hypermobile, mixed and classical (type III), 1 yr ago

[Jesse97]

Figured out what it was on my own and a geneticist at St. Louis University confirmed it ad the type(s) based on exam and symptoms/history.  Please read my question under (cervical injury EDS". It ask about instability of the neck (aka CCIS), but not necessarily w/ Chiari. I do have throat fullness/"hot" feeling there, headaches and blurred vision, ringing in ears, voice hoarse when moderately fatigues or just waking up for the first hour.

[selmaS]

Hi.....the best thing u can do is get a full check up by a dr that is knowledgeable with cervical instability due to EDS.....
Many chiari drs r well informed on this issue...they may suggest a soft cervical collar...and a invasive cervical traction test to get a dx.

May I ask, have u had a MRI of the brain and cervical spine?

"selma"

[ContradistinguishingSymptomaticKat]

if you have instability in the neck at c1 & c2, should i be very careful about my kneck? is there much to worry about? because i've had major pain that has only gotten worse for the past year & a half. Then two people told me that what i was describing was exactly what they experienced...both have instability in their necks and have been told it could have been fatal, or risking paralysis. what should i do!?

thanks,
Katlyn Constance

[selmaS]

Hi and welcome to the EDS group !!

Sorry I am not sure where the questions is?...can u add the link?

Sounds like u have cervicacranial instability and with EDS that is not uncommon...I too get the horse voice....and blurred vision but I also have chiari, so it is hard to know what is from which issue....

"selma"