peters anomaly

[nishal]

what  can be done if a child born with Peters anomally in one eye which has no vision and other has.Do you think surgery will help to improve the vision.

[GlitterGirl1208]

I was born with Peters Anomaly. I have type 2. I have low vision in my right eye and none in my left. Multiple corneal transplants were done on both. My left eye failed all of them, so we pretty much lost it. My right eye was successful. If we never did treatment, I wouldn't have the vision I have today. The thing is, due to corneal clouding, I have to get a new transplant every 7 to 10 years. I am on my 2nd and a half one.

[JohnHaganMD]

Thanks for posting

[haven1970]

Hi all. I am a 42 year old woman, and I was born with peter's in my right eye. they preformed a surgery before I was 1 year to allow light in, so that I could see.  I have partial vision in my right eye, I see colors, shapes, but it is hazy.  My left eye, is good, not perfect by any means, but good. I wear glasses or contacts, I too wore a patch when I was little with no problem. I have no depth perception because of Peter's. My parents never babied me or treated me any different. They showed me that I was no different and I could do what everyone else was doing. I was never treated as though I had a disability.  They allowed me to join all kinds of sports and do all kinds of things. I was on the track and field team(discus and shot put), I did ballet for years, I was on the swim team for 6 years, I did gymnastics, sailing, Skating, downhill skiing. I was on the diving team, rugby, basketball, volleyball, soccer and baseball. I have worked since I was 15, and have a successful job now.  I have my drivers license(I must wear glasses or contacts when I drive), I am considered "legally" blind. I think it is very important to allow your children to grow and not feel as though they are in any way different or they can't do anything because of Peter's. Play ball with your children, have fun. Teach them that they can overcome things and that they are capable.
  While I understand as a parent the first instinct is to protect them, being a parent myself, it's mine as well, however I never felt as though I shouldn't try or do something because of my eyes. You being paranoid or over protective will fill them with fear and make them doubt themselves.
  I just wanted to share a bit of my life having to live with Peter's. I came across this as I was looking to see if there is any advancement as far as treatment for adults. I just thought I'd share.
I know it is difficult, but it just becomes a part of who you are and you end up never noticing.  I wish everyone the best and feel free to comment or criticize if you see fit.

[quinnsmom2012]

My daughter was born with Peter's Anomaly in her right eye. The opacity was central over her pupil. The doctor had considered a corneal transplant, but was hesitant to proceed due to a very poor success rate. He decided to try an iridectomy first as the risk is lower. She had the iridectomy at 6 weeks old. For this they "unstuck" the cornea, iris, and lens and then removed 1/3 of her iris. This created a pathway for light to get through to her lens. We started patching her good eye at 8 weeks so that her right eye could become stronger and hopefully her brain would start to exercise it. We had to start doing this right away as there is a chance that the brain will decide to "turn off" the eye if the other eye is well functioning. My daughter is now 9 months old and she has better than expected vision in her right eye. Her hand-eye coordination when she is patched is no different from when she is not patched. She can definately see much better with her affected eye. We just won't know until she is a bit older to what extent she can see details. This procedure has been a great sucess with her though. Not only is her eye much stronger and her vision greatly improved, there is a very good chance she will not need a corneal transplant at all. As she is still young this can change, but as of now things are looking good. I would really urge parents of patients with Peter's Anomaly to discuss the option of an iridectomy with their physician before jumping into the option of a corneal transplant.

[nmommy]

Hi there,
Thanks for posting this - I have a 2 year old with peter's in one eye and vision in the other. Her bad eye obviously can't focus and turns in and out at times and it's a blue/opaque color whereas the good eye is dark brown. I wanted to know when you started the cosmetic lens - at what age? and is it uncomfortable at all? (since she has a failed corneal graft I wonder what it would feel like with a lens on top)...the docs recommend when she's older to just cover the whole eye with a fake sclera instead....
She had glaucoma in that eye which is very hard to deal with and the eye drops aren't working and they keep recommending surgery after surgery... she had already 6 surgeries in her first 6 months - 2 failed corneal grafts and lensectomy etc.... any insight you have would be much appreciated. Thank you!

