Endo bloating, but laparascopy causes bloating too? Are there ANY solutions

[overit74]

I've had endo for quite some time.  Almost did the surgery that they freeze all the lining but backed out.  Within 6 months I ended up pregnant at age 40-miscarried, likely the endo did not help (devastated).  Was on the pill for a while after that, seemed to help some.  Then tried the Mirena most recently-it FELL OUT w/in a few weeks.  It was working pretty good also.  I lost my dad  to cancer. I pretty much gave up in life, started smoking again, so Dr. would not prescribe any more hormonal BC.  So Endo is now back with fury.

Last year also had an endoscopy/colonoscopy where it was discovered I had some pre-cancerous polyps (large) and Barrett's and IBS.  So between Endo and IBS I look 6 months pregnant now all the time, especially at night, it becomes horribly painful, my back will hurt big time also from the bloating in my stomach.  I'm losing hope and become quite depressed.  I'm quite sure there are some cysts formed as well (had them before, know the feeling).  Periods are a nightmare, heavy, clots, bleed through clothes at work, at night, no matter the pad size-even took to having to wear depends-now that's some sexy stuff right there huh?

I'm considering laparascopy and let them dig it all out.  I'm reading posts online about the bloating even months AFTER the surgery from the gas.  How, why??? I'm considering this to NOT deal w/bloating after some expected weeks of course, but if it will NOT help the bloating and make it worse why would I even GO this route?   I've tried the diet, it's not enough.  I have food allergies, it's IMPOSSIBLE to make ALL food diet lists...low fodmap, endo, high blood pressure, pre-diabetes.  Some say eat this, others say  not.  I mean I guess I could just starve myself and slowly die...I don't think I've EVER been this down in my life.

[ticked]

Welcome to the Endo forum.

I hope I can do my best to help you out.

First I want to say I truly understand your frustration with this disease and all that comes along with it.

Have you ever had surgery to officially diagnose the disease?

If yes it is possible it wasn't an endo specialist and with this disease it is imperative that you see one and only let one of them operate on you not a regular obgyn. This is a multi-organ disease and a doctor who has been up all night delivering babies should not be operating on someone with Endometriosis. This is where it gets tough for some patients because they are in pain and they are suffering and they just want it to stop and they seek the surgery from a gyno only to find out months later the pain has come back.

That being said if you let me know where you are I can help you find a good reputable Endo specialist in your area.

If you are also interested I have lots of information on my profile along with the link to my blog. There is a huge Endometriosis community on twitter which I find a lot better than groups in Facebook if you are interested send me a tweet @endendoforever . I support a lot of women and can help find you people in your area and just support in general.

The disease is very isolating so having support is very necessary for your own piece of mind.

[overit74]

Thanks so much!!!  I was wondering about that.  I'm in the ATL area.  I know there is one very reputable specialist BUT they only can work with you as 'out of network' w/insurance and thereforth it would be likely very expensive surgery.  I want to find one that my insurance will cover mostly (UHC).  Thanks in advance for any help. I don't have a twitter account. Will see about setting one up.

[ticked]

If the Surgeon is Dr. Sinervo from the CEC in Atlanta who is the best out there I know that they work with all sorts of different cases. Out of country, different insurance companies etc.

If you go on their site and fill out a package and send it to them the surgeon will personally call you and discuss your case and options. He really is an amazing guy. I have talked to him on the phone as well as in person at a symposium in Toronto and I am close to one of the main female advocates that works for him. They have an amazing team and I think you should really try this out first to see what he can do. He is very flexible. He rocks to be honest. :)