hair got trapped underneath it . There are even some baby hairs that are coming from my face more than my scalp cause it’s skin and I could actually see the fine hairs trapped under my skin but with some pulling can pull them out . Which makes this weird substance on my head so weird cause it’s obviously thick enough to completely cover tuffs of hair without making them visible but thin enough you can’t see it and it looks just like your normal scalp and skin so I’m extremely baffled. Also every time I pull the hair out of the sticky substance it ends up disappearing again . I’ve been showering a lot and using the tar shampoo and also purchased different fungal shampoos and every time I do the scalp becomes less sticky and now it’s very dry with little flakes of dandruff but barely that much and the hair is still sticking underneath. I was hoping if I got it super dryed out it would start to flake and release the hair but it hasn’t worked and now that it’s dryer it’s getting harder to get the hair out . I am so confused I have no idea what I’m dealing with  or even how to treat it I’m scared I’ll never get my hair back and have bald spots all over and thin hair . I’m even starting to get big bumps now from it becoming infected because of the hair being trapped because these are big wads of hair not one little strand . Around my hair line it looks like I have huge thick veins running along my head when it’s actually hair you can actually rub my scalp and feel large bumps and can feel all the hair underneath it’s so weird . My family is so freaked out they can’t believe what’s going on with me we all tried looking endlessly online and can’t find any help I’m getting so tired of this and just hope I can cure this I also noticed the roots of my hairs are all white now like this fungus that’s all over my scalp is growing up the shaft of the hair now . I hope I can get some answers about this and some serious help . Thank you
And just to clarify there are no scales with this it’s completely one piece and smooth it looks like my scalp but in certain lighting you can see whatever this is on top of my scalp and can tell it’s not my actual scalp but a weird film covering it .
37 Responses
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Avatar universal
Morgellons and u have morgellons and u have it.. And u and u and yep u too. It gets better. Read and listen. Follow. Leave it alone. It acts alive if u mess with it
Helpful - 9
6 Comments
This…I am starting to believe this! How long do I not mess with it before it gets better? I’m actually so over all of it that I am ready to not mess with it if that makes sense? The more I pull the worse it gets…so like…what if I stop pulling and picking haha.
I think the more you mess with this, the more of this film it will create. Just my opinion but I think it feels threatened and creates the"film". This could be possibly like say a paste it makes out of our skin and it's"saliva"? Or I believe it may be able to create keratin like we do. That would help it practically disappear or mix with or skin and scalp.
I haven't found anything to get rid of it but to me it gets sticky after a bit. That's how it sticks to our scalp. I find that Pond's cold cream works at that point.
I had used sulphur shampoo but it seems to dry out the skin. But I think it helped them because it seemed to make a really really tough shell they use for armor.
Yes, I’ve noticed the same thing myself. Any petroleum based product seems to be used against me. Oils, Vaseline etc form a coating like… fried chicken is the only way I can describe it. It’s as if it’s not soaking in, but adding a very uncomfortable layer to the film. To others it looks like it’s soaked in though, which is one of the most frustrating things about this. No one believes it exists because they can’t see it. Well, I can’t see if a person has a bad liver either but that doesn’t mean they’re imagining the symptoms they’re experiencing.
Anyone see any improvements with aloe Vera
I think you have white piedra on scalp and sounds like a yeast infection on skin
The film is hair, VERY VERY fine hair (like cilia) you can see it though. I y is from an extremely tight overgrowth of hair which seems to have quite literally become my outer layer of skin, check, feel exam your scalp, it will probably be “waxy,” remember as soon as you remove/shave away a piece it will move bind in others. This can be terrifying, ***@****
Let’s talk about it

I have most of the answers to the how/what of the matter, fixing it has been horrendous, every time I think I’ve got it figured out there is some other hell attached to it, the “hell” makes sense afterwards. If this seems psychological it is because certainly started to be highly upsetting/anxiety producing, it’s not psychosis
though sometimes I wish it was…
Avatar universal
So Im 27 F , & I have been dealing with this problem for almost a year. I actually went through an entire pregnancy while it progressively got worse.. my doctor used to pull me aside to ask if I was using drugs while pregnant, and I had never been so embarrassed and mortified. But I couldn’t blame her for asking, I looked awful! Waxy skin from head to toe that only seemed to get thicker after every shower. Red ulcerated lesions covered my arms, legs, and even my belly.  Peroxide, apple vinegar, tea tree oil.. I tried them all!

And then my son was born and immediately we noticed that he had some white patches in his mouth. Asking the nurse of it, she says it was oral thrush (yeast infection of the mouth.)

I went home and thought nothing of it until a couple months later, we bought a humidifier to help the baby breathe.  After a few days,  my son’s whole body began to break out in red bumps and sticky skin. My own rash got even worse to where I looked like I had gotten extremely sunburnt everywhere.  my boyfriend wrote it off as regular allergies, but I knew better. I began searching my home for whatever my sons skin was reacting to, and then I discovered mold scattered around here and there.

