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fordyce's condition/hpv problem (lip line - white bumps/redness)

hi everybody, this is my first time posting here, although i have read through different forums for a couple of months now and have found this site extremely helpful.

ok so here is my problem: about 4 or 5 months ago i contracted hpv. i wasnt completely sure i actually contracted it until a couple months ago when i noticed a wart in my genital area and had it frozen off. this whole ordeal, although it stressed me out a lot, went relatively smoothly.

however, the thing is, that about a month after i believe i contracted hpv, i noticed two small white dots on the border of my top lip. i assumed they were just white heads because i have had semi-frequent pimples on the borders of my lips before. So i put some tazorac on them to cure the problem. however all that happened was a real pimple showed up right next to the dots, got big, popped, and went away leaving a slight scar. while the pimple got big, the two dots seemed to fade away, but after the pimple went away the dots came back. so now i have these two white dots on the edge of my lip on top of a scar that is a little darker than the color of my lips.

I was worried for a while that they could be the beginnings of warts on my lips, but judging from the what i have read and from the fact that i did not engage in oral sex with my partner, i doubt this is the case. My dermatologist took a very brief look at them and said they are either clogged pores or sebaceous glands. Then when he saw the sebaceous glands actually on my lips (which i'm absolutely sure is fordyce's condition) he said they're probably just more sebaceous glands and there is nothing i can do about them.

however in this last month or so i have noticed many more of these small white dots appearing along the edges of my lips and a little above. i wasnt too worried at first but then they became more and more visible, and started having lots of redness around them, which is the worst part, making them even more visible. this is causing me to start to doubt that these dots are sebaceous glands.

they seem to be worse after i wash my face or if i stretch my lips a lot or anything like that, and sometimes appear very oily and shiny. i find at times the red area seems to sting/burn until i pat it down with a paper towel.

they seem to blend into my lip more and not be as visible when i drink LOTS of water, right after sleeping, or when i drink alcohol.

i apologize for the length of this post, but i thought it would be best to include as much information as possible in order to clear up any vagueness or over generalizations of conditions.

if anyone has experienced anything like this, please let me know what has worked/not worked for you, or your ideas on what it might be?

i am assuming that the timing of these bumps and the hpv are just coincidence, but if there is any reason they may be connected, i am open to hearing it.

again, i apologize for the length, but hopefully some of you can relate and we can help each other out. i wish good health to all of you, thanks.
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Avatar universal
I have the same white dots on my upper lip after having unprotected anal sex with a girl I just met. First I noticed small bumps on my penis and freaked out. Then about a week later I noticed tiny white bumps on my upper lip that have since gotten worse
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Avatar universal
Hello!! So I already commented my story but here again because I/my dermatologist have success in freezing my white spots off!! So my upperlip has been full of white spots for a year, I HAD a really huge big patch of clustered white spots in the middle which my dermatologist tried to freeze off twice but she was too gentle. Two weeks ago she tried a third time a bit longer and it really stung and my lip got huge but a crust formed and fell off after three days and then another crust formed and fell off after two more days. The skin is without a single white spots and really "new" and looking fantastic though a little darker than my lower lip because it's still healing I guess even though it's two weeks. (But It's really just a tiny bit darker no one eles notices) So now it looks a bit funny because the big patch in the middle is off and I have several little patches on the right and left side but the dermatologist will freeze them off too! I'm soooo happy!!

I also bought a wartec freeze off on the internet but I put it on too gentle and my dermatologist said the thing she has is a lot colder and more effective. But if you don't have an understanding dermatologist like me I think you can try it. The advice paper said "not to use it on lips etc." to not scar yourself, but I really don't think there is any danger. I got it frozen off with something a lot colder and it looked awfully swollen for two days and then crusted two times but now it looks really pretty. Just make sure to hold your breath and open the window because there are fumes!

