My right eyelid has been droopy for about 3-4 weeks now. It was a sudden onset, I just woke up with it one morning - although I did have blurry vision come and go for a few months leading up to this.
I've been to an optometrist who sent me to my doctor who sent me to an opthamologist who is now sending me to a neurologist (and possibly a neuro-opthamologist). Tests for Mysthenia gravis (all three blood tests) were negative. Two docs thought the ice pack test was negative, one thought it was inconclusive and may have shown some improvement. No itchy, no injuries, no clue as to what is provoking this. My ESR is elevated, but that may be unrelated as I also have an enlarged spleen.
I don't have any pain in my eye, but I do get some headaches on that side of my head - behind the eye, on my forehead, and back to my eye. These come and go at random and are very uncomfortable but definitely not debilitating.
If MG is unlikely, why would I need to see a neurologist? What sort of neurological problems could cause this? How concerning is this? As annoying as this is (both in that I look weird and the discomfort associated) I'd like to put off seeing the neuro for a short while (few weeks) because my schedule is a bit hectic at the moment... but I don't want to be putting off something if it is urgent.
Any insight you could share would be very much appreciated. Thank you so much for sharing your expertise here!