Immediately we all went to the doctors and I asked if it was possible that both our rashes were related. TMI, but He asked me if tended to have frequent yeast infections. Which I had had several through out my pregnancy..

He said that with pregnancy, my immune system was compromised, thus making me prone to any infections, especially fungal. And with mold in my home, it would’ve only amplified my infection by causing a yeast overgrowth covering my entire body. My son being born with yeast, as well as breastfeeding with constant skin contact,  when we used that humidifier, it only applied our infections by creating moisture in the air. Systemic candidiasis.

I was given 1 dose of oral fluconozole. I bought a couple boxes of “Monistat: Vaginal Yeast Infection cream” and applied it after bathing to both of our entire bodies. His son cleared up in just hours. My own was a bit tougher to crack, so I also began taking daily AZO Yeast Plus tablets. After a week, my skin has calmed down tremendously. My hair looks slightly fuller, and still using apple cider in the shower, I now can feel the thick coating falling off my skin when I rinse. I’m almost hopeful that in a couple weeks, I might be my old self again.

Just thinking how most of us are women, and Yeast is far more common with us then men. Having fungus in your home, could very well make a fungal infection more severe. Hope this helps someone!!  
Helpful - 7
1 Comments
I've been experiencing scalp and body itching with most of the same symptoms. I keep my hair short and still have a hard time combing out tangles that never existed until sometime near the end of 2020. It started with a case of athlete's foot symptoms that I struggled to get rid of since 2018 or so. Within a few months or so I started getting sticky patches of dark colored wax spots that would stick to my feet. and inner soles of shoes. It didn't hurt but wasn't sure what it was exactly. Had a raised crusty area in the scalp near forehead that started getting short hairs. My dog, come to find out, had itchy bald patches with strange black course corkscrew like hairs coming out. I didn't know what to think and husband told me they were part of some plant debris outside. My cat had it too along with a bald patch on his neck that almost got infected. I couldn't afford 2 new vet bills at the time so tried a few different shampoos,one for cats and one for dogs, and mashed it into their scalps using a silicone brush. Sulphur seems to work well for this along with an acid that can take the top layers of dead skin cells off. 3-4 times a week, I bathed them at first. Husband argued that it was mange and not a fungal infection. The symptoms are so similar, even the vet couldn't tell but put them on antiparasite meds. Woods lamp light test couldn't see enough  to make a call, I guess. The shampoos were working, she said . I started using the antiparasitic/antifungal dog shampoo by Veterinary Formula. Salicylic acid, sulphur and coal tar together helped the itching a lot, especially when using my own silicone scalp brush. Dries my hair out though.Brushing or combing your hair out before washing is helpful as well.  I do it over the bathtub to prevent dreading anything and disinfect areas where hair has been in contact Mine got so bad that my ears, nose and eyelashes were also effected.  I used Tiger Balm with a q-tip lightly above lash line to soothe and kills pathogens. Worked great.
After a lot of trial and error solutions, Borax is a must have for laundry and carpet steam cleaning. At least half a cup in either with hot water/highest heat dry, soak mode cycle for 20 min+ in wash.This and vinegar work better than anything on fungi or molds. Used it to clean the strange cobweb things off the walls and ceilings too. Colloidal silver and probiotics for internal parasites and immune health. Silver works better than any of these antifungal meds but be sure to choose a quality product like Sovereign Silver . I spray it on my scalp before applying tea tree and castor or coconut  as carriers for my dry hair. meningitis.  Silver cI can't use much silver on my dog because it interfere with his thyroid medication.
Avatar universal
Sounds similar to my condition.  Fly strike from large black fly, loud buzzing noise.  Dealing w this and cannot get help from Dr’s.  Would not even known this fly was in my hair if not found next day in my towel, after washing my hair.  Dealing w this on my own, no help from physician’s. Even ER would not check my scalp, stayed across the room and this is unbelievable.  
Helpful - 7
4 Comments
ER here helped me like I was delusional. That it was all in my head
I found out that my dermatologist (2nd, sent there by the 1st to "get a second opinion") diagnosed me with:

1. Delusional parasitosis,
2.Somatoform disorder (psychosomatic)

Covered her bases alright. Imaginary, and if not, still subconsciously my own making. Wtf? And, a derm RN qualified to diagnose psych now? Silly.