I wish you all the best luck!!
Hugs

happybutterfly
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Avatar universal
I did my own biopsy. Took forever to dig in and find the bump. Its white. Really hard to grab. I just wanted to rip it out but couldnt get a good grip on it. It was sitting in the pore pretty deep. Not fluid. It didnt rupture or anything. It honestly looked like white pimple stuff when its hard or like a corn root. Not sure. Anyways. Its tiny. Ive had these for like 7 years and they havent changed much other than a few extras developed. My only sugestion would be to take care of the face skin above your lip. Whatever gets clogged in there pushes on the pores to your inner lip.
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Avatar universal
Also, they spots may be HPV, but if you need to know get them biopsed for confirmation.  I'd rather err on the safe side if I didn't know for sure, but it's better to know so you don't spread them to anyone...orally or to genitals.

I'm about to get mine biopsies, but I'm finding that if there is a bump somewhere it should not be (and you know it is not a pimple or something) it's most likely a HPV wart.

I found on what I have on my hands were warts in March, so now I see that all this stuff on my body is a wart (apparently my immune system is horrible because it didn't get rid of it - I'm HIV negative too :(

So, I know the things I thought were clogged pores on lips are REALLY warts (I had stupid oral sex in the past).
  
It's a tough pill to swallow, but I'll never spread this to another soul now that I know. I jus PRAY that  I didn't spread to anyone else in my ignorance, but we all know that's unlikely (I had one other sexual partner since getting them).

I'm losing so bad in life right now.


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3 Comments
Hey Mr. Dumb Decisions! I hope your are feeling better know? Don't be so harsh with yourself. You are a great person for taking much care to not spread it to anyone else! I also have problems in my mouth. I hope very much, that it is not hpv related. My doctor said it's not, but  you know doctors... So I also have a happy announcement: I had a second session today to freeze the spots off! And immediately some spots just went away! The doctor just froze the most visible ones, so it's just 4 out of many, but I'm really happy. I just ordered some compund w freeze off and I'm going to experiment on myself. Wish me luck! I have really high hopes! (and hope I won't disfigure myself or anything :-P)
Thank you for your kind works Happybutterfly.  I hope and pray everything is going well with you.


I'm doing better.  Ice calmed down a bit.

Very nice to help instead of insult me.  

Take care!
Hello Mr. Dumb Decisions!! Thank you! I posted my success story below! I wish you from the bottom of my heart that everything will go well for you! Best wishes!
Avatar universal
Hi! I have the same problem... First genital warts, then the fordyce spots and also muscle twitching and muscle pain. Have it for a year now. I tried condylox on my lips. Didn't change anything and it is dangerous to use so close to mucous membrane. My dermatologist tried to freeze it off my lips some weeks ago. I think it worked a very little bit (but got more on other parts on the lip) The next appointment is in two weeks and she'll try again. I'm so thankful at least one of all the doctors I saw in the last months is seriously trying to help me... Much love to you all! I'll let you know how I am!
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1 Comments
I'm positive I have HPV on my lips (which I didn't know until March).  I most likely spread them to one person I care about, and it's killed me...it's unbearable (worse than having it myself).

All this from a couple of bad decisions in the past because I was going through something mentally.  Oral sex is not safe at all. If you use your mouth like a trash bag, your body is going to start putting trash there.  

I'm nothing near a ***** but I have ruined myself, my life, someone I care about...all for something I didn't even enjoy.  Christ...this is only beginning because I've been having problems inside my mouth that are probably HPV related Cancer.

I'm literally f*cked up everything for nothing, and there's nothing that can help.

If you suspect you have something contagious, stay away from others. Let other people know to do the same and protect themselves, get the vaccine if they can, etc.

HPV is so much more serious than is let on. Cancer is the Devil and HPV can cause that.  

I'm so unbelievably sad about everything. I don't know how I'm going to make it...this time everything seems completely hopeless.
Avatar universal
has oregano been effective for any of you guys that have been trying now for some time??
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1 Comments
also how have anyone used hpv prescription medicated cream to treat the lip problem?
Avatar universal
I'm dealing with the same thing. Bumps popped up this summer around June and have slowly spread across my top lip. I asked my Obgyn but she automatically assumed it was hsv2. Problem is, they're painless and aren't growing. They hurt when I mess with them too much but other than that, no pain. I'm so scared its something serious like oral cancer or hpv. I smoke marijuana as well as vape. Trying oil of oregano with evoo soon. Im so self conscious its insane.
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1 Comments
has the oregano been effective?
Avatar universal
I had a similar situation where I made a massive mistake. I met a prostitute, her mouth from outside looked fine her hands looked fine her factual features looked fine she looked pretty clean and pretty. She was drinking alcohol and I couldn't see any cuts on her face or facial skin. I didn't have anal or vaginal sex just mutual masterbation.

