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TRACHEAL MALAYSIA?

My son when he was born made a loud sqeaking noise when he drank his bottle. Actually he made the noise when he slept ,drank, ate and I was concerned so I insisted on a referral to an ENT. After the exam it was determined he had Tracheal Malaysia. He was 2 months old, and I was told he would grow out of this condition and the only reason for further treatment was if he was having trouble eating and drinking. It has gotten much better and he's 2 years old now, but he still sqeaks loudly when he sleeps. Has anyone else out there had any experience with this. It doesn't bother his sleeping nor does he have problems eating or drinking but I wonder if he will ever grow out of this condition completely.
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My son is almost four months I alsp took himtp tje clinic because I thought he may have croup or rsv. I was told to take him to his pediatrician. when I told his dr.he has been sounding raspy and cauhing and almost like a grunting noise she was calling it laringo malaysia but told me he needs a refferial to the ent which is like 3,-4 hours from our home.  he was two months at the time still no appointment yet.  I was also told he will grow out of it. He is getting worse thank god he has no problem eating. But he is deffenately striggeling. Most times I have to remove him from excitement he get really raspy and caughs so much. Poor lil man cant even play for tpo long.  I put him to sleep in am upright position amd on his belly. It hels so much.
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I understand completely. My son is 8 he is a big boy and to look at him he is totally normal, but he has severve GERD Tracheal Malacia and asthma. I have tried to make his principal teachers and even his school nurse understand his cough is chronic. There is nothing that we can do about it no matter how often I have to come get him from school because his cough. He is not faking and he can not control it. It hurts me to see him go through this and all I get is he will grow out of it, I am beginning to believe that I am mising something.  Good Luck.
Jessica, Aaron's Mom
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I wonder if anyone has had any proximity with someone suffering from tracheal stenosis particulary in the more elderly age group [not child or paediatrics but adult ].

The reason I post this is because I would like to track patients who sustained tracheal stenosis due to an earlier surgery or ICU experience wherein a Kendall curity endotracheal tube was used. This particular tube was reported to have been highly suspect of requiring excessive pressures to seal within the trachea and many were sold to hospitals . Unfortunetely the defective product cannot be easily tracked unless patients or their families come forward and discuss or disclose their problem.

I am willing to help piece the information together if anybody wants me to .
John
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1 Comments
I have a collapsing trachea after surgery I am 51 yrs old and trying to get answers and help.
Avatar universal
My 18 year old daughter has Tracheal malaysia...as a symptom of her genetic disorder. She also gets that awful seal bark, wheezing, air way obstruction, pneumonia and frequent respiratory infections.
We usually have a protocol when this starts happening..we give her a narcotic- vikodin or a coedine to relax her vocal cords and trachea.. we also have to put her on predisone- and sometimes antibiotics to prevent her getting pneumonia..we also put her on Flovent and singulair when she was little.(from lung specialist) usually this works great for her and she soon gets better.
However this past month she's been real sick and obstructive airways- and medicine isn't working- so lung specialist said it is time for her to be evaluated for her airways and a procedure to fix it. appointment is next week.
Things that cause a trigger for the swelling- spasming- obstruction, and coughing for my daughter is..exercise, laughing, perfume, cats, household cleaners, hot sunny days, colds and illnesses, and emotional distress.
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my son is 7yrs old and they didnt find out he had this til he was 2 and he still hasnt outgrown it. he also suffers frm asthma. he looks like a normal kid(hes a big boy) bt is really loud when he breathes and coughs a lot. ppl look at me and him like hes sick and just ignorant for not coverin his mouth bt he does it when he cant catch his breath. i wish there was more help and a support group for parents of kids wit this near me.
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Avatar universal
The malaysia children is very cute and tracheal in one or more information in the many apps.Thetamil languageis one of the popular language.TheTamil lettersusing the read,written and speak  is easy to language.more using the many places in tamil.
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