Meanwhile, almost 2 years, and nothing. Just getting progressively worse!!
Just went to an internist today and she tried to give me something to slow my heartbeat! There's nothing wrong with my heart. They're really quick to give psych meds for something they can't see, but when my hair is practically glued to my scalp andy neck is swollen on one side - they can't see anything therefore they can't prescribe any treatment. This is the same doctor that originally gave me ivermectin for a few days. I told her I think it started to work so maybe we need to keep treating. So she gave me doxycycline which did nothing. I'm trying to get a referral to a parasitologist in Texas at Bayer School of Medicine, they have a parasitology wing. Apparently an internist can't do a referral for this type of doctor. Makes no sense to me
I've suffered now since 2016
Avatar universal
Hi, all.

This is the first place online I’ve found anything resembling what’s going on with me.

It started for my in my lady-bits area, with little folds of skin on the exterior that seemed to get “stitched” together with what I assumed at the time was hair. It progressed to flattening down the body hair and covering it in some places, or getting it all snarled up under the surface of something that felt like rubbery skin but wasn’t my skin. Sometimes hairs would grow through my skin trying to get out, though. Then it deformed and glued together some anatomy inside the labia and grew a rubbery film over my leg creases that trapped hair there.

Other places on my body would get a film-like patch that was textured oddly, or strands of kind of gummy film. It could be peeled off to relieve itching, which works for a while and then it would come back.

It finally got on my head, where it is the most reactive and aggressive. I’m bald in some spots now. My dermatologist thinks I’m pulling my own hair out. I’m not!  I get hair stuck under “skin” (?) on the back of my neck, my cheeks and forehead, the corners of my eyes, behind my ears, IN my ears… in some places I can nick a fingernail under and peel a hair out. In others (the big bald spots) the hair really seems to all be gone, and a lot of the follicles too.

How many of you are still dealing with this? I feel like we need some way of keeping in touch better so we can talk about what works/doesn’t and share information. Maybe a Facebook group, idk. What do you think?
Helpful - 6
1 Comments
I’m so sorry you are having to deal with this awful affliction.  I’m 4 years in and even though mine is seemingly reversing and coming out, it is excruciating and slow going.  No doctors have helped and all think I’m doing this to myself somehow.  You can private message your email on here if you want to talk more about it.
Avatar universal
Wish I could have answered you sooner.  The following video explains the infection and describes a protocol to alleviate and even cure the condition.  Listen carefully and take notes, nobody is going to help you fix this but yourself so be diligent.  "2017 The End of Electronic Harassment Symptoms" on youtube by channel "lookoutfacharlie."  
Helpful - 6
Avatar universal
Has anyone had any luck with this issue? You all have described everything I am going through for the past year and a half. It’s devastating. I’ve resorted to head wraps and am saving up for a high quality wig.

I was reading through this thread last night and it honestly put me in such a foul mood. To read that everyone else suffering with this weird issue received nothing but mockery from the medical community breaks my heart (it honestly feels like there is a spiritual aspect to it at times, like I’m under attack. I have definitely become Christian through out this whole ordeal). I stopped going to the doctor, because every time I went they didn’t even look at my scalp, they just prescribed me antidepressants and anti anxiety medication. I have felt suicidal with how much this mystery disease has disfigured me. I used to be beautiful and now I have this weird mullet hairdo. Anyways, I have found the salycilic acid works a bit, but high strength salycilic acid. The 2% or 3% found in shampoos and toners don’t do the job. I started buying, believe it or not, wort remover, it has 17% salycilic acid. I put coconut oil on my scalp (which is hard because my scalp is covered by the same kind of “net” you all talk about) I let the oil sit for 30 minutes, then I apply the wort remover and let it sit for 10. I will have this white sheet like papery substance fall from my scalp. I comb out what I can then I wash the rest off with warm water. Has it fixed my problem? No, but it is removing something. I’m sure it’s terrible for my hair, but at this point I don’t really care, I just want this crap off my scalp. I am willing to do anything honestly, I feel trapped and consumed by this mystery disease. Oh I also found the heat helps a bit, I will sometimes run a flat iron through my hair close to the root and it causes the wax to melt, but, per usual, it doesn’t get rid of it.
Helpful - 6
6 Comments
I discovered heat as well! I fire lighters let them get hot, then I press on scalp where I feel strong tension on my scalp. The burn actually feels good to me.
That can't be good. Right?
I don’t even feel the heat from lighters, water etc. I keep waiting for a burn but nothing so far. Sometimes when I’m not “webbed” tightly, I do feel the heat so I have to always be aware of that day’s progression.  But my feet feel strangely…magnetic, or staticky I’m not aiew how to describe it.
I’m not sure* how to describe it. Sorry about the typo.
Try soaking your scalp with eyewash, it's got boric acid. It's helping me allot..
Is the eye wash soak making the hair loosen?
Yes. First I soak my scalp with eyewash and let it dry a bit. Then run my fingers through in an upward direction..then sprinkle diatrametheus earth in at all angles and run the fingers through again. It's not an overnight cure but it seems to help me allot
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