Menieres Disease and possible help to relieve it!

[elizabethnwaters]

My friend has menieres disease.  and he has been diagnosed with Chronic Menieres.  It is becoming debilitating (sp).  It takes him hours to get over an attack.  I am curious if anyone knows anything about lipoflavinoids or any other supplements that will help with the ringing and dizziness.  I am worried about losing my friend to this disease.  It is taking over his life.  thanks so much

[Joy729]

There is a Dr. Hain in downtown Chicago who is very good.  If you google him you will find the address and more info on the disease..  Good luck!

[tessa1928]

I'm looking for a specialist in New Orleans not having much luck.  Seeing Dr. Arriaga now but he doesn't seem to be that good or care about the tinnitus pain, frustrating...still looking...

[Windblown101]

Hello,

I was diagnosed with Menieres a bit over 3 years ago. Suffered from near constant fluctuating Tinnitus, hearing loss in my right ear, completely debilitating attacks anywhere from 4 weeks to as little a 5 days apart that lasted several hours and left me drained.

I went on a low salt diet, tried Lypoflavanoids to no affect, then water pills, then steroid injections, nothing seemed to help. My condition just kept getting worse. In January of this year the Dr recommended I try a meniets device. I studied up on the device and in the process read a post from a fellow suffer who reported great success just holding his nose and attempting to blow out his nose - in effect, making his ears pop.  I decided to give the technique a try just for kicks before getting a tube put in my ear and paying over $3000 for the device.

I am super happy to report that at this point my Tinnitus is GONE - the attacks are GONE, the depression is GONE, and I'm back to being able to live a full and normal life. I've stopped taking the water pills and am easing up on my low salt diet. Over three months now without a single attack, no distraction from tinnitus and hearing is almost 100% in the affected ear.

I realize that everyone reacts differently to all the various treatments but this is my success story. I perform the blowing out while holding nose routine a few times a day using just enough pressure to feel my ears pop maybe a half dozen times each.  

I'm not a doctor and therefore am not recommending the procedure but I encourage anyone suffering from this to investigate this on their own, discuss with their doctor,  and decide if it's worth a shot. It changed my life.

[akrep]

another information.
I had gunshots without ear protectors 3 weeks before all these started.

[akrep]

I had dizziness for about 6-7 months 2 years ago.
Then I started having tinnitus after 1 year later .

I get dizzy when I get stressed and anxious.
My tinninus is on my left ear and its volume changes according to my mood.
I have no hearing loss or vertigo attachts.

I have been suffering from anxiety for many years. Indeed my worse dizziness 2 years ago was after a stressful and anxious time.
My tinnitus started that way too.




ENT doctor says this should be Meneire Disease.
Are my symptoms enough to say that it is Meneire Disease.
Could what I have be due to anxiety since it shows parallelism to my anxiety level?

thanks
i ozcelik

[juliaann59]

Does anyone know of a great Meniere's specialist in Chicago?

[onedizzylady]

I have just been diagnosed with Menieres Disease. The first line of treatment recommended by my doctor was a diuretic and low salt diet. Because I also have Addisons Disease I am not able to do this without risking severe hypotension and an adrenal crisis. Does anyone else have any experience with both Menieres and Addisons?
Thanks,
CAW

[VEF]

I was just diagnosed yesterday and appreciate all the sharing and the infrormation I have just read.  I hope to be able to contribute to this community.
VE

[gmdm]

My brother has Meniere's disease. He is starting to lose hearing in both of his ears. We are looking for a specialist in the New Orleans area.  If you know of one please let us know. He is so young to lose his hearing.

[Websdh]

I am looking for a good doctor that can treat my husbands Miniere's Disease.  He is having attacks every couple days, with dizziness so bad he can't walk, and bad nausea.  It takes a couple hours to get over it every time.  This is no life.

