Aa
Aa
A
A
A
Close
523927 tn?1257018704

Reactivated EBV results

My recurring symptoms started up back in February. Over the course of the last few months, I've had a multitude of symptoms: Palpitations, abdominal pain, back pain, numbness/tingling in legs/feet, burning in the feet, chest pain, joint pain, muscle pain, fatigue, low-grade headaches, indigestion, night sweats (but not very many of them and not for awhile now), chills, hot flashes, frequent urination, conjunctivitis, ringing ears, and painful testicles. So basically, I feel whatever I have courses through my body because my symptoms change from week to week. Some days I feel like I'm recovering and then the next day I'm dragging. Or sometimes it works in half-day intervals.

Pretty much all of my testing has come back negative: gobs and gobs of blood work, CT of chest and abdomen, head MRI, EMG of major leg nerves, echocardiogram, heart cath, chest x-ray, lumbar spine x-ray, holter monitor, urine tests, ultrasound on thyroid, and upper GI.

Findings, not much: low potassium (briefly), low vitamin D, moderate acid reflux, mild gastritis in stomach, small kidney cysts. Some numbers on my bloodwork at times were a little out of range, but most of my CBC's have been within range.

The one item that has stood out is my EBV test results. The antibody testing shows that I contracted EBV a long time ago, but all of the current antibodies has high titers.
77 Responses
Sort by: Helpful Oldest Newest
Avatar universal
I am a 50 year old female. I learned 6 years ago that I was a carrier of EBV and that they dont know much about it and I should research it myself. I think that was a load of crap coming from a medical professional. Basically I have been dismissed by him and the endocrinologist I saw last year.
I have been to an endriconologist an have mild Postural Orthastatic Tachycardia.  I was also tested for Addison's Disease which came back inconclusive. They run tests with no consideration for EBV so they really must know nothing about it or just dont care.
This month alone my symptoms are through the roof and I am so frustrated. Chills, sweats, pain, everything I have read I have experienced. I am to see the doctor tomorrow because I have had a headache for 5 days and a ridiculous amount of urinating.
I wish I could find a doctor who cared or at least one who can refer me to a more concerned specialist. Sending someone to the Internet to research diseases on their own is irresponsible and very scary for the patient.
case in point, I learned today that EBV carriers are candidates for Hodgkin's Lymphoma. These findings just contribute to stress and more unrest. I need help and some medical compassion.
Helpful - 0
Avatar universal
I read most of your story and when time permits will read it more carefully.  I'm a 63 year old male and developed basically all of your symptoms.  At first my doctors were dismissive.  I was sick for 8 months.  My symptoms began in December of 2011.  Night sweats were so bad I would soak 3 shirts and the sheets.  I could hardly get out of bed I was so fatigued.  Prior to all this I was playing Tennis 3 x per week.  I was misdiagnosed with every thing from arthritis to depression.  I had never been depressed until after six months of being ill.  I really thought I would never recover.  As was tested for everything under the sun.  My Epstein Barr  anti bodies were very high, but also had mono when younger.
      Now here's the amazing news.  I found a medical acupuncturist.  An MD who practices acupuncture.  He looked at my labs and confirmed what I had suspected, reactivated Epstein Barr.  He treated me with intense herbal supplementation and acupuncture 2 x per week.  The process boosted my immune system and I fully recovered.  It was a miracle for me.  My daughter is a nurse practitioner and aided with my recovery.  She spoke to my Doctor and said the man is a genius.  I live in Richmond, VA and would be glad to provide my doctor's info.
Helpful - 0
1 Comments
can you please post md name?
Avatar universal
Thanks a so much, will check it out.
Helpful - 0
Avatar universal
Hi there. I have located an excellent bit of information about testing from an organization bearing the web address  labtestsonline.org. Hope you get the clarity you need in interpreting your results!
Helpful - 0
Avatar universal
I was never been diagnosed with EBV except when I was having all these symptoms in my 50 t's with chronic fatique  and a lot of the things discussed here. I will always remember when I was about 16 I came down with something that took me forever to recover. I had extremely swollen glands around my throat and severe sore throat, pain, and  everything else.  I was in such pain, things were rough at home, and back then out in the country, you just usually layed there until you either died or got well. When I was finally able to get out of bed and looked in the mirror, oh my God, I looked like death warmed over. But, I never went to the doctor, so I assume that is when I had Mono.  Finally, my Gyn tested in me when I was in my 50t's   because I kept complaining about  feeling bad and having these extreme fatigues, no sore throats or swollen glands. He did look at the test results and said that they  looked very high to him and he suggested for me to go to an infectious disease doctor, never got there. My question is, how do you read these results? I can usually understand most test results, but when my primary doctor saw this he just waved it off pretty much and said a lot of people have these kind of results, but he just took a glance at it, so I don't know what to believe, it probably doesn't matter now anyway at my age, but I would like to know. If anyone knows how I can find out how to read these things please let me know.
Helpful - 0
Avatar universal
You sound like Me!did they check your 'VCA IGG'&other ebv titers? check your Lymphocytes&histiocytes,&Histiocytosis,your symtoms are like mine! I had a Great Immulogist&Ruemotoligist in 05 but they retired&seen 100 Drs since&hvnt had a DR that'll listen!I have severe burning&crushing bone pain-molted appearence,Rib& organ under rib,leg pain-,lung issues-adhesions&grounglass appearense,Mast cell disease,10 ruptred disc,Deg.joint&disc disease,swollen lymph nodes-removed&bx-3reactive lymph nodes w/sinus histiocytosis, Reynauds,severe neuropathy,fatigue, rashes,hives,etc,etc.I do have 'flares' that my symtoms get way worse-I get a fluid filled rash,chest pain,swollen gums/lose teeth/jaw pain,organ under rgt rib swells&hurts+worse fatigue i can barely walk!when rash subsides other symptoms do too-but are always severe.GOOGLE HISTIOCYTOSIS. I cant get a Dr in Ohio to listen with all these results!If U have biopcys or bloodwork you can try sending it to Dr McClain@Texas Childrens or M.D.Anderson in Texas. Good Luck! IF ANYONE KNOWS A DR IN OHIO PLEASE REPLY!
Helpful - 0
Have an Answer?

You are reading content posted in the Epstein Barr Virus (EBV) Community

Top Infectious Diseases Answerers
1415174 tn?1453243103
CA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Fearing autism, many parents aren't vaccinating their kids. Can doctors reverse this dangerous trend?
Can HIV be transmitted through this sexual activity? Dr. Jose Gonzalez-Garcia answers this commonly-asked question.
A breakthrough study discovers how to reduce risk of HIV transmission by 95 percent.
Dr. Jose Gonzalez-Garcia provides insight to the most commonly asked question about the transfer of HIV between partners.
Before your drop a dime at the pharmacy, find out if these popular cold and flu home remedies are a wonder or a waste
Fend off colds and the flu with these disease-fighting foods