She masterbated my penis and I fingered her and we engaged in deep kissing and I put my tongue into her mouth once. There were a few moments where we took brakes on the deep kissing. But I am not sure if inside her mouth there were any form of spots/cuts/or ulcers.

Few days later I saw tiny little yellow spots inside my cheeks and top lip. I don't know if am seeing them now and they were allready there or if I am panicking and looking closer at my lips and inside my mouth. I looked at the top of my lips and inside my cheeks and I see tiny little yellow dots which look exactly like Fordyce's Granules/spots.

I will be seeing my gum clinic end of this month, but according to the NHS websites HPV automatically clears up within two years as the immune system beats the virus. Whereas herpes is not curable. That is my concern if if I have herpes or HPV. I know my encounter was a low sexual activity but there is a very low chance of transmitting HPV or herpes through deep kissing.
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Avatar universal
Read this whole message if you have what's been described here or if you have any STD because you'll want to check back here periodically to hear my results in developing a cure for this and hear how others including myself have had disease dissembled wirelessly for free.

This could be a new strain of HPV or herpes which would need to be identified in order to be dissassembled via scalar technology as others have apparantly cured their herpes and HPV using scalar waves and which has greatly reduced if not completely cured a H pylori infection I've had for two and a half years and didn't eliminate with antibiotics but that I must wait two more months to be retested for as the antibodies stay in the blood for a bit after you've eliminated h pylori.
I contracted most likely what you all pretty much have described by sharing a vaporizer. I noticed this the day after I had one lil bump and then four hours later a patch and some spots on the lip line and then later what appeared to be two little ingrown white heads in the center of the lip.

Thinking this could be HPV or herpes or bothmade me suicidial for a little bit but I've calmed down as I've been thru too much ******** to not find a cure for this **** along with bringing numerous other vital discoveries to the fore front that I have to be very careful with.

I'm going to try 100% pure oregano on my lips.
I'll try aloe Vera as well.
I'm going to have a laboratory test done on the shedding of these spots or try and burst one open and test it this way. I'll look into PCR testing and so forth

This most likely is not Fordyce spots. possibly HPV or oral herpes possibly both. There's very little chance that I developed these spots randomly the day after sharing that vaporizer and I sure as hell didn't catch this from anyone sexually.

Only fools choose not to share their experiences as to how they healed themselves. That is vital for evolution.  And there's a ridiculous amount of suffering on our planet that makes me question a whole lot and thankfully I've finally got answers as to why and what to do about it for myself and anyone else who feels they deserve to know, and answers without blind faith.

Save this webpage address and check back once a month if you feel that's a good idea, if you don't then that's up to you. If you find out what this infection is or have anymore valuable information or experience in regards to this type of thing and its not already widely known to our species and/ or you or someone you know about comes up with a cure or remedy that's realistic then you better be sharing that or I won't be the only one hunting you down.

Best regards,
Robotic blue God

PS. I have experienced pain that is largely indescribable and beyond the scope of what the average person can relate to by the usage of entheogenic substances that inflicted mental insanity far beyond the pain of any regrets but that brought me to a very much beneficial overstanding of what has to be done for the evolution and sentient expansion. What I'm getting at is that I'm not joking at all here and I'm extremely serious about all of this. If reading this was so distasteful for you, then it will be foreseen that you learn from it C and that it is as beneficial as possible for you
and others.

Helpful - 0
1 Comments
have you had success with either aloe or the oregano oil??
Avatar universal
any updates on this thread? i noticed the same thing on the corners of my upper lip and i as well am hpv positive. i've been applying aloe vera on it. has anyone tried anything that works permanently?
Helpful - 0
1 Comments
did the aloe work at all, whats your status now?
Avatar universal
Same goes for me, contracted HPV 2 years ago, only noticed this until recent, been to the doctors twice since, first time received a prescription of 'Aciclovir' (tablets to clear herpes) which seemed to do nothing at all, now on a prescription of 'Daktarin' a gel for treating oral fungal infections aka Thrush. I've already started to expect no results from this either.

