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Lost

Hi all,

I have written here before, but so far through 3.5 years of suffering i have not found even a slightest clue as to what seems to be the problem.

If you have time read this to see what initially caused the problem.
http://www.medhelp.org/posts/Undiagnosed-Symptoms/Very-Strange-Symptoms/show/1576753#post_7160825

If not long story short: Healthy-trip to Thailand-throat infection-3.5 years of pain and strange discharge.

Here is the deal today: I have constant burning pain in whatever soft tissue is below the jaw front and back of the neck, along with some tissue stiffness (it is like my neck soft tissue is somewhat limited in motion and tense). I also have constant clear mucus discharge (somewhat thick with white strings) This mucus is ongoing I either have to swallow it or spit it out.

Burning, now this is the worst part. If i were to describe it the pain is persistent in the same region, in ear canals (alone with clicking sound causing pain when breathing in and out).

What i noticed is that this mucus is definitely something that is alive (e.g. sometimes there is ton of it and sometimes less. If much mucus in clutters is released, the pain is somewhat relieved, but for 2-3 hours.

On top of that i have constant headache which i also think is somehow related to this mucus problems. Periodically the pain in ears, throat and soft tissues intensifies to the point that i feel like i am being eaten alive by this mucus inducing disease.

It has been 3.5 years and I hate every day of it. I also have muscle pain which reminds me of food poisoning type of pain.

I am really lost. Having gone through millions of doctors who have no idea what to make of this mucus, I am truly desperate.

So far I have spent around 25 000 dollars doing tests and check-ups. Doctors can not tell me anything about mucus, but they are basically disregarding me due to clear CBC tests.

Any ideas? I mean if I knew for sure there is no way to solve it, I would probably kill myself. It is that bad, seriously.

9 Responses
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Avatar universal
Yes I have and it was neg!
Helpful - 0
Avatar universal
Have you guys been tested for hsv 1 or 2 6 months after these infections began, I only ask because this is a common recurrent type of infection and the body handles it diffrently for everyone
Helpful - 0
Avatar universal
I argee.... I've been suffering for 6 months n no help wat so ever. All these docs Juss think I'm crazy.  
Helpful - 0
Avatar universal
Hey guys,

So far, I had no success finding it. It somehow changed from hyper salivation to strange looking mucus with white strings and my neck and gums burn, although the pain is more bearable these days. Still ***** to live this way.

I have not been able to find what is it, my assumption is that it is some kind of bacteria that is able to live in tissue and whatever mucus is in the body. I am sorry to admit, that the best diagnosis our medicine is able to provide is some sort of nervous disorder. Screw that, I can't breathe without pain in my ears and my left ear is annoying the hell out of me. My neck is stiff and it burns, and they call it nervous system.

Anyway, I have not been going to doctors lately since i found it to be a waste of time and money. Just waiting to see what happens, spending money on doctors and blood tests seems delusional at this point.
Helpful - 0
Avatar universal
In another post you mentioned your T-helpers are low. can you please share exactly what are your CD3, CD4 and CD8 results?
Helpful - 0
Avatar universal
Hey
How have you been doing ?
I find similar symptoms since a couple of months now,
Did they find what is it ?
Helpful - 0
Avatar universal
Thank you very much for your comment. I am no doctor, but I doubt that this is allergy or post nasal drip related.

From multiple tests i have taken, it looks like my immune system is knocked out for some reason and there is some type of infection dwelling in my body.
First of all, it has spread, it started with throat and it took about 5 months in 2010 to spread to ears, nose and neck, and lately it is bothering chest as well.

The mucus is something organic and it is rather strange looking, I have never seen anything remotely similar before, it is like gel with defined contours and so sticky that is possible to switch it between fingers in one piece.

It also has some strangely shaped white strings. Finally, my muscles hurt so much and the pain comes (as if i am intoxicated).

All in all i have the following elevated:

IgG EBV antibodies (11 times the limit)
IgG Helicobacter Pylori (antibodies 8 times the limit)

Mouth Swab shows Pseudomonas Aeruginosa.

Plus the pain is close to unbearable, it is like my soft tissues (gums and neck and lymph nodes are being eaten alive from within the tissue itself).
I know sounds stupid, but that is about the only way i can describe the pain. It is no sore throat for sure, and it is ridiculously painful.


Helpful - 0
Avatar universal
MEDICAL PROFESSIONAL
Hi, your symptoms could be due to a post nasal drip, which can cause a chronic irritation in the throat. This could be due to a sinus infection, a cold or a chronic allergy. It could be sinusitis, if it is accompanied by nasal stuffiness and facial pain or pressure. Post nasal drip could also be due to allergens. These are substances like pollen, dust, animal dander, certain foods, insect venoms and certain medications. Exposure to allergens causes a runny nose with a resultant post nasal drip where secretions from the nose go backward into the throat and irritate causing mucus secretion. Please discuss this with your doctor, if needed he may refer you to an allergist. In the meantime for relief from your symptoms you could do warm salt gargles and take OTC antihistamines. Regards.
Helpful - 0
Avatar universal
There is this strange cycle: While strange mucus is produced constantly, at times my saliva becomes thick and white (like dehydration) but i drink tons of pure water (non-carbonated), neck becomes stiff and tissues start to burn (as if there is a sunburn from the inside of neck tissues). The gums become sore, very sore to the point they feel like they are going to pop. This condition of extreme pain can go for 2-3 days and the the mucus starts discharging in thick clumpy masses. Clear glue like substance with white strings within. Then I get some relief, but the pain never stops it is there 24/7 like as if something is living off of me. I can not understand this cycle or triggers. But I can only assume that whatever food i get gives nutrients to whatever is eating me for the last 3+ years.

I am not consuming alcohol or soda or sugar or wheat. Basically I am on a very strict diet, lean meat and water. I tried beer once for my birthday and regret to this day. It is like putting gas into a fire.

I seriously do not understand what is going on. Did i find some new species in Thailand? Did some infection knock out my immune system completely?
Helpful - 0
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