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Endometriosis causes constant nausea????

Hi everyone,
If you look at my previous posts you will see I've been sick with a huge list of symptoms the last 7months now. No one knows exactly what's wrong with me.

My worst symptom is living with constant nausea. But since becoming ill my period pain has  become unbearable. If I don't take painkillers I will throw up from the pain.

When  I was in the ER a gynocologist suggested I may have endometriosis, but didn't want to do a laparoscopy on me because its surgery. I took the pill she gave me for 3 weeks then stopped it because it made extremely ill. My doc told me never to go on the pill again because that's the 2nd time I  tried and had a serious side effect (including heavy bleeding that sent me to hospital),

So my question is, can endometriosis cause nausea that happens persistently all month and is at its worst during my periods? I also get severe diarehha/constipation, cramps, dizziness and migraines.

61 Responses
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Avatar universal
I live in South Africa and the medical we have here is not of the good ones. I have been living with megrains that come only when i'm on my period every month since 2009, the nausea only started a few months ago so bad I thought I was pregnant which turned out not to be. Always bloated and painful like strong period pains everyday even thought I'm not on my period. The worst is when I sit a lot swell up so much and suffer from constipation all the time. Farting relieves the pain a bit but only for a while then I have to take laxatives to just get some relieve. Gyneys just say I have a hormone problem. I am on contraceptives but without them I don't suffer with megrain but cannot go with out them either as I don't want more children. And can't have hysterectomy as I am scared as to with all the problems we have with our medical systems here in South africa. The last woman I  heard from she has nothing but problems since her hysterectomy she almost died.
So where would I start with getting help.
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Avatar universal
I am due to have a laparoscopy at the end of the month, I thought I was going mad, didn't know what was wrong I have lived with constant nausea for 2 years or more waiting for this surgery, I have lost sooooo much weight in the meantime ( not that I have ever been big) of all my symptoms, pain during/after sex which causes bleeding, irregular periods to the point that I now have not had one since Feb and a few more, the nausea has been the worst.  I really feel my symptoms are the cause of endometriosis, wish me luck ladies as I long to feel well, awake and less depressed again
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Avatar universal
How was your daughter diagnozed with Endo? Doc only can susspect but to be sure they do laporoscopy, unless they found systs or anything else doing ultasound...
Before you treat nausea, you need to understand where the roots are...
I try everything it didn't help until did laporoskopy and started hormone theraphy with lupron...
Did she had any stress resently?
In meanwhile just rest, stress free, healthy diet, and lots of love...
God bless your daughter and make her feel better.
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Avatar universal
WHAT CAN BE DONE TO HELP THE NAUSEA???
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Avatar universal
My 17 year old daughter was just diagnosed with Endometriosis about a week ago. She has also had Mono the last 3 months. She is suffering terribly from nausea. Zofran doesn't even help. She has been Gluten Free the last 3 years as we thought gluten was the culprit. Being GF has helped her symptoms, but now she is miserable. Nothing sounds appetizing and her nausea gets progressively worse as the day goes on. The GI doctor wants to do an endoscopy, but wants to wait til we see the Endocrinologist this Thursday. Praying for a correct diagnosis and helpful treatment. The BCP they have her on doesn't seem to be helping her... yet.
We were told is this can be hereditary. Yep, it can be; Grandma had it, my Mom, Me and now my girl. ARG!!! Good news is we are seeing a GYN who studied with the top guy at Stanford and we are hopeful God will answer our prayers and she will find some relief. Please say a prayer for her as I'm praying for all of you as well. And thanks for letting me vent some. It's awful seeing your child suffer :(
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3 Comments
My daughter same age has similar symptoms.  Did you ever sort out problem
My daughter is 15 and has suffered from chronic nausea for the last 18 months and has not been to school regularily  for over a year  (as in only attending the health school community classes that are 2 hours long a couple of times a week).  Before that she had nausea intermittently for a couple of years.  She started menstruating at 13 1/2 (6 months before the chronic nausea set in)  and then it was 3 months before the second cycle and then almost 6 months till the 3rd cycle.  Her cycles were pretty erratic and very heavy and painful, theyve settled into a better rhythm now but she gets terrible pain just before and during her periods - debilitating pain, even when taking naproxen and paracetamol.  She's just told me that it's very painful urinating and passing bowel motions during her period - she has to half stand up to do this so Im now wondering if all the tests theyve run on her digestive system and come up with functional dyspepsia is actually more related to hormones and possibly endo - I got shot down when I suggested it may be hormonally related.  This illness has changed her life, she's gone from a super fit, representative sporting player to a very down young lady who is so mentally and physically deconditioned, it's hard to imagine what she was once capable of and it's terrible on her mental well being and mine seeing this.  
Wow, horseymom!  That's a lot for her and you as her mom to deal with! They can't figure this out? I had an ulcer in my intestines that caused similar issues to her when I was very young (late elementary years) and was sick for almost a year and lost tons of weight.  Not saying she needs to have an endoscopy but have they ruled out an ulcer of this type?  

