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Endometriosis Pain
Hey ladies, I am new to this forum but just wanted to see how yall cope with your endometriosis pain. It is 5:30 AM and I have been awake since 2:00 AM because of my pain. I have had endometriosis for almost 10 years now, and it has only progressed with age. I take Tramodol but I've been taking it for ten years and have built a tolerance towards it. Any other suggestions that could help? Heating pads, certain teas, etc? Any suggestions would be helpful! Thanks!
Well I'm not ovulating right now, period came yesteday! Almost two weeks early, and I will be calling my doc in the morning. That explains the cramping I had for a few days and my fertility doctor did a blood test a couple days ago and progesterone was 2.3 and he wanted me to come back in a few days but now my period is here, it feels like a real period too. Not sure if my body had to get rid of some gunk from the LAP but I sure hope this puts me back on schedule.This is so irritating. Not sure if I should be starting fertility meds on day 3 (monday) but this period is a little heavier than the one I had 15 days ago and it is very 'clotty'. I have never had this happen before, never had two periods in a month but since my lap in Dec, my cycles have been goofy. Gyno said he removed the endo and both he and my fertility DR said I was good to go at trying to conceive. Alot of BFP's occur within a few months after a lap so maybe I'll have some good news here eventually.
Well it sounds like your surgeon is incorrect. In fact you can receive up to 80% pain relief if excision is done. If laser is being done Endometriosis is not going to be fully removed as it is not getting to the root of the disease and will continue to grow.
Why are you anti-birth control?
I was on BCP for 8 yrs continuously after excision surgery and I never got a period during that time or ovulated and had substantial relief.
Why are you anti-birth control?
I was on BCP for 8 yrs continuously after excision surgery and I never got a period during that time or ovulated and had substantial relief.
Sorry for your suffering. Did your surgeon remove the endometrial tissue during your lap? Or have you done a preg test recently? I can't take NSAIDS either because I also have Crohns. It s*&^ because endo is all about inflammation. Scar tissue could definitely cause the pain. If you don't feel satisfied with the answers you are getting- see another doc. Remember you gotta be your own advocate and your health and well being is the most important thing in all the world. Wishing you peace and some relief.
Lu
Lu
I have had endo for the last few years and I have been trying to conceive for 3 1/2 yrs and worried that it's going to get worst with age. I've had two laps, stage 2 but right now I'm mid-cycle and crampy and getting a bit of a bloody discharge.. I don't know if it's ovulation pains as I have not gotten a pos OPK and I can't help but think its the endo returning. My Fertility dr thinks its a little soon as I had my lap in Dec but I'm frustrated at the constant pelvic pain. Ultrasound he did showed nothing significant. I can't take NSAIDS so I take a little Tramadol and Tylenol and sleep on a heating pad, and I still wake up to some discomfort. Fertility doc thinks I should go back on the pill or even Lupron. I am considering Lupron to save my parts and nothing else seems to work. I literally feel like I'm going to start my period. What concerns me is the pain has been constant since my lap in Dec, this has never happened. But both my gyn and Fertility dr said my uterus looks healthy and my age is the biggest factor in my IF(41). Also, I'm afraid I may have some scar tissue forming so would that cause me some pain? I'm going to start Lupron here as I was on it for a short while prepping for IVF and didn't really have any issues. I'm sick of the discomfort and worried there's something more serious going on.
i hear you. Tramadol is kind of a terrible drug if you ask me. It's not a very effective pain killer and it is a synthetic opiate with an antidepressant kicker so it is extremely hard to come off of. I have heard horror stories about this. I took it for a short period of time after my first surgery and it made me feel depressed and sick.
I too am anti- birth control because messing with my hormones makes me feel like crazy. However, I am currently taking a progesterone to stop my bleeding and give me a 'pelvic holiday' as my surgeon calls it before I go in for surgery # 3. I hope to conceive as soon as I am healed up. Have you had an excision surgery yet? Do you know what stage your endo is at? I have tried all forms of pain control and find a combo of advil extra strength and 2 tylenol with codeine, plus heating pad and prayers. I still cry my eyes out and curse the Gods but it does give me small amounts of relief. I lived on narcotics for 6 years and while I did not suffer as much physical pain- the effect it had on my soul and mind was not worth it. Hoping you find some relief.
