Reactivated EBV results

[ott70]

My recurring symptoms started up back in February. Over the course of the last few months, I've had a multitude of symptoms: Palpitations, abdominal pain, back pain, numbness/tingling in legs/feet, burning in the feet, chest pain, joint pain, muscle pain, fatigue, low-grade headaches, indigestion, night sweats (but not very many of them and not for awhile now), chills, hot flashes, frequent urination, conjunctivitis, ringing ears, and painful testicles. So basically, I feel whatever I have courses through my body because my symptoms change from week to week. Some days I feel like I'm recovering and then the next day I'm dragging. Or sometimes it works in half-day intervals.

Pretty much all of my testing has come back negative: gobs and gobs of blood work, CT of chest and abdomen, head MRI, EMG of major leg nerves, echocardiogram, heart cath, chest x-ray, lumbar spine x-ray, holter monitor, urine tests, ultrasound on thyroid, and upper GI.

Findings, not much: low potassium (briefly), low vitamin D, moderate acid reflux, mild gastritis in stomach, small kidney cysts. Some numbers on my bloodwork at times were a little out of range, but most of my CBC's have been within range.

The one item that has stood out is my EBV test results. The antibody testing shows that I contracted EBV a long time ago, but all of the current antibodies has high titers.

[DebMeyer56]

I have been tested for EBV and the labs came back that I have antiboties for EBV.  For all that is battling this illness and CFS please seek out a Functional Medicine Doctor in your area.  They deal with Fibro, CFS, Epstein Barr and all the other "invisible illnesses".  A great resource is Dr Amy Myers in Austin, TX.  Just google her name.  She isa wealth of knowledge on these illnesses.  I have even considered flying to TX from OH to see her.  She requires one in office visit and from that point forward can do phone consultations and labs as well.  She is the best doctor out there on these illnesses.  She was on Dr Oz this week.  She also has a podcast you can download and educate yourself about all these invisible illnesses.  A great book to get is "You Don't Look Sick!  Living Well With Invisible Chronic Illness".  by Joy H Selak

[blazingc]

Well. Clearly not years, lol, gotta love smartphones

[blazingc]

Hi. I'm just stumbling across this site. I'm floored by everything, everyone is saying. I was diagnosed in May 2004. Both my spleen and liver are enlarged, I'm curious, what to do?! Any help, suggestions, I'm thankful for. I've never heard of CFS,but I didn't completely fail a sleep study, I woke up nearly 300 times, despite, only remembering a few times. Thanks. I know it's been years since the last posting. My hematologist discovered everything, as a heads up. Its a blood problem. Great place to start, if y'all haven't already been.

[JHudson_10]

Hey I seen that you also have had reactivated EBV. I see you mention body aches and more symptoms. Do you care about sharing some or all of your symptoms? I also have a platoon of symptoms and haven't hear of anyone with a few of the symptoms I have.

[thanksgiving]

I have had those debilitating fatigues, and it is like being in a fog, and it is not like normal tiredness, indescribible, and yes when you are trying to work and have a fast pace job, just horrible. It eventually passes, and I just wake up one morning and it is gone. And, most of the doctors don't take it serious, as soon as I mentioned it they said that just shows that you've had it before, but they didn't even look at it.But, my GYN did do the test and and said it definitely looked like I was having a reoccuring EBV and suggested I go to an infection disease specialist, but never got around to it, so have never found out. Guess I've said all this before (forget) anyway I do take Vyvanse which is a timed release stimulant, which I think is actually a new version of Atterall (sp?)which is timed released, and it definitely helps, there is also Provigil another drug they say helps. Vyvanse and Provigil is expensive but my insurance does pay pretty good and I get a coupon which makes it about $30.00, worth every penny. I also take Synthyroid, for hypo thyroid. I spent yrs trying to find out what these spells were, still don't know  for sure, but haven't had a serious attack in a while, and it is usually after extra busy times, or stress. But, I don't work anymore and that helps. Good luck everybody, and maybe this is wrong but after being left out of every fun occasion because of this, I BELIEVE IN MEDICATION, now can have a life.

[JHudson_10]

I've had the same symptoms as you man and more. I was diagnosed with EBV in the February of 2012 and this thing has took it's toll on me ever since. I had these crazy symptoms then all the up to August where it subsided. At the beginning of Dec. these symptoms came back a little stronger this time. And it's been going on ever since. More symptoms like pain in clavicles, and numbness/pain in armpits. Was wonder if you ott70 or anyone else experienced these two symptoms..