Sounds like she has been through a battery of tests though.  What types of doctors has she seen?
Avatar universal
I was wondering how do you feel after the laporoscopy? My story is similar to yours...
Had constant nausea for 18 months, did all possible tests, scans, didn't have a pain, but low grate fever and nausea, my period was very dry, I am in my late 30's. Had laporoscopy done in 2004, was diagnosed with endo and now in 2014, have a healthy son in between. So, after all the tests, that were normal, I was really struggling with bad nausea, went to anxiety stage and then to deep depression, didn't want to live like that, it was rwally bad....until I went to see the doc and I suggested if we do the surgery, so they can look inside, I was devastated and desperate, I don't know what was going on with me, so I was ready to do anything but not live like that...
So, I felt better after surgery, now done 4 shots to stop my cycle, even then I got one in between... I don't have nausea anymore, but sometimes discomfort in the whole body that last for a couple days...
My questions is did you do shots and how many and how do you feel now?
Thank you very much!
Lara
Ps please anyone are welcome to reply
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Avatar universal
My doctor suspects I have endometriosis due to the irregular bleeding, nausea, and pain during my periods. Back in June she switched me to continual birth control (NuvaRing) which has really helped with all the symptoms except the nausea... She thinks we should wait until I'm ready to have kids to do the laproscopy but considering the cramps are coming back and the nausea is every morning I was wondering if it was a really big relief for you to do the surgery?
Also did your insurance pick up some of the cost?
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Avatar universal
This is why we need to see Endometriosis specialists as they can handle the bowels hooked to other organs and the wrong places...so they can do it right the first time...I had frozen pelvis 3 times, one before I ever had a surgery which proved it was endo causing the adhesions as it could have been nothing else, then the other two times were after the dr. took all my female organs including the ovaries ~ I had to have 1/2 my colon removed and had my organs gluing together s well...see a specialist rather then just getting diagnosis so they can do it all in one surgery...it is not a disease to mess with  but in the hands of a non-specialist you will end up with multiple surgeries...I have lost so many organs to this disease it's not even funny...but I laugh and say I need a zipper installed in my abdomen to give easier access...;) I too was unable to have bm's and no dr.'s would hear me...this went on for over 6 years where I was only able to get waste out with enemas or colon hydrotherapy and even that was hard...I lived on juice fasting for many years...it truly is a tough journey which is why it is so critical to get into the hands of a specialist!
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Avatar universal
Definitely have the surgery. This is my story. I have an identical twin sister who was diagnosed with endometriosis after years of pain, long periods and all the problems associated with endo. I also was having the same symptoms. When my twin had her surgery her bowels were stuck to her uterus. The doc tried to pry it away, but was worried about perforating her bowels, so he did the best he could. They were able to remove her  cervex and her tubes, but they could not remove her uterus. I was to the point where I was not able to poop for about two months. I kept telling my doctor that I was sure I had end and my insides felt like they were being squeezed. I visited the ER 3 times, had 3 ct scan with contrast and they finally said I had diverticulitus. When I was in the OR, the surgen found a large mass wrapped around my colon. He said I should be dead. I had a blockage, this is why when I pooped it only came out like stingy liquid. Guess what, when the did the biopsy it was endometriosis....Have the surgery I am lucky to still be here.
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Avatar universal
Yes endometriosis does cause nausea and bowel symptoms even if it is not on your bowel..I too have suffered with endo for 25 years or so and unfortunately had a hysterectomy 10 years ago only to have it continue to cause issues...I ended up losing half my colon to the disease and had spread from my diaphragm to my anus...even without ovaries...it actually grows it's own nerve and estrogen supply. I too suffered with severe migraines even while on bc...no right or wrong answers in this dreadful disease other then see an endometriosis specialist! I sure wish I had all those years ago as my story might have been much different...not that my life is horrible, but this disease has taken MUCH from me. I hate seeing Dr.'s who do not understand this disease cutting women up without excising the disease but just taking the female organs as this does not cure the disease...only cutting out any and all lesions will make you well...good luck in this journey...it is a tough one!  
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136956 tn?1688675680
Thanks for your response. I know there were some posts that I have incorrectly gave some sort of responses to that I was not up to date on. As you can see this posts dates back really far and for me after tons of research even talking to top specialist things are different coming from many different surgeons. I was told that when I was first diagnosed in 2007 that the BCP and Lupron suppress Endo. It wasn't until late last year that I was corrected. I am not trying to bash anyone and there was one person on this site that I possibly did that to and it might be this particular post but I have written so many I am not sure what one it is. I was in the wrong when I said it suppresses Endo as that is what I was told. I can't delete posts so there is nothing I can do about it. I would hope in the future you would respond back to me in private message as I took the time to explain this to you. I am not trying to attack anyone and I am sorry that I can not delete posts its just not how this site works.
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Avatar universal
Get your facts right ticked and quite being so ticked off all the time. Don't act like you know everything giving all these users false information . You bashed the only  commenter that took time to actually help people and then acted like you knew everything when you don't . All you know is how to suppress not actually fix the issue.
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Avatar universal
Do some more reading instead of bashing people. Birth control pills cause endometriosis symptoms to increase because all it does is mask the symptoms. If you mask it it won't be fixed. And once you go off the symptoms increase more than before. B control is another leading cause of causing hormonal imbalances. Before you believe everything your dr says question him and do some research your self. Talk to a homeopathic specialist if you are too lazy to pick up a text book. Don't call people giving out vital information stupid. You are stupid, I highly doubt you have ever done any research on your own and have taken what ever is spit out at you. If you ask a regular dr about endometriosis most just say they don't know anything about it in depth just the term. They say there is no cure and the only thing they can do for you is mask it with b control. When you question the b control with masking they will respond with well yeah it doesn't fix it just suppress so it can get worse. I had a moron dr tell me that when I questioned. I research and ask questions before I take anything just for this harmful reason. I suggest you read a bit more and ask more questions before you go around bashing people do I you basing everything on personal belief . Also. Note what you said. "The pill makes me feel better! I don't feel the migraines nausea  ect" wonder why? masking it. You are masking it! >< now if you keep the progesterone up with that pill you have a higher chance of having an ovarian cyst form more than likely have to do surgery which still won't do anything because now you have menopause sooner. When that cyst forms take colloidal silver throw in nephronal because you will have blood clots. Start taking calcium d glucrate and off those pain killers if you want to save your life. If you stay on those pills you will only hurt your self more and you will shorten your life
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Avatar universal
My wife has suffered with Endo since her early 20's (in her late 40's now). She's had a hysterectomy 5 years ago, but the surgeon wasn't able to remove one of her ovaries that is adhered to her pelvic bone. The pain went away for some time but now it's back in full force, she now has new symptoms including vomiting, incontinence, occasional dizziness, and for awhile her abdomen was enlarged.
No doctor (including her previous ones) have found anything with multiple tests including MRI's, cancer, Upper and Lower GI, HADI Imaging of the bile duct and liver, Scan of abdomen and pelvis.
They won't do any exploratory surgery to find out the problem. We both think it's the Endo and that they aren't catching it in the scans.

