figured i would add this in-
i will feel fine then BOOM out of nowhere i'll get the fevers and the other symptoms i mentioned above. sometimes it will last a few minutes, other times it lasts up to a few hours. but it always comes back like clockwork like i said above..almost every other hour...for 4 months now.
i'm just so sickly feeling and depressed because this is taking so much out of me and seriously limiting everything i can do
6 months - 1 years is the recovery time line for mononucleosis. You may not have mono now, but having high EBV antibody levels suggest you had it 4 months ago and it's now resolving. Symptoms can persist long after your blood work comes back normal. The best thing you can do is not "over do" anything..Rest lots and eat lots of food. Things will get better month to month.
Hello, and welcome! Sorry that you're having such a tough time with this! I'll do my best to answer your questions based on my experiences and what I've learned, but please keep in mind I'm not a doctor. Anyway...
Your symptoms sounds right in line with typical mono/EBV. I'm kind of wondering, did you actually have the monospot test? Without those results or the EBV titers results, it's difficult to differentiate between initial mono and EBV reactivation.
Assuming you never had mono, it's basically impossible to tell when you acquired EBV. If you have ever kissed anyone (Don't worry, I won't ask!), that's the "typical" way of getting the virus. It can also be spread by sharing food/drinks, or even by touching a contaminated surface and then putting your fingers in your nose/mouth/eyes. Then once you have it, you have it for life. I've heard that about 90% of people have it by age 30, and the only tests they have can show if it's a "new" infection or a reactivation. I know it's something you would really like to know, but it's honestly not that important. What matters is that you have it. So with that said, what can be done?
First, I think you should find an infectious disease specialist. They are much more knowledgeable in EBV than a typical doctor, and since your case seems to be "holding on", I would highly recommend that. Other than that, the main thing you need to do is get LOTS of rest. You sound like you've already taken some steps, such as cutting down on working, but apparently it's not enough. This may sound hard to believe, but I basically had to put my entire life on hold when I had a mono relapse, and it still took a while to get over it.
Unfortunately, I'm sure your heart condition and all you're going through with that is definitely not helping things. I wish I could give advice on that aspect as well, but I don't have any knowledge whatsoever about it! Anyway, I think if you're able to get ahead of one of these issues, you'll probably see the others start to improve as well. I know that's how EBV worked for me; it seemed to kind of compound with other things to just really beat me down. And try not to be too discouraged, but it may take a while. If you browse around on this forum, you'll find plenty of other people who have had similar struggles. Don't hesitate to ask any more questions!
thanks for your input.
i see my primary in 2 days and i will talk to her about seeing an infectious disease specialist.
same as you, my whole life is on hold right now and its been on hold for months. i literally can't do anything :(
i don't know how much more i can rest lol i honestly don't leave my house...thats how horrible i feel.
my doctor gave me a full blood test and the EBV showed up.. thats how i know i have it. its never shown up in previous blood tests, so i'm guessing its new.
and it ***** so much to know i'll have this for life and never know when it will go away or come back.
6 months to a year? ugh i hope i dont feel like this for that long..it's already been 4 months of the symptoms on and off every other hour.
i really hope they start getting better month to month..so far they haven't.
thanks for your input
There could be a couple reasons as to why EBV never showed up before on blood tests. The first case, like you said, it could be a new infection... in which case, you actually DID have (and maybe still have) mono. The second possibility is that you actually have had EBV for a while, but it was never really brought up because there wasn't any reason to bring it up (if you weren't sick at the time). And yes, you will have the virus for life, but that puts you in the vast majority of people. In some people it never causes any more issues, but in others certain triggers (stress, compromised immune system, etc.) can cause re-activation. But I think once you get "ahead" of it, you will really start to see things improve. Let us know how things are going; if I can help in any way, I will!
Hi, First I want to say thanks for all your comments.. I have been struggling with my health for the last five years and I started with menopause at age 37 and then adrenal fatigue and later found the blood type diet that really helped after I fasted for 10 days but only to find myself back to feeling the same a year later, same time around Christmas. My feet started to hurt, tingly feel hot with a dull pain, Lowe shins and calves feel tingly as well. Bloating, craving carbs a fattening food while i struggle at yoga snd working out 4 days a week. I thought I had gone to far away from my blood type diet and was just about to do a 10 days fast again. I'm starting to believe based on the comments I have read that this is the EBV virus? Can this cause the foot pain as well? What should I do to make it go away? How long can I expect it to last? The 10 day cleansed cured it last time if this is what it is.
What are the symptoms that make you think ebv is what you have? Have you ever had blood work for mono/ebv?
I could tell you my symptoms.
I am suffering with ebv attack and just 7 months ago i had it now again..it is a horrible thing to have but i found something to try..have you heard of this?
email me if anyone wishes for tips or what helps
also im taking high doses of liquid c
You're taking liquid vit C?
I have no energy. I really wish there was some for of medicine to help me.
Your symptoms sound nearly identical to mine. The only difference is that mine started off presenting as migraine like headaches and worsened with the other symptoms from there. I have had EBV present in my bloodwork for years. Interesting theory: have you had your thyroid levels tested? I only mention this because I had my thyroid removed about eight years ago, and have been struggling with the effects since. Most recently, these symptoms have been escalating and the infectious disease doc I was referred to mentioned that if my thyroid levels aren't where they should be (and haven't been for some time), then the body can literally feel like its rotting from the inside out. He hit the nail on the head with that one. I'm seeing an Endocrinologist in a week, and I'm hoping I finally get some answers. I hope you get some answers as well. The EBV flare up is a possibility, in my opinion (but, like the others, I'm not a doctor). From what the docs have told me, though, once the virus has been in your system, it just kind of hangs out and doesn't do much of anything. Sorry if that's not what you wanted to hear...and maybe it's not true! Anyway, best of luck to you, and I wish you well!
I'm reading this because I'm having a flare up 4 years on and sick with lethargy and that mood.
The best thing I found was being careful about diet. Actually I just listened to my body and bought to satisfy my cravings. Then I did more research and my instincts were confirmed. I had to avoid chocolate for a year, exercise nearly 2 years.
I was sick initially for 4 months as took only 3 days off work with no praise or actual support from my coworkers. They covered my tasks those 3 days and I'm sincerely grateful for it.
Good luck with your recovery!
Go to Amy Myers, MD website....she tells you exactly what to do - lysine, lauricidin, Fulvic-Humic Acid (get at Sprouts), and I have added liquid Aloe Vera Juice. As well as Vitamin Code Raw C. I have not added adrenal support until I have my adrenal glands tested. But if you follow her regimen plus what I have added, you will feel better within days.... hope this helps.