[sarahklo]

hi all,
im 23 girl with peters in my left eye and good vision in my right eye i wear a cosmetic lense in in my left i was just researching to find out if i could find anyone with the same as myself as iv never met or spoken to anyone in the same situation and maybe get some more information on others expierences.
thanks x x

[grp]

I to have a 16 year old with peters in her left eye, she is legally blind in her left eye. She did not have a corneal transplant but did have most of her opacity removed which gave her eye some sight but still she is blind in that eye for the most part.  Her right eye has good vision, she wears glasses to protect her good eye and she does not play sports because if something where to happen to her good eye she would be totally blind.  So I disagree with equipr69, we try to protect the good eye. Now when she becomes and adult and wants to do these things she may but I believe she wont, but until she is an adult I will do everything in my power to protect her good eye.

[LindaDa55]

Hello,
   I am the mother of a 15 1/2 year-old girl who had a corneal transplant at age 2 weeks, due to Peter's Anamoly, and was under 5 lbs. When she was born they said they needed to do surgery immediately since they don't want the brain to stop talking to the optic (eye) nerve. We got a corneal graft from a two-year old killed in a car accident.  The surgery was performed in Littleton, Colo, a southern suburb of Denver.  I would highly recommend Dr. Richard Damiano and his partner Dr. Forstadt. We had to make the 60 mile drive to see the surgeon quite often over the 1st year after the transplant.  The graft was held in by 16 sutures and after 6 weeks she had a surgery to remove 12 of the sutures and then again at 9 months to remove the other ones.  She now sees with 20/40 out of the affected eye and the surgeon is very pleased with her progress.  We patched regularly when she was young and they have told us it was made the biggest difference for a functioning eye. We see the surgeon annualy for a checkup.   I was quite familiar with the anamoly since I was born with it also.  I have it in both eyes - but was unaware that it was in my right, until my daugther was born with it, and the doctor's looked at my eyes.  In my left I only have peripheral vision.  Best of luck to you.  My daugther and I were the 5th and 6th incidence of this anamoly in our relatives. Please see an ophthamologist as soon as possible or call Dr. Damiano offices in Littleton, Colorado at Corneal Consultants - my daughter is still the youngest and smallest patient he has done surgery on that I know of.  I would want someone who is a specialist and has experience.  Dr. Damiano went to Duke medical school and graduated as one of the top in his class - and very very knowledgeable!   Best of Luck - Linda

[eguipr69]

hello i am new here and i am 28 with petters on both eyes i am completely blind on 1 eye and the other one only see 20% i just wanted to let you know to you parent with babies with this condition dont worry about it, it is hard to leave with it but you get used to it and just give them support and let them do whatever they want sport and stuff dont put them any limitation we can still do every day stuff as normal people dont let them go down on them-self

[Ryn251]

My 2 weeks old daughter was born with peters as well in both eye. One eye has clear cornea on the surrounding and the peters in the middle of the cornea. what do youmean with peripheral vision ? can any expert there determine whether a small child can has vision ? here in Australia they are against corneal graft for  treating baby with peters. I dont think they have the expertise. So the recommended treatment is iridectomy for our baby, which we have to decide soon. I can provide her pics, I can be contacted at cy_rynia***@****, we are using steroid drops in hope the hazyness will lessen

[John C Hagan III, MD, FACS, FAAO]

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[MotherOfOne09]

i was just wondering how old your child is?
my little boy was born with peters as well. he has not has the surgery but in his case he did not have a full cataract on his eye it was on parts and he was born peripheral vision in that eye....do you have any pictures of hie eye? do your child have to patch? or use drops?

[John C Hagan III, MD, FACS, FAAO]

Only a pediatric ophthalmologist could answer your question. Find one at www.aao.org    Concentrate of save the "good" eye from disease, damage.

JCH MD