We're out of options other than taking medication with harmful side effects to mask the pain and symptoms and not solve anything.

Does anyone have any recommendations or has gone through this before and what were you able to do to treat this?

We are open to non-traditional medicines.

Thank you
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Avatar universal
Thank you, You are the 2nd person who suggested I try this instead of the pill. However I did my research and apparently it's the estrogen that causes all the problems with side effects etc. all the pills I tried in the past had higher doses of estrogen. I heard aleese is lower in estrogen. I plan on trying this for 3 months and if I don't feel better I will definitely try depo provera. Did you get any side effects? How is your pain levels?
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Avatar universal
Hey Lena. I might be too late on this post, but oh well. I have endometriosis and I cannot take an oral form of birth control. It made all my symptoms worse. However, I have been on depo provera, a birth control shot, for years and it has worked wonders!!! Just an idea. I don't know why it acts differently, but it definitely has been making life bearable.
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136956 tn?1688675680
Sure I will inbox you all the good connections that you can look into :)
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Avatar universal
Omg your are a true blessing. I'm so serious I prayed for the right answers and you have given me more than enough insisght. Can you give me the exact website to get to the Dr. The physican I was seeing retired and I do not trust anyone else. I rpomise I will not bother you anymore after this.
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136956 tn?1688675680
That's great please do :) I am everywhere online EndEndoForever so if you are looking for support from other Endosisters Twitter is a good place there are a ton. On here not many people come here just when they are looking for answers but there is a lot of support now on social networking.