It's annoying to visit multiple doctors for them all to be clueless about what it is and have to google image search whilst I'm sat with them.

it's quite strange we all seem to say we have these white spot clusters on our top lip line, maybe a few scattered on bottom, should we all coincidentally assume we happen to have fordyce spots only located on the top lip as well as having HPV?

the last doctor I visited said she doesn't think these are fordyce spots despite comparing my lip to those shown on google images, I believe the only reason I was given thrush medicine was due to claiming I had a white coating on my tongue a few days earlier and admitted to smoking...

any solutions of what this could be?

PS. tried pure aloe vera plant gel fresh from the leaf, didn't notice any changes.
Helpful - 0
1 Comments
how long did you use the aloe for? how is your condition now?
Avatar universal
Where did you find the information for this remedy are there any updates or other treatments you discovered since this post? Thanks
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Avatar universal
hi ,
thanks for sharing, I am very keen to know if they are still gone. I am suffering from same and had no good solution so far , and I have tried manyyyyy..

Please let us know
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Avatar universal
Hey guys I have recently been infected with the same thing and started trying to treat it with a lot of natural remedies to no avail. Then yesterday I decided to try 3 doses of oil of oregano(12 drops) mixed with one table spoon of extra virgin olive oil. I applied it liberally to the infected area until the mixture was gone , takes about an hour . I did this twice yesterday; once in the morning and once at night . I woke up this morning and it was completely cleared up ! I'm going to continue treatment to insure it stays that way. I honestly wasn't going to post this but many of you have suffered from this far too long and I think this will work for you to !
Let me know if you have any questions or concerns.
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1 Comments
did you successfully clear it up with oregano oil?
Avatar universal
I know how you feel, I was 22 when having no sex for almost a year I slept with a guy that I met couple of weeks ago and I got herpes…
Then I got HPV from my ex-husband and when finally I felt in love with nice guy after giving him oral sex, few weeks later I discovered white bumps. Now I'm breaking up with him and I'm 35 and I'm in panic to even kiss my 3 years old son.
I hate my self too. I really know how you feel…
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1 Comments
How are you holding up hon?
Avatar universal
I have the same issue.i shaved and spread my hpv to my hands and I must have auto inoculated my mouth because you all are preaching to the choire when it comes to these things :( I am now worried about spreading it to my throat with eating or brushing my teeth or licking my lips.has anyone had this problem.
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Avatar universal
Solution I believe is both external & internal care. I have had those dots from simply kissing this girl I met. Exactly two weeks later I noticed a cluster of tiny white dots on the top my upper lip where lip meets skin. A week later noticed these very small dots inside my cheeks on both sides near the corners of my mouth.  At first thought it was herpes but is very similar to what all of you have experienced. I am now 1 month & 2 weeks in with these things which I feel I am treating successfully since it is reversing.  My solution has been to put aloe vera on the dots consistently almost every day. Another symptom I noticed is that my lips were also swollen(but barely onoticeable). I decided to eat aloe vera & the next day my lips were not swollen. The day after that I didn't have the time to cut & prepare the aloe to eat & I woke up the next day my lips were swollen again. So i believe this can only be cured both externally & internally at the same time. I eat aloe vera directly from the plant & mix it with honey to alleviate the bad taste. Like many of you have noticed the medical community will tell us its fordyce but its for sure an std. Aloe vera both externally directly on the spot & internally to detox is the way to go. Hope this helps. Cheers
Helpful - 0
1 Comments
how is your condition now, did the aloe end up working??
Avatar universal
So, it seems like people are tired of dealing with these suspicions of these worrisome white dots. I too, seek answers. I find that this topic has brought me a lot of anxiety and distress and now I am chronically seeking what may be wrong with me! I feel gross and am even contemplating suicide. I went to a nurse practitioner at the clinic I moved to. I let her know that I was worried about some discolored spots on the innermost corners of my mouth, most of the spots were small yet visible when stretched and "un-bordered" spots were primarily noticed on the top lip and a few individual/separated spots on the inner top part of my lip. Later I noticed a few on the bottom inner corner of my lips but those seemed to have a more noticeable outline. As I am constantly biting and licking my lips, chapping them all the time so I attributed