Aa
ectopic lentis
Hello, I have a detatching lens in my left eye. If you are an eye doctor that would mean that without dialating my eyes you would be able to see the edge of my lense and the fibers. Essentially the fibrilin or connective tissue is slowly dissentegrating. Eventually I will need to have surgery to fix this. Was wondering what the best method or timing would be for this. I am 34. It only causes me occasional problems. I patch the eye while driving to prevent the double vision if I catch a line in the road on the edge of the lense. I have not had much movement in the last year. The opthomologist said that he would prefer to wait as long as possible before correcting. I am wondering if this issue is related to my autoimmune condition and if what is happening to the fibers that connect the lense to my eyes is a reflection of what could be going on in other parts of my body.
I do not have Marfans and assume I don't have EDS
I do have Wildervank's (Klippel file, Goldenhar and Duane's)
I do not have Marfans and assume I don't have EDS
I do have Wildervank's (Klippel file, Goldenhar and Duane's)
Best Answer
The wildervank's, klippel file, goldenhar and Duane's are all congenital
The autoimmune condition is not
The autoimmune condition is not
My husband is blind so I am more aware of risks associated with eye surgeries. He lost his vision to aggressive glaucoma at 27 years of age. After going through 13 eye surgeries and a cornea transplant with him. I think I'll be takin' my time while looking for surgeons!!!
Yeah I figured out it was pretty rare and unusual. I have been trying to keep up with opthomology and surgeons that treat this kind of condition but its been difficult due to its rarity. I might need to just monitor a Marfan's forum for a while and learn about the surgeon referrals from there.
Thank you for your guidance and support. I appreciate it.
Thank you for your guidance and support. I appreciate it.
MEDICAL PROFESSIONAL
Those are relatively uncommon syndromes and I do not have the experience to tell you if your subluxating lens is related to them. By far the most common cause if Marfan's
There are a number of very new techniques for dealing with a dislocated lens that will make the surgery much safer and more successful when you need it. Note this is unusual surgery and you may need to be referred to an eye surgeon that has skills/experience with the problem
JCHMD
JCH MD
There are a number of very new techniques for dealing with a dislocated lens that will make the surgery much safer and more successful when you need it. Note this is unusual surgery and you may need to be referred to an eye surgeon that has skills/experience with the problem
JCHMD
JCH MD
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There are new techniques for dealing with this when you need surgery. Be sure your surgeon has skills and experience with this type of surgery.
JCH MD