Dr.Redwine can read your reports or photos on Endometropolis on Facebook he is a retired 30 yr veteran of this disease and he is there to answer questions he is amazing and you will get 100% facts from him which is what you want. There are too many watered down guesses about Endo so that is why so many Dr's and people are confused.
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Avatar universal
Thanks you so much for the information! Finally I'm at ease I will look back at my ultrasound results and request my records from my previous gyn doc to see what the two can compare. I will look up the info for the march. Thanks again. I will keep you updated.
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136956 tn?1688675680
haah no worries you are like me and that is a good thing. Most doctors and even ER doctors have no idea what Endo is and what problems could be because of it or the pain that it causes, so most of the time I need to educate them myself. Fibroids and Adeno def go hand in hand together. Did any of your ultrasound reports state that your uterus was enlarged? the only way to tell 100% if you have adeno is through a hyster unfortunately but the signs are there just like Endo. A good surgeon will know or have an idea.

The BCP has been my lifesaver and not just for Endo. It is the only thing that regulates my hormones however I have been breaking out like mad lately and that has not happened since I started them 7 yrs ago.

Make sure you get copies of your Ultrasound reports because they are very important to have because there have been times that they were looking at one thing and something else was detected but they ignore it because it has nothing to do with your complaint. For example I had an enlarged tube with blood around it. That was Endo however they had no idea in the ER so I was sent home. Brought that to the pain management clinic and I told her what it meant hahaha .. I am telling you most doctors don't have a clue about endo.

If interested not sure if you know about it or not there is a million woman march on March 13th 2013 all around the world but the big one is in DC. First one ever and we are going to be loud. So if interested look it up on Facebook to find a location close to you doing the march :)
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Avatar universal
I had surgrey in 2007 I had to have my right ovary and tube removed. I had my first laposcopic surg in 2001. I was DX with endo right after I had my daughter in 1998. I wasn't able to take the depo shot becasue I lost 2 inches of hair with the first shot and I gained so much weight. I have several differant types of cancer in my family and I'm afraid of the BC because of the hormone. I never tried to supress my periods or my ovulation this would be my first attempt with the embolization to supress the bleeding. I only have the severe pain when I have my periods or a week before. I'm going to do some research on the Adeno to see if that may be what I have.

The fibroids are new for me. I had severe pain one particular day and I fell to the floor and I wasn't able to move. By me working in the hospital with my doctors I was able to call and ask for a ultrasound and thats how I found out. I'm one of those patients that try to be a proactive and tell the doctor what needs to be done. LOL :-). But with this situation I'm stuck and clueless.  I will talk to the Dr before she preform my BX on monday.
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136956 tn?1688675680
The problem with a hyster is that it will not solve the problem with Endo. If your surgeon isn't skilled and excise the Endo it can come back, in fact it can come back regardless just at a slower pace with excision. If you have ever had ovarian disease (Endometrioma) I just became aware that even that can grow back as its different cell of Endo. I always assumed that if you excised the disease it would give you substantial relief as well as being on a BCP of some sort. I know for me it has helped a lot but many women can't take the pill or any form of HRT. For me it was a life saver literally.

Is it possible you have adenomyosis? A lot of women who have Fibroids and Endo often have Adeno and you are the right age for it.

Have you tried to the Endo diet to elevate some of the Endo symptoms? It is hard but I found it to help a little with pain but not all.

In my opinion I would have the procedure done. I am not a doctor I am only a patient who has suffered for 23 yrs. I have sat on the fence about a hyst since I was 30 and in the end it goes back to a 50/50 chance and that is with having a good surgeon. However many have found relief.

Have you ever been tested for any type of gluten allergy or celiac? I was tested but it came back negative but was positive for Wheat, spelt and Dairy intolerance.

Right now I am fighting for surgery myself and it is for a hyster. I had a PSN done (Presacral Neurectomy) and I don't feel like it helped and they say that if that didn't help I could possibly have Adeno as well. The continuous BCP for me has helped I am on Marvelon.

What have you tried to suppress your period and ovulation? How many surgeries have you had? Have you always had fibroids or is that a new thing? When was your last surgery?
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Avatar universal
I'm scheduled to have  laparoscopy along with embloization for fibroids on the 19th of this month for my endo. You seem to have a lot of knowledge about endo. Do you think it''s wise to have these procedures or just go head and remove the urterus? I'm so torn since Im only 35years old. I do not want anymore children I'm just scared. Now I'm experincing nausea and vomitting I can't eat anything without getting sick.
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