the irregularities to Fordyce spots and even let that lull me into a false sense of awareness. My MediCal ***** because I am not legal and cannot afford good coverage. I am just so scared that I may have given this to someone else! My longtime ex boyfriend had a few penile papules that threw me off the first time I saw his penis but after I researched it I learned about the condition and it didn't worry me after because I knew he was faithful. Unfortunately, I was not and had risky sex with someone I still continue to see. I have given oral sex to a couple guys since then and now I have a boyfriend of nearly a year. A few guys have had penile papules in different places but those kind of bumps have looked the same. Like I mentioned before, I'm still seeing the guy I had cheated on my ex with even though I have a different boyfriend. I bring this up because I am questioning the contagiousness of this condition. All of the guys I've been oral with, their penises continue to look the same.. same spots in the same places. I constantly inspect them to see if there is a difference much like I've been stretching my lips to see if there are any new spots. Upon my continued investigation, I have noticed a small cluster on both sides of my mouth on the inner corner of the inside of my cheek. i don't know if this has to do with the seemingly mysterious virus but I also feel the same kind of graininess I get on the aforementioned area as well as on the roof of my mouth; I thought it might have to do with the rough oral sex that occurs occasionally. I HATE THIS!!!! I HATE THAT THESE DOCTORS ARE SO DISMISSIVE AND EAGER TO GET YOU OUT OF THE APPOINTMENT. I did some pretty shady things and I hate myself, I'm really depressed and feel uncomfortable, un-sexy, I feel anxiety having to tell these people I'm possibly DISEASED. Forget dying from the disease, I might get murdered for coming out saying that.
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Avatar universal
idk what to belive just hope there is a cure
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Avatar universal
I have the same! I can relate to all of you. It started to appear when I was about thirteen im eighteen now going on nineteen in june, idk what to do I was convinced for a long time that it was herpes. they aren't as visible when I drink, or I don't care and think about It as much. I believe it is fordyces. but ive tried doing everything to make it go away and it wont.. but it makes me feel a thousand times better to know im not the only one.i was scared I was.
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Avatar universal
Do you have any source for your first claim (that Dermatologists are taught to quickly diagnose as fordyce to alleviate anxiety)?
It feels strangely validating to read your comment which supports my belief, despite a not too happy concept. It's been two years for me and I am still browsing sites despite the condition stabilizing somehow...
Do connect with me via email if you can :)
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Avatar universal
you are all correct in that Fordyce is diagnosed by dermotalogists quickly , ten years from now it will worsen to the point of returning to dermatologist and find it is more likely to be hpv. sorry for the bad news but dermotologists are taught to make this diagnosis to males and females when first noticing symptoms/ appearances to alleviate anxiety and depression. there is no successful treatment for either so living with it is the only option so why cause distress and panic to the patient. my feeling is that it should all be diagnosed as hpv to avoid the spread of this virus further, one third of the population has hpv Fordyce is a fraud.
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Avatar universal
I went down on a girl and one day later I started getting tiny white spots on my lips upper and lower and on my upper it has spread slowly.  I have had the diagnosis of fordyce spots and guess what the spots have clustered on one spot of the upper lip it is relatively difficult to see but as one poster has already mentioned more noticable under certain light the white dots slowly have continued to spread.

It seems to be a super slow process; however, it is frustrating bc if you see a dermatologist it is almost a slam dunk they will diagnose as fordyce condition which based on my readings this post begin on I strongly disagree with that diagnosis.  This is something different may not even be hpv or cancer.  Who knows maybe something that is unknown.
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Avatar universal
Add me to the list. My story is the same, spots on the upper lip that look like Fordyce but aren't. I get a burning sensation from time to time and they always feel chapped and puffy. This first occurred about 10 years ago after physical contact with a shady character I met at a bar. I know it isn't Fordyce, I think it is viral in nature and contagious.  I'm convinced it is some kind of STD but I've been tested over and over again and results are always negative.

Has anybody out there got any new information? I've given up seeking a mate and am living a hermit-like existence for fear of giving this to someone else.
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