Fantastic to find this forum! My problem started in July on a particularly hot day - I remember my arms got burnt and my right upper arm hasn't stopped itching since! It's been driving me insane just like you all describe - have tried at least six different creams to no avail. It's worse in the evenings and often wakes me up during the night. BP sounds like exactly what it is. I have cervical root compression and arthritis and that may be the underlying cause, but it was probably triggered by the sunlight damaging the nerves. If Gabapentin helps, then I guess it's almost certainly nerve-related.
I put an ice pack on tonight after reading these posts and it's the only thing that's helped so far. I'm loathe to go to a dermatologist as it doesn't sound as if they can suggest much........I spoke to my neurologist about it last week and even she didn't believe me!
So it looks like these are some of the creams/remedies that have at least helped other sufferers a little bit:
Gabapentin and Fluocinonide
White Flower Oil
ice of course, to numb the nerves
add to your list:
avoiding direct sunlight on the arms. (That seems to be a trigger for me at least! )
would still love to find out the cause of this malady!
So I have read and read and researched and researched, as have all of you. So what now? Has anyone ever had a doctor that knew exactly what was going on? With so many sufferers why is there not someone, anyone, to help us? My story mimics all of yours combined. I can't continue to sit here without answers! I live in the Los Angeles area and will go see any doctor that lives within walking, running, driving or flying distance; if you get my drift! Does anyone have a recommendation? I am going to start with a neurologist, as I do believe if this is the brachioradial prutitis, I should start with my cervical spine area. Anyway, I so feel for all of you. Feel free to write, call, Fed.Ex. (!!!)anytime. Need some humor here... my name is Kathy. Email is: ***@**** or cell is: 661-714-2787 no Fed.Ex. # Thoughts are with all of you!
And I meant to say also, it's just not normal to go to a restaurant and have to ask for ice bags from the host, because my itching started and I knew the only thing to stop it was ice! Nice restaurant, daughter's birthday, all the family there; I looked nuts! I'm going to start saying I injured my arms and have to ice them at times because that sounds better than saying my arms itch!!! Anyone relate to that? ;)
Yes, also add to the list: avoid direct sunlight (and often, even just heat sets mine off)
To Mduck--so sorry to have to welcome you to this forum. It seems all of us have been through going to all kinds of doctors, dermatologists, AND neurologists and spent hundreds of dollars on all kinds of steroid creams, and still no "cure", just maybe some ideas for temporary relief. This is why I am wide awake and typing at 4:39 AM! :( It's truly miserable. Hang in there, and keep communicating...maybe with all of our resources and a heck of a lot of hope, we'll find a cure someday?! I think we are all willing, at least I would be willing to go to GREAT lengths and expense to find a cure, b/c this is a QUALITY OF LIFE issue. :( steamboattracey