heredomacular degeneration

[Vjjain]

hi my daughter is 18months old , doctors here in bangalore & ahmedabad, india examined her and have said that my daughter eyes have been defected from heredomacular degenaration from birth.. its difficult for her in daylight as compared to evening so pls suggest as any treatment is there anywhere in world..and any other way in which as of now she can be comfartable in daylight also..can we make her wear specks with some cooling glass or something or anything..she is managing herself whole day by running here and there but in sunlight or daylight she keeps her eye lids down and same time becomes very silent also..we also want to know how will her react or see in future.will she be able to go to school and would she be comfartable in her future life..pls help us anyhow as we are very much worried about her.. tell us by anything which would help her in anyway..please help us

[Doreen Fazio, M.D.]

Your daughter should be under the care of a retina specialist who is an expert in hereditary retinal disease.  Basic eyeglass use would consist of glasses which absorb 100% ultraviolet radiation, plus some of the lower wavelength blue light to reduce glare.  

[Vjjain]

i also want you to please reply me all the questions of mine if possible..

[Vjjain]

Madam i need to know more about this i mean is this disease curable and if yes then till wat extent and how ?

[Doreen Fazio, M.D.]

Your daughter should be under the care of a retina specialist who is an expert in hereditary retinal disease.  Basic eyeglass use would consist of glasses which absorb 100% ultraviolet radiation, plus some of the lower wavelength blue light to reduce glare.