20 years ago, I had a small lump removed from the underside of my tongue toward the back - NOT the front. I lost a bit of feeling in the tongue tip but nothing bad.
Fast forward twenty years, I wake one day to a very sore tongue. It eventually centers in the the tip of my tongue, right below where I had lost feeling. It feels like I have a bubble in there. There is no visible lump and you can not see much more than a raised section when I flex my tongue tip. As I talk, that area gets very stiff. It then aches - like a Charlie horse. It Nearly freezes my tongue and it hurts! I have been to 3 ENT’s, my dentist, oral surgeon and even my GP. I have had tons of blood work done, as well as a CT scan. I did learn I have the MTHFT gene mutation and started taking methyfolate and other vitamins to help. Overall, though, no issues in my blood that would be related to this condition.
In June, I had a piece taken out to see what it was. The ENT said it was odd muscle growth but no cancer. They took it from the top of my tongue - opened it up and dug down. 6 stitches inside and 6 on top. Healed up fine and no issues. BUT, that “bubble” remains there; gets stiff when I talk and hurts. I don’t care about the bubble. It getting stiff and aching is what I can’t take.
I have been taking more b12 and other B vitamins. Also, magnesium as an idea it’s a tight muscle. I also tried a muscle relaxer. Not really helping.
I am at the point that talking hurts so bad I avoid it. It’s impacting my ability to work. Does anyone have any ideas where to turn? I am desperate. Thank you!