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Endometriosis Surgeries

I had laparoscopies beginning at age 15 because of severe endometriosis, I am now 29 years old & have had 6 laparoscopies. My last surgery which was a year & 3 months ago I went in for a routine laparoscopy & was waken up after what was supposed to be a 30 minute surgery turned into 2 hours. The doctor (which was never discussed or mentioned in office visits of what could possibly happen once I was opened up or what to prepare for the worst). Thankfully I had told my fiance to sign the paper in case something happened I wanted him to be the one to answer for me & I did tell him that if there was something wrong that was not discussed during office visits to give the Dr. the okay to do what was best in my situation. So I was awaken & was told that my right ovary & tube had to be removed since they were not functioning properly & were damaged. That was the worst experience & surgery I have ever had & the emotional roller coaster it put me on, symptoms of pre-menopause & depression/anxiety & now I am slowly getting back to my "normal" self. For the past month, I have been having really bad pains on my right side where my ovary is supposed to be & also on my left side along with horrible back pain. I did find out last week that I do have a cyst on my left ovary so I went to my GYN to see what I need to do because I only have that one ovary left & I am trying to keep it as healthy as possible for when my husband & I do try to have a child in a year or 2 because we are not financially ready at this time for a child. Its making me really nervous because of what the Dr may find if he does a laparoscopy because I am not ready for that ovary to be taken out also or have a hysterectomy since neither my husband or I have any children. The Dr did my annual PAP & sent me for a ultrasound so I am just waiting for his office to call me with results & to schedule another appointment to discuss options because the Dr did tell me there is a possibility that he may have to remove the left ovary also, just depending on what he would find. I am so nervous because I want to at least experience having one child & the possibility of that being taken away from me devastates me & scares me horribly. Is their anyone there that has had a similar experience or could help me with questions I could ask the Dr if I am going to have surgery?? Any advice or help would greatly be appreciated! Thanks!!
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136956 tn?1688675680
I am really sorry that you are finding this forum or the information I am about to tell you so late.

Endometriosis is a disease where there is no real known cause or cure. So that being said the closest thing to being pain free is through Excision surgery. That is when they cut out the disease from the root.

The surgeries you have had sound to be all ablation (laser) which only gets the surface of the disease and by unskilled gynos that are not trained or not up to date with the current technology and skills.

Hysterectomy is not a cure so I really hope someone is not telling you to do that. Please do not.

You need to get rid of that surgeon and see an Endometriosis specialist asap. I can help you out with that you just need to let me know where abouts you are so I can get you some names of reputable doctors with high success rates.

If done right most women are able to conceive.

This is your body and you have the right to a second opinion, third forth and so on.

6 surgeries tells me that you are in the wrong hands.

An excision surgery done right should be the only surgery any person with Endo should have. However there are circumstances that contradict this due to women who have had multiple surgeries and or women like myself who took decades to be diagnosed and my endo was deep. Still not something that needs surgery that often. When it is deep that is when its an issue like I had. I am still waiting for the answer from a surgeon to find out how deep can they go without causing internal organ/nerve or tissue damage.

Not everyone has these issues if they are treated early enough that is why early detection along with excision is key.

Please do waste another surgery on someone that does not specialize in this disease.  
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