Another scope vs. Hysterectomy??

[Staceyh37]

Hi everyone, I'm Stacey and I'm 28 years old soon to be 29. Have been diagnosed with endometriosis since I was 15. Have had a total of 5 laparoscopy's and one D&C, the last one being roughly 2 1/2 years ago. After some pretty intense increasing pain I made a visit to my PCP two weeks ago and found out I have a pretty decent sized cyst on my left ovary and some bleeding in my cervical canal that they considered and endo flare. I have been seeing a specialist at UNC Chapel Hill for the past 7 years in their urogynocology and pelvic pain clinic but have decided to see a new specialist closer to home as my UNC doc was quite a drive and at times hard to access as she was also Dean of Medicine. I'm a little anxious about starting over with a new doctor but am also excited in her specialty and word of mouth as I also work in the medical field. What I would love some input regarding would be women with endo who opted for a hysterectomy to try and reduce continued chronic pain? My husband and I do not have children but are also not 100% that children are in our future. Would love input on those who have gone through this. After dealing with endo for over 15 years (before being diagnosed) I'm in desperate need of a positive resolution and not another bandaid.

All opinions welcome
Thank you!!

[Alyson85]

I too suffered from Endometriosis for years.I had several surgeries,none of which helped.Finally at 17 i had a complete hystrectomy.It did wonders for me.I had no pain & it really changed my life.I'm 31 now and the worst complaint i have is the hot flashs from going into menopause.Its a great complaint compared to chronic pain,So there can be a happy ending.I really hope it helps and that you too can find relief.

[ticked]

I can recommend you to a great surgeon in your area that excises (cuts out) the endo which removes it from the root. Not many surgeons know this skill or have the tools to do it. That is key when treating this disease. Most use ablation which causes more scar tissue and doesn't get to the root of the disease.

I have had a hysterectomy along with Excision but I would never advise going this route. It was a personal choice I made due to many different reasons and have not taken HRT since (2 yrs post op) I am only now feeling mentally better from the surgically menopause symptoms. It was a horrifying experience.

I do have a blog and that link is in my bio and I also have journals here too if you want to read them.

I am open to talk about this as well but I do want you to know that a hysterectomy is not a cure as there is no cure and it can come back. If you do decide to do please please please make sure it is a top specialist that excises the disease and can do this surgery minimally invasive.

Message me on here or post. Messages I get emails notifying me. Posts I don't. I am also live on twitter always for the last 4 yrs and can help guide you to the sources and people that could help and support you as well.

my handle is @EndEndoForever (The Faces of Endo)

xoxox