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epilepsy

how can anyone have fits all day and all night and look completely fine? See 6 yr old grandson question. I sat by his bed for three hours last week and he didn't move,  breathing normally , all ok. Yet docs say he's having them all the time? 3 big frights with high temp, once lay there with his eyes open and had stopped breathing. I thought febrile. Does have minor ticks, can't keep still when standing, v.irritable and hard work sometimes. I am v. upset and shocked at this diagnosis. Now has medicine, last two days. Daughter says v.strong. Been calmer but more aware, no ticks, but cant sleep now. Used to be ex sleeper. all info plys advice welcome
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Avatar universal
I am so sorry that another family has to go threw this.

What ever you do not let the doctors put him on add or adhd medicines ,because they can make his seizures worse.Some can cause the seizures.

Yes children can look normal and have seizures,my son did to me at first.and still when he is sleeping you cant tell he is having seizures.

And sometime they dont know what they are doing and cant help it,I have told my son things he has done and sometimes he doesn't know he has said or done things.
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458072 tn?1291415186
Please do not call them fits. They are called seizures.  

Was he in the hospital while this was going on? I hope so. NOt that they do much, but if he should "code" there would be someone nearby to help with that.

I am assuming they ran the EEG's. As far as the medicine goes, well, that can be quite discouraging while trying to find one that the side effects are tolerable. It takes a while and rarely is a person able to be on one and its a hit. Most have to dabble with several till they find one they can tolerate.

poor little fellow. Hopefully they can get him stable. Best wishes to the whole family with this diagnosis.

Helpful - 0
887324 tn?1241730037
oh yes oh yes..normal kids are normal until they have their seizures. Even an eeg can come back normal until they are actually hooked uo during an eeg.....Interictal {between seizures] life is normal....then it happpens and their little life changes immediately!! I totally understand your questions...Doesnt seem possible, does it....You can sit by and watch and all seems normal, but........

the meds will sometimes effect the sleep. We had this issue with Phenobarbital. Never wanted to sleep and awake all night long...moody too!!! Now he is on valproic acid and doing much better. I have heard others say the same but about valproic acid, so I assume that the reaction that they have to meds is a personal one...each child is different!!
Make sure that this child is seeing a neurologist or epileptologist....Keep a jouranl of all modd, behavior, physical and social issues and bring these up to the dr. This will help them determine when a med needs to be changed. Sometimes it takes alot of fine tuning to get the right medication for each childs special little system!!!  Blessings to you all!!! Vicki
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