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Corneal Erosion that won't quit!

Hello, I had a severe bout of Iritis in both of my eyes and was hospitalized for almost a week before the hospital brought in an eye doctor to diagnose what was wrong with me. Up until this time, I had perfect vision and never had any optical problems. Anyhow, it took about six months being on steroid eye drops to finally get rid of the Iritis. Also, no physician has been able to put my symptom list together and come up with a diagnosis. The Iritis went away and for the past 6 plus years, I have had corneal erosion. It has become so bad that I have scars on my corneas and they make black spots like floaters in my vision. There has not been a day that goes by since I've had Iritis that I have not had corneal erosion. I am always in a lot of pain and it hurts so bad that it is like a cat clawing my eyes out. My local eye doctor who is also an Internist believes that I have an autoimmune disease but nobody will test me for the things that she recommends, IE; wegeners granulomatous,(sp?) and a few other diseases. She firmly believes that the corneal erosion is a secondary disorder. In the mean time, the scars that have left a lot of black floaters in my vision are really bothering me. Is there anything that can be done about the corneal erosion? I have used eye drops during the day, at night ointment with eye patches and nothing has helped. Can an eye doctor correct this or even help me get a diangnosis?
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Avatar universal
As a matter of fact, my GP of almost 10 yrs is capable of writing referrals to many different specialists but when it comes to speaking with another physician, he seems to mess up every time. I am looking for a new GP but I do have a great Opthamologist,(sp?). She is an opthamologist and Internal Medicine doctor. She has suggested the Palmer Institute, if that is the place in Florida. She has also suggested a few autoimmune disorders. Wegeners Granula???? (sp?), Lupus, and a few more. Every time I go to a Rheumatologist, they just test me for about 6 to 8 of the main autoimmune diseases, Lymes, Lupus,Sarcoidosis, Sclererderma, and a few more and they always come back as negative. I have a malady of symptoms that I am dealing with. I believe that the reason i cannot get a diagnosis is because whatever it is that I have is a sub-specialty or a cross of two or three different specialists. I believe that is why one specialist alone cannot figure out what is wrong. I have been "working" 7 days a week as long as my energy level will let me to try to get a diagnosis. All of my symptoms used to be the same but now I have symptoms that just shock me and they are all extremely painful. I have an appt at the Cleveland Clinic on Aug 18th. I am hoping that they can help me or even put me in-patient and have all of the specialists come to see me because my symptoms call for just about every specialist there is, even of late, oncology.I am in so much pain and I am so weak, I cannot make it to out-patient appts anymore. Hopefully the Cleveland Clinic can help, at least with part of my problems. Thank you for getting back to me so quickly.

God Bless,
Kendra
Helpful - 0
284078 tn?1282616698
MEDICAL PROFESSIONAL
Also, I am surprised a workup has not been done.  Why not?  Is your doctor not capable of that?

MJK MD
Helpful - 0
284078 tn?1282616698
MEDICAL PROFESSIONAL
I suggest you see a uveitis specialist at Bascom Palmer Eye Institute or Massachusetts Eye and Ear Infirmary.  If you cannot make it there, perhaps you can see an ophthalmologist that has trained in uveitis at one of those type of centers.  Sorry, but your problem is very complex - where am I to begin.  This requires one on one individual treatment in person.

MJK MD
Helpful - 0

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