Lu
I too am anti- birth control because messing with my hormones makes me feel like crazy. However, I am currently taking a progesterone to stop my bleeding and give me a 'pelvic holiday' as my surgeon calls it before I go in for surgery # 3. I hope to conceive as soon as I am healed up. Have you had an excision surgery yet? Do you know what stage your endo is at? I have tried all forms of pain control and find a combo of advil extra strength and 2 tylenol with codeine, plus heating pad and prayers. I still cry my eyes out and curse the Gods but it does give me small amounts of relief. I lived on narcotics for 6 years and while I did not suffer as much physical pain- the effect it had on my soul and mind was not worth it. Hoping you find some relief.
Lu
Yeah, my doctor suggested putting me through menopause and I was like PAUSE I'M 25! haha. My doctor did a lyscography or whatever that is called and she said that even if I have surgery to get rid of the endometriosis that there is like an 80% chance that it will return. I just don't know what to do. The tramodol makes me really sick and i am anti-birth control...so I'm pretty screwed. waaaaaaah
I also have no idea why whoever made us would do this to females :( the pain is literally crippling. :( Thank you for your sympathy!
Welcome to the endometriosis forum :) I hope I can help some of your questions.
The best way for me to do that is to tell you a little about me. I was misdiagnosed for 14 yrs and finally operated on in 2007 for deep infiltrating endometriosis, rectovaginal cyst, rare mensenteric cyst in the sigmoid colon, bladder resection and a presacral neurectomy. I had one of the top surgeons operate on me and that is key!! Excision surgery done by an Endo specialist is vital for any type of pain relief. There are only a handful of these specialist around the world for 179 million women affected by this disease. So that being said almost every obgyn does not know how to operate on this disease and most will leave some behind or will laser it off instead of excising it.
Excising is cutting it from the root laser only gets the surface therefore all remaining Endo will continue to grow if not taken out properly because lesions have estrogen in them so they feed off them just like cancer would
Thy being said once that is done some type of hotmail therapy is usually used to suppress te periods. I have tried many and the one that worked the best for me was marvelon a bcp I took every single day without stopping for 8 yrs. that way no period ovulation pain which I am telling you makes a world of difference.
The problem I have had is my bowels and bladder because it took so long to diagnose it damaged many many organs and I suffer from that pain rather then Endo itself anymore.
I now take a pill for my bladder, try to eat vegan if not at least gluten and dairy free no processed foods etc. Heating pad whenever I get bloated and aleve if needed.
What I would suggest for you is to see a top Endo surgeon so it's done right and that you can actually get some sort of relief. If you let me know where abouts you are I can lead you to that direction as this is the most vital part in dealing with this disease.
The best way for me to do that is to tell you a little about me. I was misdiagnosed for 14 yrs and finally operated on in 2007 for deep infiltrating endometriosis, rectovaginal cyst, rare mensenteric cyst in the sigmoid colon, bladder resection and a presacral neurectomy. I had one of the top surgeons operate on me and that is key!! Excision surgery done by an Endo specialist is vital for any type of pain relief. There are only a handful of these specialist around the world for 179 million women affected by this disease. So that being said almost every obgyn does not know how to operate on this disease and most will leave some behind or will laser it off instead of excising it.
Excising is cutting it from the root laser only gets the surface therefore all remaining Endo will continue to grow if not taken out properly because lesions have estrogen in them so they feed off them just like cancer would
Thy being said once that is done some type of hotmail therapy is usually used to suppress te periods. I have tried many and the one that worked the best for me was marvelon a bcp I took every single day without stopping for 8 yrs. that way no period ovulation pain which I am telling you makes a world of difference.
The problem I have had is my bowels and bladder because it took so long to diagnose it damaged many many organs and I suffer from that pain rather then Endo itself anymore.
I now take a pill for my bladder, try to eat vegan if not at least gluten and dairy free no processed foods etc. Heating pad whenever I get bloated and aleve if needed.
What I would suggest for you is to see a top Endo surgeon so it's done right and that you can actually get some sort of relief. If you let me know where abouts you are I can lead you to that direction as this is the most vital part in dealing with this disease.
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