[SarahB74]

My mother has Meniere's disease and is looking for a specialist that may be able to help her in the areas of Wichita, Kansas or Kansas City, Kansas/Missouri. Any information someone can give! Thanks a lot.
Sarah butt
602-694-2890

[JDaughtry]

I have had Meniere's for too many years to remember. It got so bad I spent alot of time sick in bed. Tried everything, nothing worked. Was told to not smoke but I was too hard headed to listen, I have now been smoke free for years. After about 5 years I took the only way I thought would help me. I had my Vestibule nerve severed. This I believe is what prayer1 was speaking about. My Meniere's is in my left ear. I would not recomend it to everyone. It would have to be the last resort. They have to remove part of your skull on my left side over my ear and them severed the nerve. I think it would have been easier for someone that did what they were told. I was told they used fiberglass to cover the opening of the skull. I have no idea myself I feel they must have put the skull part back. Well it took a few years but it was OK. It has now been 14 years since I had it done but I am really glad I did. The only symtoms of Meniere's is the ringing in my ear. I have had that so long it hardley bothers me. I don't think many doctors would recommend it but it is great not having the attacks and the spinning, the throwing up and time in bed.

[Rox H]

My husband suffered from sound and pressure evoked dizziness, vertigo, imbalance, tinnutis (sp??), hearing his voice, heartbeat, eye movements, conductive hearing loss & nausea for over 20 years. We were told it was Meneire's and that there was no treatment or cure. We finally saw Dr. Carey at Johns Hopkins in Baltimore because we read that he has treatment for Meniere's. Dr. Carey diagnosed him with superior canal dehisence, a rather recently diaginosable condition and was able to cure him. It required inner-cranial surgery, but only 1 week after later his is well on his way to being cured. Dr. Carey performed the same tests that had been done repeatedly, but he knows what he is looking for!  Not only is he the greatest doctor we ever met, he is one of the kindest also. I am not a health professional, I just want to tell everyone who may have this condition about our experiences. http://www.hopkinsmedicine.org/otolaryngology/carey.html

[Nurseynurse714]

A physician colleague of mine had a friend with Meniere's. My colleague related that her friend's problem resolved with decreasing salt intake (???). Don't know if it will help, but anything's worth a try at this point I guess, huh? Good luck.

[prayer1]

I suffer all the symtoms of meniers disease but told I don't have that. I don't know what else it ould be. But I was told and looked up stuff on the web sites and found out this (sorry don't know the site) In the back of our necks on both sides we have balance stem,muscle or something like that and there's 2 on each side. Doc. can go in and clip only 1 from eah side. but first try to have your ears drained they can do that as well. My frien friend had that done and she is ok feeling normal I hope that all makes sense I wish I felt good as well

[Crop Duster]

My wife has had Meniere's for 15 years.  She went to bed one night and awoke completely deaf in her left ear and had lost her balance system.  I have taken her to Kansas City, Oklahoma City, New Orleans, Wichita Kansas and conversed wiith House of Ear, Foundation for the deaf and numerous other organizations and have researched the disease for 15 years.  There is no cure but if you can catch the disease in its beginning development, the hearing can be saved. If your friend has not lost his hearing yet and only suffers from dizziness and virtigo, I found a Dr. Shea in Memphis, Tenn. that has specialized in Meniere;s disease for most of his life.  He and his son have a clinic in German town a suburb on the East side of Memphis.  Both are excellent Doctors and know more about the disease than most all doctors put together.  He has trained hundreds of U.S. and foreign doctors in the treatment of the disease.  It was too late to treat my wife but if your friend can get to him soon enough Dr. Shea can help him retain his hearing.  Dr. Shea's phone number is 1-800-477-7432.  After all my reasearch, I would recommend him over any other doctor.  My wife is in bed at this time with an attack that has lasted longer than any before.  It took me 5 years to put a team of doctors together to help her and they have succeded in saving her right ear which is also infected.  If you want to talk to us you may call us at 985-878-0801 and ask for Bob.

[ts13]

i think this is what my dad used to battle,  sudafed would do wonders for him