Hello. Did you ever get any answers?
I have had knee pain that radiates to throughout my legs since I was in high school, and now recently at 27 I have severe pain in my hips and butt. I have always had very painful periods too and IBS problems.
I was diagnosed with fibromyalgia, but I don't think that is what it is. When it is around that time of the month my pain increases.
I hope you found answers and can help others out.
I never associated the back pain and nerve problems in both legs to Endo. I have all that you are talking about though, now I have to wonder if it is from Endo or from one of my other problems. But they did do nerve tests on me and found nothing, no reason why I'm having pain from my back, into my buttocks, down my leg like a squiggly line and into my feet. I mean if I had a marker I could show my doc just where my nerve runs.
I suffered a lot with sciatica , leg and back pain was really bad at times , I had extensive endometriosis and my gynaecologist said that endo can grow on the sciatic nerve. I hope you get some relief from the pain soon .
Take care Angie
I've been dealing with endo for awhile now.... I have low back soreness on and off all the time. - I say sore because it's not chronic and isn't there constantly and I usually don't take anything for it. It seems like it will pick and choose instead of being in one spot all the time... I don't know if its endo related or what.... I don't know if this helps much...? But if you have any questions feel free to PM me anytime Good Luck... Hugs :)